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Building Global Connections: The story of the International ITP Alliance

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Manage episode 515095256 series 3676259
Content provided by ITP Australia and New Zealand, ITP Australia, and New Zealand. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by ITP Australia and New Zealand, ITP Australia, and New Zealand or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance.

Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere.

We also examine some of the Alliance’s major milestones to date, including ITP Awareness Week, and how resource sharing and collaboration have helped drive change in over 30 countries worldwide.

Support the show

Thanks for listening to Beyond the Count

For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.

📱 Follow us on social media:
Instagram: @ITP_ANZ
Facebook: facebook.com/ITPANZ
LinkedIn: ITP Australia & New Zealand
YouTube: @ITPANZ

🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode.

Do you have feedback or a story to share? We’d love to hear from you. Get in touch at [email protected]

  continue reading

14 episodes

Artwork
iconShare
 
Manage episode 515095256 series 3676259
Content provided by ITP Australia and New Zealand, ITP Australia, and New Zealand. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by ITP Australia and New Zealand, ITP Australia, and New Zealand or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance.

Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere.

We also examine some of the Alliance’s major milestones to date, including ITP Awareness Week, and how resource sharing and collaboration have helped drive change in over 30 countries worldwide.

Support the show

Thanks for listening to Beyond the Count

For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.

📱 Follow us on social media:
Instagram: @ITP_ANZ
Facebook: facebook.com/ITPANZ
LinkedIn: ITP Australia & New Zealand
YouTube: @ITPANZ

🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode.

Do you have feedback or a story to share? We’d love to hear from you. Get in touch at [email protected]

  continue reading

14 episodes

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