ITP & Me: Creating a book for Teens, by Teens
Manage episode 505610404 series 3676259
Behind the scenes of a project giving teenagers a voice in their ITP journey.
Being diagnosed with ITP as a teenager can feel overwhelming, and finding the right information at the right time makes a big difference. In this episode, Danielle speaks with Professor Nichola Cooper, Dr Alice Hart, and Mervyn Morgan about ITP and Me: A Teen Guide to Living with ITP.
They share how the book was developed with teens, for teens, why age-appropriate resources matter, and how hearing directly from young people has helped shape a resource that is both practical and reassuring. Whether you’re a teen, a parent, or part of a healthcare team, this conversation highlights the impact of collaboration and the importance of giving young people a voice in their care.
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For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.
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9 episodes