Big tech is transforming every aspect of our world. But how, and at what cost? This season of Land of the Giants – The Disney Dilemma – focuses on Disney’s ability to weather the ups and downs of the business cycle and changing tastes and explores what has kept it successful for over 100 years. The entertainment giant has leveraged nostalgia and its intellectual property to build a beloved brand, but after an acquisition spree that included Marvel, Lucasfilm, and 20th Century Fox, can it sus ...
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Can Austin Lead the Race to Solving Rare Diseases with the Founders of the Firefly Fund
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Manage episode 443127745 series 3341253
Content provided by Jason Scharf. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jason Scharf or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.
Nothing motivates a parent to action like a sick child, and for the Andrews family, words like no and impossible became mere roadblocks on their journey to help their kids. Our guests, Pam and Chris Andrews, founders of the Firefly Fund, turned their battle with their daughters' rare genetic disorder into a mission to revolutionize rare disease research and treatment here in Austin and beyond.
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TEDx SouthCongress Registration
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Austin Next Links: Website, X/Twitter, YouTube, LinkedIn
Ecosystem Metacognition Substack
…
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Episode Highlights
- Firefly Fund's Origin
- Establishing a Rare Disease Center at UT Dell Medical School
- Navigating the Diagnostic Odyssey
- Interplay of Tech Innovation and New Business Models in Healthcare
- Downstream Effects of Rare Disease Advancements
- What's Next, Austin?
- Pam Andrews: "Let's see how the intersection of technology and healthcare really can transform healthcare because I think that rare disease can light the way and inform the way that we do precision medicine for generations to come. So that's what we want through the Center for Rare Disease here in Austin is for it to evolve and unfold in a partnership with the rare disease community."
- Chris Andrews: "My dream is that when people think of Austin, they'll think of the University of Texas, they'll think of barbecue, but they also will think of a place where people work to save lives."
Firefly Fund: Website, Facebook, X/Twitter, Instagram, LinkedIn
-----------------------------------------
TEDx SouthCongress Registration
-------------------
Austin Next Links: Website, X/Twitter, YouTube, LinkedIn
Ecosystem Metacognition Substack
153 episodes
MP3•Episode home
Manage episode 443127745 series 3341253
Content provided by Jason Scharf. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jason Scharf or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.
Nothing motivates a parent to action like a sick child, and for the Andrews family, words like no and impossible became mere roadblocks on their journey to help their kids. Our guests, Pam and Chris Andrews, founders of the Firefly Fund, turned their battle with their daughters' rare genetic disorder into a mission to revolutionize rare disease research and treatment here in Austin and beyond.
-----------------------------------------
TEDx SouthCongress Registration
-------------------
Austin Next Links: Website, X/Twitter, YouTube, LinkedIn
Ecosystem Metacognition Substack
…
continue reading
Episode Highlights
- Firefly Fund's Origin
- Establishing a Rare Disease Center at UT Dell Medical School
- Navigating the Diagnostic Odyssey
- Interplay of Tech Innovation and New Business Models in Healthcare
- Downstream Effects of Rare Disease Advancements
- What's Next, Austin?
- Pam Andrews: "Let's see how the intersection of technology and healthcare really can transform healthcare because I think that rare disease can light the way and inform the way that we do precision medicine for generations to come. So that's what we want through the Center for Rare Disease here in Austin is for it to evolve and unfold in a partnership with the rare disease community."
- Chris Andrews: "My dream is that when people think of Austin, they'll think of the University of Texas, they'll think of barbecue, but they also will think of a place where people work to save lives."
Firefly Fund: Website, Facebook, X/Twitter, Instagram, LinkedIn
-----------------------------------------
TEDx SouthCongress Registration
-------------------
Austin Next Links: Website, X/Twitter, YouTube, LinkedIn
Ecosystem Metacognition Substack
153 episodes
All episodes
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