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SCI Care: What Really Matters

International Spinal Cord Society (ISCoS)

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A podcast series brought to you by the International Spinal Cord Society (ISCoS). With each episode, we will speak with experts from all over the world to discuss various aspects of spinal cord injury including etiology, prevention and care, providing valuable insights regarding the most up to date information for those providing care for the spinal cord injured. Collaboration is the key and at the heart of what ISCoS does. The podcast series will be an extension of ISCoS, philosophy to make ...
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Send us a text Key points: 1) The incidence and prevalence of spinal cord injury are rising due to an aging population, increased falls with incomplete cervical injuries and the impact of nontraumatic spinal cord injury. 2) With this increased incidence of traumatic and nontraumatic SCI, there is a growing need for Spinal Cord Injury Medicine speci…
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Parenting can be both a beautiful adventure and a demanding test. For those living with multiple sclerosis, the joys of raising children often come with added challenges—fatigue, changes in routine, and questions about how MS may affect family life. Despite these obstacles, many parents with MS find that their journey brings deeper meaning, resilie…
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Send us a text The International Spinal Cord Injury Survey (InSCI) found that sleep problems rank among the top six most common and debilitating health issues for people with SCI — and are the second most likely to go untreated. While rehabilitation centres routinely manage issues like pain, spasticity, and bladder, bowel, and sexual dysfunction, s…
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Stem cells have the extraordinary ability to transform into different types of cells and renew themselves—offering new hope in the treatment of multiple sclerosis. One of the most advanced approaches—autologous hematopoietic stem cell transplantation (AHSCT)—involves collecting a patient’s own bone marrow stem cells, using chemotherapy to wipe out …
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Send us a text Key points: Key sensory afferent pathways from the urinary bladder to the spinal cord often remain intact in spinal cord injuries above the level of the conus medullaris. b) The urinary bladder wall urothelial cells, sensory nerves, interstitial cells, smooth muscle cells and the chemo/mechanosensors in the urethral paraneurons or “b…
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Most people living with multiple sclerosis explore complementary or alternative medicine (CAM) as part of their care. Complementary therapies—such as supplements, special diets, or mind-body practices—are used alongside disease-modifying treatments (DMTs), while alternative therapies are chosen instead of them. In this episode, we dive into commonl…
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Send us a text Dr. Michael Fehlings - Professor of Neurosurgery, Robert Campeau Family Foundation-Dr. CH Tator Chair in Brain and Spinal Cord Research, Vice Chairman Research), Co-Director Spine Program, Department of Surgery, University of Toronto and Editor in Chief of Spinal Cord. Dr Carlotte Kiekens - Head of the Physical and Rehabilitation Med…
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Living with multiple sclerosis brings unique challenges to brain health, but there are powerful steps you can take to support and protect your mind. Exercise not only improves endurance and reduces fatigue, but also helps rewire brain networks to promote resilience. Restorative sleep is essential, as it helps clear inflammation in the brain—so addr…
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Send us a text In this episode, Dr François Theron and Dr Federico Montero preview the upcoming 4th ISCoS International Regional Symposia, to be held on 18–19 July 2025 at the Rebouças Convention Center, São Paulo, Brazil. They share what makes this year’s symposia exceptional — from the diversity of its global speaker faculty to the urgent clinica…
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Send us a text Dr. Michael Fehlings - Professor of Neurosurgery, Robert Campeau Family Foundation-Dr. CH Tator Chair in Brain and Spinal Cord Research, Vice Chairman Research), Co-Director Spine Program, Department of Surgery, University of Toronto and Editor in Chief of Spinal Cord. Prof. Ashley Craig - Professor at Kolling Institute, Faculty of M…
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Send us a text Traumatic SCI is a relatively common occurrence in rural areas of low income countries. However, rehabilitation services in these areas are either unavailable or inaccessible by the majority. Psychosocial services are scarce and hardly tailored towards a diagnosis such as traumatic SCI. Left with no option, healthcare professionals s…
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Send us a text ISCoS OT and PT SIGs SCI Pre Workshop Day “Implementation of WHO:s Rehab 2030, Package of Interventions” How do we implement available research into interventions in our daily work? Speaker details: Guillermo Gomez, Physiotherapist from Buenos Aires, Argentina and Johanna Wangdell OT, PhD. Department of Occupational therapy and Physi…
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Figuring out if your multiple sclerosis is changing from the relapsing remitting to the secondary progressive stage can be murky. Signs of progression are discussed like slower walking and worsening memory. The underlying reasons for progression are revealed including nervous system injury, remyelination failure, chronic inflammation and aging. Pra…
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Send us a text The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dys…
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Send us a text The International Spinal Cord Society and Wellspect present a transformative discussion on changing care perspectives for individuals with spinal cord injuries, featuring leading medical experts Dr Charalampos Konstantinidis from the National Rehabilitation Centre and Dr Christina-Anastasia Rapidi from the General Hospital of Athens.…
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Send us a text In this episode, host Rima Kamal (Wellspect) explores the complexities of caring for children with spina bifida with Dr Fahad Alyami, Head of the Saudi Paediatric Urology Group and Associate Professor at King Faisal Specialty Hospital and Research Centre in Riyadh. The discussion delves into the critical aspects of paediatric care fo…
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Send us a text In this episode, released to coincide with World Spina Bifida Day, host Anders Tennby (Wellspect) explores the challenges and opportunities in improving life quality for those with spina bifida. Joined by experts Hanna Gabrielsson from Sweden and Pierre Mertens from Belgium, the discussion delves into the complexities of this congeni…
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Facing the first symptoms and a new multiple sclerosis diagnosis can be terrifying, leaving you with a flood of questions about your future. How do you navigate your career, relationships, and whether to start a family? The uncertainty can be overwhelming, but you don’t have to go it alone. Support from loved ones and connections with others living…
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In this era of highly effective treatments, early intervention for multiple sclerosis can be life changing. However, the wide range of initial symptoms often leads to many people being undiagnosed or misdiagnosed, leaving them without the proper care for years. In this podcast episode, we'll discuss the early signs of MS and the key tests, such as …
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The spinal cord serves as the main communication highway between the brain and body. Did you know that 80% of people with multiple sclerosis have spinal cord lesions on MRI? These lesions can disrupt specific neural pathways, leading to common MS symptoms like numbness, weakness, impaired coordination, balance issues, bladder problems, constipation…
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Send us a text As anticipation builds for the 63rd Annual Meeting of the International Spinal Cord Society, Professor Micheal Fehlings shares his excitement with Dr Stolwijk-Swuste, a Rehabilitation specialist and Associate Professor at De Hoogstraat Revalidatie. Our hosts invite the spinal cord community to this unique event, located in a charming…
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Send us a text The Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver, in addition to a number of webinars and podcasts, educat…
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Send us a text Welcome to the future of Spinal Cord. In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord. Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal insights an…
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Send us a text Managing bladder and bowel health is a critical, yet often overlooked aspect of patient care, especially for those with spinal cord injuries (SCI). In a recent podcast episode host, Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia is joined by Josefin Oja, a nurse and urotherapist at the spinal cord i…
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Awareness of the more uncommon multiple sclerosis symptoms can lead to an earlier diagnosis and appropriate treatment. For instance, experiencing electrical shock sensations when bending the neck forward, known as Lhermitte’s sign, may indicate an attack on the cervical spinal cord. Likewise, excruciating bolts of pain across either side of the fac…
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Send us a text In this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation at Harvar…
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Prepare to be intrigued by the groundbreaking intersection of artificial intelligence (AI) and multiple sclerosis care! By combing through extensive databases, including genetic information and real patient records, AI can forecast with remarkable accuracy the likelihood of MS onset. In the near future, AI could even serve as a guiding light for cl…
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Send us a text This webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening. This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break the taboo …
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Living with multiple sclerosis isn't just about managing the condition itself, but often involves navigating a myriad of additional health concerns known as comorbidities. Individuals with MS face a higher risk of experiencing new relapses when dealing with comorbidities like high cholesterol or depression. Furthermore, autoimmune diseases such as …
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Sex hormones, such as estrogens and testosterone, affect each individual's journey living with multiple sclerosis. While both genders face equal MS risk before puberty and after menopause, women experience up to three times higher risk during their reproductive years. Pregnancy generally brings less relapses, potentially attributed to high estriol …
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Send us a text This episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy. Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives after sp…
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In a paradigm-shifting discovery, researchers uncovered that B cells, not T cells, wield significant influence on orchestrating neurological damage in MS. Join UCSF Professor Dr. Stephen Hauser as he shares the remarkable odyssey from hurdles to triumphs of developing B cell monoclonal antibody treatment for multiple sclerosis. Disease impact, safe…
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Christine Ha, an award-winning blind chef and restauranteur, shares her experience grappling with neuromyelitis optica spectrum disorder (NMOSD). Facing relapses with the inability to walk and feed herself that challenged her independence, she leaned on the support from family and friends. As she lost her sight due to optic neuritis in both eyes, M…
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Send us a text In this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction. They discuss physical health alongside social health and lifestyle factors that need to be considered, …
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Send us a text In this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference. The opinions of our host and guests are their own; ISCoS does not…
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Send us a text In this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS. Kathy and Julian reveal the…
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Send us a text In this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation. They also discuss the challenges and strategies of involving t…
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Send us a text In this episode, Christine Hendry, CEO of the Spinal Research Institute, chats with two standout grant recipients for ISCoS 2023, Jacob Schoffl and Kiera Tranter to discuss their research. Jacob discusses research on the effects of spinal cord injury on autonomic and psychosocial health. Meanwhile, Kiera, a physiotherapist shares her…
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Send us a text In this bonus episode, Eric Weertz and Geraldine Jacquemin discuss the work of the ISCOS Disaster Committee and the unique difficulties faced in conflict settings that they support, including developing the ISCoS SCI toolkit. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given pr…
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Send us a text In this episode, Spinal Research Institute CEO, Kristine Hendry interviews grant awardee Dr. Haleluya Moshi from Tanzania. Dr Moshi discusses his research on traumatic spinal cord injury in rural areas. Listen as he shares his experience at ISCoS 2023. The opinions of our host and guests are their own; ISCoS does not endorse any indi…
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Send us a text In this episode, Dr Samford Wong, Chair of the newly formed nutrition special interest group, is joined by fellow group members Sharon Lee, Firas Sarhan and Hanne Bjorg Slettahjell as they discuss the plans and developments for this SIG. There will also be a Nutrition SIG workshop to be held in ISCoS 2024, more details to come. The o…
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Send us a text In this bonus episode, Kristine Hendry, CEO of The Spinal Research Institute, interviews Robert Buren, a researcher studying at the University of British Columbia, Canada and SRI grant awardee, on his research highlighting the effectiveness of cognitive behavioural therapy in managing neuropathic pain and attending benefits of ISCoS …
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Send us a text In this episode, Candice Care-Unger is a renowned psychosexual therapist and specialist social worker from Sydney. Candice shares her insights on attending the pre-conference psychosocial day. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can foll…
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Send us a text In this bonus episode, Beth Collins, a clinical lead at Wellspect Healthcare, interviews colleague and friend Sallyanne Haigh on her recent surgery experience in a non-spinal setting. They discuss the significant gaps in SCI care and the lack of training and knowledge within these settings. Sallyanne shares that despite the successfu…
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Send us a text In this bonus episode, we talk about a new federally funded research project that involves ISCoS members Professors Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig. They are working on an international comparative study of rehabilitation length of stay for people living with spinal cord injuries. What's the ultimate balance…
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Send us a text Claire Lomas MBE welcomed over 900 participants to the recent 62nd ISCoS meeting in Edinburgh. She shared her moving story from her life before a spinal cord injury to the difficulties she faced immediately after to the triumphs she enjoys since she grieved the life she lost and accepted the life she now has, ultimately changing her …
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Send us a text In this bonus episode, we caught up with Mohit Arora, Senior Research Fellow and Senior Lecturer at the University of Sydney talking with student and colleague PhD student Jacob Shoffl at the Psychosocial pre-conference day on the 8th Oct during ISCoS 2023. They discuss their biggest takeaways of the day and why they are ISCoS member…
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Wherever you are on your multiple sclerosis journey, there are many reasons to be optimistic about the future of mobility. Our experts, both holding doctorates in physical therapy, offer invaluable guidance on enhancing your walking abilities through targeted exercise and specialized therapy. Learn how to reduce the risk of falls, alleviate spastic…
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Send us a text Welcome to SCI Care: What really Matters, Edinburgh conversations. This is a series of discussions recorded live during the #ISCoS2023 meeting. Our guests include Debbie Green, the Chair of the Nurse Special Interest Group, Tracey Tattam, a renowned nurse educator, Veronika Geng from Germany, and Letitia Graves from Houston share val…
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Send us a text In this episode, Dr Ali Jamous talks to Claire Lomas MBE taking us through Claire's remarkable journey from a devastating accident to finding a new purpose in life. Claire shares her experiences from before her accident and the difficult early years of recovering from her injury and when hope seemed lost. She will discuss the little …
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