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Caregiver's Compass

Stephanie Muskat

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This is Caregiver's Compass. An uplifting, inspirational podcast talking about all things caregiving. Therapist and caregiver Stephanie Muskat takes you through real-life caregiving stories from her own therapeutic experience and gives you the raw and personal on her own caregiving experiences as a young caregiver. Plus hear from tons of incredible experts and caregivers who are living through their day-to-day journeys. It's all here at Caregiver's Compass.
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In this episode, Stephanie shares some of the most memorable (frankly, ridiculous) things people have said to her while she was caring for her mother and following her mother’s passing. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compas…
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Charles Morris has an incredible story, and we are so thankful he is sharing it on our podcast today. From not speaking to his mother for years, to forming a beautiful and meaningful relationship with her, to moving in with his parents and caring for them for years… And then a traumatic brain injury…. This is an episode you do not want to miss. Abo…
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Canada is in dire need of a national caregiving strategy. And on today’s episode, we welcome James Janeiro, director of policy and government relations at the Canadian Centre for Caregiving Excellence (CCCE), a program of the Azrieli Foundation, to discuss what he and the CCCE are tirelessly working on to make this dream a reality. If you have ever…
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In today’s episode, caregiver @debbieelkins , shares her story caring for her husband Chuck with frontotemporal degeneration (FTD), and discusses how @theaftd supported her during both her caregiving journey, and provided her a sense of purpose through volunteer and advocacy. AFTD’s director of support and education, Esther Kane, also joins us on t…
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This is not commonly provided education so do not worry if this is all new or confusing! Most people are confused about powers of attorney, advanced directives and wills and why they can be extremely important/ what they can help with. In today’s episode, Stephanie discusses her perspectives on having a power of attorney document and what she has s…
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This is a common scenario- perhaps when there was an initial diagnosis, people showed up and offered support and over time they stopped coming as often or at all. Or maybe even at the time of diagnosis people did not visit. Whatever the case may be, if you are finding that no one visits, this episode is for you. Stephanie breaks down the most commo…
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If you have ever faced navigating the healthcare system through a dementia diagnosis, you know the difficulties that can be faced. A confusing path to navigate, difficulties receiving diagnoses, often not knowing what comes next and staying up-to-date and confident in the way forward. In today’s episode, we are pleased to welcome Dr. Saskia Sivanan…
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Caring for someone can add complexity and conflict in a romantic relationship. Whether your partner disagrees with your decisions and beliefs regarding caregiving or whether they feel you are not present for them the way you once were, this is for any caregiver experiencing changes in a romantic relationship. Barry Jacobs and his wife Julie Mayer a…
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What leads to anger and resentment in caregiving and is there anything you can do to help prevent or mitigate these very intense, and sometimes overpowering, emotions? Today Stephanie talks about what can commonly trigger feelings of anger and resentment in caregiving and provides some realistic strategies to help you through these emotions while c…
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Do you care for multiple family members or friends? Do you feel like you are not doing all you ultimately ‘should be’ doing given the limitations of caring for multiple people (plus potentially working and other responsibilities)? In today’s episode, Stephanie discusses this element of guilt and what happens & what you can do about being pulled in …
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After being thrust into the world of caregiving and caring for her mom with frontotemporal dementia (FTD), Katie Prentiss saw the need to share the caregiver experience with others, both those who could relate or those who did not understand and could learn. With her upcoming feature film, Wake up Maggie, Katie has made it her mission to bring care…
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In today’s episode, Stephanie speaks to Susanne White (Caregiver Warrior) about the one thing that brought her tremendous guilt for many years after the passing of her parents: transferring them to a facility after promising she would keep them at home. Susanne discusses the situation that led to this change in her caregiving path, and how she now …
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Have you ever had your caregiving or involvement as a caregiver questioned? This can STING. You have spent so much time and energy providing care and suddenly someone is questioning what you have done or how you have done it. Or maybe you have finally implemented boundaries in your caregiving and people are pushing back and commenting on you and yo…
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Welcome back to Caregiver’s Compass! We cannot believe we are already on season 5 and we have some incredible guests coming your way. In this episode Stephanie introduces this season and briefly discusses her mom’s recent passing after many years of caregiving. Visit us on our website to see all that we offer for caregiver support: www.compassionin…
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We are back and covering the most listened-to episode of season 4! Here is a recap: 5) Episode 105: What exactly is ‘Caregiver Burnout’? 4) Episode 95: Yes, eating disorders can very much be related to caregiving- with Kyla Fox 3) Episode 93: ‘My parent has poor health habits but refuses any of my support or suggestions for change’ 2) Episode 94: S…
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Palliative care: a term we often hear in our communities and in the healthcare system. But do we actually know what the term palliative care means for us and the people we care for? In today’s enlightening episode, palliative care physician, Dr. Samantha Winemaker, talks to Stephanie about this very important topic in addition to concepts surroundi…
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Lynn Posluns dedicates her life to women’s brain health, education and research for prevention and improvement that you can make in your life right now. In today’s episode, Lynn provides insightful and valuable information on brain health and talks about her ‘why’ for founding the WBHI. She additionally goes into detail about the many ways WBHI is …
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Are you caregiving and working at the same time? This very real and very common situation is also very hidden and not talked about enough… But when you take the stress of home and everything you have to balance with the person you care for ON TOP of a career and working, the stress and overwhelm can be above and beyond what you may feel is manageab…
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The nursing home transition can be very very hard, not only for the person who is moving to the residence, but for the caregiver too (in a big way). In today’s episode, Stephanie talks about this transition, the emotions behind nursing home transitions for caregivers and some helpful strategies that can help along the way. We want your feedback. Le…
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There are over 4 million caregivers in Ontario, yet the Ontario Caregiver Organization (OCO), a government funded organization aimed to support this wide variety of caregivers, is still relatively new. In today’s episode, OCO CEO, Amy Coupal joins Stephanie on the podcast to talk about who she is behind her vocation, her caregiving experiences and …
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Nicole Dauz imagined an idyllic future for her family of 4 after giving birth to her baby daughter. She soon realized that her vision of what would be looked very different in reality. In today’s episode, Nicole takes us through her journey caregiving for her kids, learning about navigating the system and care for a child with autism and a rare gen…
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The first, second, third…. times we experience a holiday or an event since changes or the loss of someone we love can be so hard. These moments and the anticipation of them can be so full of loss and grief and memories of what once was. In today’s episode, Stephanie talks about these moments, what they can feel like and what we can start to do to p…
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As an only child, for many years Stephanie thought that having a sibling by her side would really help in the caregiving process. But after working with caregivers for many years, she soon realized that this is not always the case. In today’s episode, Stephanie walks listeners through some scenarios when sibling conflict was more prevalent than sup…
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Nicole Petrie is not a person who is easily describable with words. Using her passion for FTD advocacy and surpassing numerous obstacles and limits in her way, she achieved an outstanding career in modeling, featured in some of the largest publications and on the largest platforms worldwide. In today’s episode, Nicole talks about her journey caring…
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When Katrina Prescott left her commercial production role in New York City and returned to British Columbia as she was faced with the realities of her aging grandmother. Little did she know, almost immediately following her grandmother’s passing, she would become a full on solo caregiver for her mother with FTD. In today’s episode, Katrina takes yo…
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As people, we have thousands and thousands of thoughts each and every day. But do you truly recognize your thoughts and are you aware of the thoughts you are having? How are your thoughts impacting you and your daily life as a caregiver? In this episode, Jessica and Stephanie talk about the importance of noticing our thoughts and how this practice …
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The driver’s license and cognitive or physical impairment. Something that, unless you’ve experienced it, you can never fully understand. The battle and the ethics and the nuances to exploring safety vs. autonomy and taking the path of least resistance. What in the world do we do when we are faced with the reality that it may be time to confront the…
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We hear about this term, caregiver burnout, so often. But what exactly is ‘burnout’ and how do we get there? What can we do to try and prevent or mitigate burnout? In today’s episode, Stephanie takes it back to basics to talk about this commonly used term and what it means. We want your feedback. Let us know how you liked today’s episode! Rate, rev…
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Caitlin Melvin’s life changed forever in 2021 when her 3 week old baby Scottie passed away. Having to continue caring for her young son in the face of grief, Caitlin learned how to navigate a situation she never thought she would face. In today’s episode, Caitlin talks about feeling substantial pain and having to continue on while growing her famil…
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Patti LaFleur (known as misspatticake on social media) has become a well-known figure in the caregiving space. After leaving her teaching job of many years, she dedicated her life to caring for her father and her mother Linda, diagnosed with dementia. Documenting her journey daily, Patti and Linda were an inspiration and a real view on the happines…
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Mary Lou Falcone lived a life of sophistication and excitement as a prominent figure in the classical music space, her husband a well-known artist. Using music throughout her life helped as a means of expressing herself and proved to be paramount when her husband was diagnosed with Lewy body dementia- at a time in her life that was shocking and une…
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Do you ever feel completely removed, turned off or differently in general about your partner who you care for? Do you notice that you no longer want to engage in intimacy with your partner because of the changes in your relationship and the dynamic as a result of your caregiving? In today’s episode, Stephanie touches upon the topic of sex as a care…
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For 43 years André Picard has been at the forefront of health journalism and health reporting for The Globe and Mail. In today’s episode, André takes a deep dive into the reality of our healthcare system and its impact on caregivers and the people they care for. André compares and contrasts the Canadian system in relation to systems in other nation…
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Debbie Compton and her husband cared for 3 family members at the same time. It was during this balance that she recognized exceptionally innovative ways to navigate presenting difficulties and stressors. She has since adapted these innovations and techniques for other caregivers to help them through their journeys. Debbie is a positive and truly in…
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In today’s episode, Rajiv Mehta talks about his non profit organization, Atlas of Caregiving, and his revolutionary mapping tool the Atlas CareMap which has been taught to and used by groups around the world. Rajiv explores how the Atlas CareMap tool can truly impact the lives of caregivers by helping them gain a fuller awareness of their own selve…
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You work so hard to organize and plan respite care so that you can get that long awaited and very needed break, but your expectations and hopes fall short of what you were hoping for, and suddenly you find yourself frustrated, angry and even more depleted. In episode 97 of Caregiver’s Compass, Stephanie talks about expectations and realities of res…
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Nikki Nurse learned what burnout in caregiving can look like when she broke 2 of her limbs while caring for her mother. It was at that time that she realized the true importance of incorporating self-care and working to minimize and prevent burnout as an essential part of caregiving. In today’s episode, Nikki shares her story of caregiving and cont…
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Did you know that eating disorders, at their core, have very little to do with how you look? In this insightful episode, social worker and therapist, Kyla Fox , identifies what an eating disorder is, how it can present in one’s life and how it can be related to and triggered by caregiving. If you or someone you know is experiencing an eating disord…
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Caregivers are aware there are significant gaps in our healthcare system, yet some of the answers to these gaps are found in supporting and providing education to the healthcare workers on the front lines. It was not until recently that Dr. Jasneet Parmar and her team sought to change the landscape of caregivers in healthcare and began to create an…
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So you have identified what needs to change when it comes to your parent’s care or habits, or you have recognized the risks in their current lifestyle choices and want to ensure they stay safe and healthy. But whenever you approach them to talk about this, they are either entirely resistant, or refuse to talk about this. Or maybe they are open to e…
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We all know about the caregiver and the intense care they can provide around the clock. But when it comes to caring for the caregiver themselves, what might they need? How do we support and care for the caregiver who is doing it all? Should you pull back and leave them alone in all this and give them space to come to you or should you show up at th…
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There were so many incredible episodes this season and today Stephanie recaps the most listened to episodes of season 3. This entire season we have also highlighted quotes from our guests and these will be available on one beautiful free PDF the week of January 8th! To download all of these that you can print or keep with you, visit our website (ww…
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1 in 4 in Canada are presently caregivers and this number is expected to increase to 1 in 2 in the coming years. Yet our healthcare system is not equipped to support the family caregiver or the private caregiver in a way that prevents collapse. A national healthcare strategy is needed. Enter the CCCE, spearheaded by director Liv Mendelsohn, this or…
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In today’s episode, the incredible Rev Katie Norris talks about her experiences caring for her mom with dementia with her son Jeffrey, and how this shaped her passion for entering a career in caregiving support. Katie discusses the very unique Montessori approach to dementia care and her successful membership and coaching program for caregivers. Ab…
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In this episode, Rosanne Corcoran, podcast host, speaker and previous caregiver of her mom with dementia, details her journey in the sandwich caregiver role, caring for her mom and children for 12 years. She specifically talks about her siblings who did not actively step forward to care for her mom during a time when she was an intensive and primar…
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Although I truly do not think that anything I am doing is ‘more busy’ than the next person (especially if you are a caregiver!), I am sometimes asked what my personal care routine is and how I balance and wear so many hats. So here you go for something a little different! And you will see very quickly that I am anything but perfect in this. Enjoy! …
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This topic hits hard. Being a caregiver can already be so isolating and difficult and as caregivers, we rely on others to come forward, show up, and support us when we need it the most. In this episode, Stephanie talks about what we can do when people we have been connected to stop showing up for us and our loved ones and explores possible options …
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In this episode, Dr. Naomi Saperia opens up about her experience caring for her daughter with a life limiting illness from birth to age 5, at a time when she was also working as a psychologist in the healthcare system herself. Naomi is vulnerable and personable in this very special episode. About Naomi: Dr. Naomi Gryfe Saperia is a Clinical and Hea…
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In today’s episode, Kelly Polci, registered social worker and psychotherapist, shares her personal experiences with mom guilt parenting her 3 children, balancing a hospital job and a private therapy practice. The different techniques and resources she employs with her clients facing deep parenting and caregiving guilt are also explored. Find Kelly …
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In today’s episode, Stephanie explores 3 common cases she has seen as an inpatient social worker in the hospital system and looks at how these scenarios end up directly impacting the mental health and capacity of family caregivers and those they care for. Suggestions for systems change and advocacy are noted throughout the episode. If you have ever…
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