This podcast is dedicated to raising awareness and sharing the voices of people living with rare disorders in New Zealand. Around one in seventeen New Zealanders are affected by a rare condition. For many, finding answers and support can take years. Here, we speak with individuals, families, and experts to help build greater understanding, connection, and support for the rare disorder community. Thank you for listening and for being part of the Rare Aware journey. For more information, visit ...
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Rare Disorders Podcasts
Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.
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The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
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Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passionate nonprofit leaders talking about their highs and lows fighting for their communities. And laug ...
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Nutricia’s Caring for Rare explores what life is like with a rare metabolic disorder – from difficulties at diagnosis to adapting to condition management to thriving in everyday joys. Episodes feature personal experiences with rare inborn errors of metabolism like phenylketonuria (PKU). These stories may not be representative of all rare metabolic disorders, and this podcast in no way replaces the guidance and supervision of metabolic healthcare professionals. Guests on Caring for Rare are c ...
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A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Forget choosing between 'self-help' and 'wellness' podcasts. If you are looking for self-improvement motivations or health tips, to thrive physically AND mentally—without drowning in complexity—you're home. The Tattler Square: Motivation & Wellness Podcast offers energetic, science-backed insights to help fuel your personal growth. Your mind and body aren't separate—we tackle them as one system. Each episode combines mindset shifts and resilience-building habits with practical tips on preven ...
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The CHI Podcasts are produced by the Cambridge Healthtech Institute and offer in-depth interviews with research and business leaders from many facets of biotechnology.
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In each episode of Medical Malpractice Insights: Learning from Lawsuits, we dive into real-life medical malpractice lawsuits—examining what happened, the decisions that led to poor patient outcomes, and the legal and ethical consequences. Then, we bring in experts from the field to break down what could have been done differently to prevent the lawsuit from happening in the first place. Because one poor patient outcome is one too many. Let’s learn from past mistakes—so we never make the same ...
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We are three students at the Georgia Institute of Technology: Megen Wittling, Ann Johnson, and Jessie Morris. After taking a course called Health, Genes, and Society by Dr. Greg Gibson, we wanted to address some of these issues discussed in the course - personalized medicine and the field of quantified self. As our world enters a future with increased technology and information, we found it important to delve into the implications behind it and have created podcasts on several topics as a re ...
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Unlock the power of radical accountability with Dr. Chloe! Dive deep into groundbreaking discussions on how our personal health intertwines with the well-being of our planet. Discover actionable tips to fortify your home's health and make meaningful strides for both yourself and the global community. Join us on this transformative journey, where every episode empowers you to elevate your life and champion a healthier Earth.
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A resource for psychiatrists and other medical or behavioral health professionals interested in exploring the neuroscientific basis of psychiatric disorders, psychopharmacology, neuromodulation, and other psychiatric interventions, as well as discussions of pseudoscience, Bayesian reasoning, ethics, the history of psychiatry, and human psychology in general. This podcast is not medical advice. It strives to be science communication. Dr. O'Leary is a skeptical thinker who often questions what ...
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The Science Show gives Australians unique insights into the latest scientific research and debate, from the physics of cricket to prime ministerial biorhythms.
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Interviews and Discussions With Fascinating People Who are Creating A Better Tomorrow For All Of Us - Host - Ira S. Pastor
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A Couple of Multiples: The Reality of Living with Dissociative Identity Disorder
Drew & Garden System
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There’s never a dull moment for hosts, Drew and Garden System, who are a couple that have both been diagnosed with Dissociative Identity Disorder. While they are navigating their healing journey, they continue to manage full time careers, raise four teenagers and a house full of pets. Not only do they aim to speak to people who have lived experience with DID and their supporters, but also therapists and anyone who wants to learn more. The podcast talks about Dissociative Identity Disorder in ...
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DNA Dialogues: Conversations in Genetic Counseling Research
Journal of Genetic Counseling (Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today’s Kira Dineen)
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In DNA Dialogues we dive into the intricate world of genetic counseling research. Join us as we peel back the layers of groundbreaking articles from the Journal of Genetic Counseling, bringing you exclusive discussions with the authors themselves. Each episode sparks a vibrant exchange, exploring the latest discoveries, ethical dilemmas, and technological advances that are shaping the future of medical genetics. From navigating complex testing decisions to building trust with diverse communi ...
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A podcast about neuro-ophthalmology: tips and tricks for neurologists, ophthalmologists and other physicians.
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Fathers mentoring fathers of kids with special needs - presented by the Special Fathers Network. Host David Hirsch interviews some amazing fathers of kids with special needs.
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Lab Notes: Why aurora season isn't over yet
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Astrophotographers have had another great month, with the aurora australis lighting up night skies as far north as southern Queensland. And while you might've heard that the best of this bunch of auroras is behind us, don't put your camera away just yet. There's good reason to think the southern lights will illuminate the sky well into 2026. It all…
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Dr. Ritu Saluja-Sharma, MD - Head Heart Hands LLC - Root Cause Wellness & Weight Loss For Adults And Children
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Send us a text Dr. Ritu Saluja-Sharma, MD is a double-board–certified physician in Emergency Medicine and Lifestyle Medicine, and the visionary founder of Head Heart Hands ( https://www.headhearthandsmd.com/ ), a comprehensive, holistic wellness program for individuals and organizations. Dr. Saluja-Sharma earned her M.D. from Wake Forest University…
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Richard Daly - CEO, Catalyst Pharmaceuticals - Novel Medicines For Patients With Rare Diseases
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Send us a text Richard Daly is President and Chief Executive Officer of Catalyst Pharmaceuticals ( https://catalystpharma.com/ ), a commercial-stage biopharmaceutical company focused on in-licensing, developing, and commercializing novel medicines for patients living with rare diseases. Catalyst has successfully brought three therapies to market: F…
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Dr. Carina Kern - CEO, LinkGevity - Necrosis Inhibitors To Pause The Diseases Of Aging
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Send us a text Dr. Carina Kern, Ph.D. is the CEO of LinkGevity ( https://www.linkgevity.com/ ), an AI-powered biotech company driving innovation in drug discovery for aging and resilience loss. Dr. Kern has developed a new Blueprint Theory of Aging, which takes an integrative approach to understanding aging, combining evolutionary theory, genetics,…
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Thijs Spoor - CEO, Perspective Therapeutics - Targeted Alpha Particle Therapy To Transform Cancer
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Send us a text Thijs Spoor is Chief Executive Officer at Perspective Therapeutics ( https://perspectivetherapeutics.com/ ), a clinical-stage, radiopharmaceutical company that is pioneering innovative treatments for cancers. The Company’s proprietary technology utilizes the alpha emitting isotope Pb-212 to deliver powerful radiation directly to canc…
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Rare earth minerals – we’ll need geologists to find them
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University departments of geology and geophysics are getting smaller or closing. So how will we find new mineral deposits?By Australian Broadcasting Corporation
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SFN Dad To Dad 405 - JP Klop of Alberta, Canada, A Draftsman & Father Of Two Including One With Schwachman Diamond Syndrome
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Our guest this week is John Peter (JP) Klop of Alberta, Canada who is a draftsman with JPR Industries and father of two young children including a son with Schwachman Diamond Syndrome. JP and his wife, Lianna, have married for three years and are the proud parents of two young children: Anna (1) and Isaac (2), who has Schwachman Diamond Syndrome, w…
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Neil Klompas - CEO, Augurex - Ending Diagnostic Delays In Autoimmune Conditions
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Send us a text Neil Klompas, CPA, CA is President, Chief Executive Officer, and Director of Augurex ( https://augurex.com/ ), a leading edge diagnostic company focused on developing and commercializing advanced diagnostics with the aim of improving patient outcomes and ending diagnostic delays in autoimmune conditions. Mr. Klompas has been involved…
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Ben Zimmer - CEO, Priovant Therapeutics - First-In-Class Therapies For Severe Autoimmune Disorders
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Send us a text Ben Zimmer is CEO of Priovant Therapeutics ( https://www.priovanttx.com/ ), a clinical-stage biotechnology company focused on delivering novel therapies for autoimmune diseases associated with the greatest morbidity and mortality. Priovant is developing oral brepocitinib, a potential first-in-class dual inhibitor of TYK2 and JAK1, ac…
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Evan Mathis - Co-Director, The Hemingway - ALS Through A Lens Of Humor And Humanity
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Send us a text Evan Mathis ( https://evanmathis.co/ ) is a three-time Emmy Award–winning, multi-disciplinary creative director and filmmaker whose work spans sports, entertainment, brand storytelling, and cinematic short-form content. Evan recently expanded his creative scope into deeply human, health-centered storytelling with the short film The H…
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When Nikki McIntosh’s son Miles was less than a year old, he was diagnosed with a form of the rare neuromuscular condition spinal muscular atrophy. Since then, she has needed to learn how to manage the complexities of her own life while managing Miles’ care, coordinating his providers; and navigating the medical, financial, and emotional aspects of…
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Edmund Benami - CEO, NeuraLight - Measuring Brain Health Through The Eyes
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Send us a text Edmund Benami is Co-Founder and CEO of NeuraLight ( https://neuralight.ai/ ), a pioneering health-tech company focused on applying advanced computer vision and deep-learning techniques to accelerate and improve drug development and patient monitoring in neurological diseases. NeuraLight’s mission is to develop objective and sensitive…
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Lab Notes: How are long-range weather forecasts made?
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It looks like most of Australia is in for a warmer-than-usual summer this year. That's according to the Bureau of Meteorology's long-range forecast, which was released in October. So — without a crystal ball — how do meteorologists make weather predictions so far out, how accurate are they, and how is climate change affecting them? You can binge mo…
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Les Johnson - fmr. Chief Technologist, NASA’s George C. Marshall Space Flight Center / Founder, Infinite Frontiers Consulting, LLC - Visions of Humanity's Future In Space
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Send us a text Les Johnson is a physicist, author, and space technologist ( https://www.lesjohnsonauthor.com/ ) who most recently served as the Chief Technologist at NASA’s George C. Marshall Space Flight Center. Les is also the Founder of Infinite Frontiers Consulting ( https://www.lesjohnsonauthor.com/infinite-frontiers-consulting-llc.html ), an …
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Dave Rosa - CEO, NeuroOne - The Next Frontier of Neurology - Thin Film Electrode Technologies for Stimulation, Recording, and Monitoring of Brain Activity
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Send us a text Dave Rosa is President & Chief Executive Officer of NeuroOne ( https://nmtc1.com/ ), a developmental-stage medical technology company developing high-definition, minimally invasive thin film electrodes for the diagnosis and treatment of various neurological conditions ( https://nmtc1.com/technology ). The company’s initial focus is o…
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Bragg winners for science writing, more from the Prime Minister’s Prizes for Science and water droplets used for geoengineering
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In just 75 years the Earth’s average temperature is predicted to be close to 3 degrees above pre-industrial levels. We are in the fast lane to a different world, one that will not be friendly to the current range of plants and animals, including humans. The race is on to cool our overheating planet.By Australian Broadcasting Corporation
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SFN Dad To Dad 404 - Tom Chibucos of Chicago, A Manager of Speech-Language Pathology & Audiology Services, Father Of Two Including One w ASD
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Our guest this week is Tom Chibucos of Chicago, IL, who is a Related Service Provider Manager of Speech-Language Pathology & Audiology services at Chicago Public Schools and father of two including one who is on the Autism spectrum. Tom and his wife, Michelle, have been married for 20 years and are the proud parents of two children; Sylvie (10) and…
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Changing a Treatment Landscape by De-Risking Drug Development
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Spinocerebellar ataxia is a group of inherited, heterogeneous neurodegenerative diseases affecting coordination, speech, and vision. There are currently no FDA approved therapies for the more than 50 known types of SCA, but there is a growing pipeline of therapeutic candidates. We spoke to Andrew Rosen, CEO of the National Ataxia Foundation, about…
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Dr. Julia Moore Vogel, PhD - Assistant Professor and Senior Program Director, Scripps Research - Visionary, Patient-Centric Health Research For All
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Send us a text Dr. Julia Moore Vogel, PhD, MBA is Assistant Professor and Senior Program Director at The Scripps Research Institute ( https://www.scripps.edu/science-and-medicine/translational-institute/about/people/julia-moore-vogel/ ) where she is responsible for managing a broad portfolio of patient-centric health research studies, including The…
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My child has just been diagnosed with ITP: What's Next??
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Hearing the words “your child has ITP” can feel overwhelming and leave parents with more questions than answers. In this episode of Beyond the Count, host Danielle Boyle sits down with Dr Melanie Jackson, Paediatric Haematologist at the Queensland Children’s Hospital and Medical Advisor to ITP Australia and New Zealand, to unpack what a new diagnos…
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Komeil Nasrollahi - Senior Director, Innovation & Venture Partnerships, Siemens Healthineers - Pioneering Breakthroughs In Healthcare - For Everyone, Everywhere, Sustainably
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Send us a text Komeil Nasrollahi is a seasoned innovation and business‐development leader currently serving as Senior Director of Innovation & Venture Partnerships at Siemens Healthineers ( https://www.siemens-healthineers.com/ ), where he is charged with forging strategic collaborations, identifying new venture opportunities and accelerating trans…
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Lab Notes: How breastfeeding can protect against cancer
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Thanks in part to 18th-century nuns, we now know that having children and breastfeeding reduces a mum's risk of developing breast cancer for years, even until her kid is well into primary school. Now Australian scientists have discovered how breastfeeding specifically enlists the immune system to protect against an aggressive and hard-to-treat type…
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The Prime Minister’s Prizes for Science and a dilemma over the appropriate use of artefacts from a Roman shipwreck
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Robyn Williams reports from the 2025 Prime Minister's Prizes for Science ceremony in Parliament House Canberra.By Australian Broadcasting Corporation
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SFN Dad To Dad 403 - Swapna Sasidharan Of Schaumburg, IL Mother of 2 Including One With POGZ & Founder Of The Cure POGZ Disorders Foundation
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Our guest this week is Swapna Sasidharan, of Schaumburg, IL, a Vice President of Technology at APCO Holdings, mother of two children, including one with POGZ, and founder of the Cure POGZ Disorders Foundation. Swapna and her husband, Sandeep, have been married for 17 years and are the proud parents of two children: daughter Sloka (12) and son Ved (…
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When The Flu Changes Everything - Shari and Bill Hall’s Story of Hope and Recovery
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Send us a text Shari and Bill Hall ( https://familiesfightingflu.org/family-story/the-hall-family/ ) are a really remarkable couple whose story shines a light on just how far-reaching the effects of influenza can be — not only for the person who gets sick, but for the loved ones who care for them. What began as an ordinary illness became a life-cha…
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Transforming Real-World Patient Data into Breakthroughs
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A recent report from the health research network and real-world data platform TriNetX argues that by aggregating electronic health records, billing claims, and registry data across hundreds of healthcare sites makes it possible to study rare diseases more efficiently. Doing so could enable access to enough patient data to conduct meaningful researc…
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Dr. Adnan Masood, Ph.D. - Chief AI Architect, UST - AI, Quantum Computing And Future Digital Innovations
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Send us a text Dr. Adnan Masood, Ph.D. ( https://medium.com/@adnanmasood ) is Chief AI Architect at UST ( https://www.ust.com/ ), the giant global digital transformation solutions company. Dr. Masood brings over two decades of leadership in artificial intelligence, machine learning, and large-scale system architecture, bridging cutting-edge academi…
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Lab Notes: How your brain chooses your next snack
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It's mid-afternoon and time for a treat! Do you choose a healthy piece of fruit, or do you head straight for the chocolate? It turns out that well before we consciously decide what we're going to eat, our brain has already weighed up our choices — and in a fraction of a second. Now a new study shows which food attributes are processed by our brain …
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Ariel Garten - Co-Founder, MUSE by InterAxon - Non-Invasive Neurotechnology To Advance Human Health
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Send us a text Ariel Garten is a neuroscientist, innovator, and entrepreneur whose driving purpose is to empower and help others overcome mental obstacles in order to live healthy, happy lives and reach their maximum potential, by harnessing real-time brain data to improve focus, relaxation, and meditation. Ariel is Co-Founder of InteraXon, the mak…
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The history of life on Earth may be very different to what we think
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We’ve built a picture of the evolution of biodiversity based on a few accessible fossils. But the real story may be very different.By Australian Broadcasting Corporation
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SFN Dad To Dad 402 - David Apple of San Francisco, CA, Founder & CEO Of Shark Tooth Bio & Father Of Two Including One With CMT1A
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Our guest this week is David Apple of San Francisco, CA, a serial entrepreneur, founder and CEO of Shark Tooth Bio, and father of two, including a son with Charcot-Marie-Tooth Disease. David and his wife, Cristina, have married for seven years and are the proud parents of two young children: Zoe (3) and Ari (5) who was diagnosed with Charcot-Marie-…
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Dr. Fred Grossman - President and Chief Medical Officer, Coya Therapeutics - Multi-Modality Treg Therapies For Neurodegenerative Diseases
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Send us a text Dr. Fred Grossman, D.O., FAPA is President and Chief Medical Officer of Coya Therapeutics ( https://coyatherapeutics.com/ ), a clinical-stage company focused on developing multi-modality, Regulatory T Cell (Treg) therapies for neurodegenerative diseases. Coya has already developed strong proof of concept data in Amyotrophic Lateral S…
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#21- From Specialty Clinics to Family Medicine: Rethinking Access to Genetics
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The case for integrating genetic counselors into primary care:A paradigm shift for our profession Natasha Berman (she/her) MA, MS, MPH, CGC is a clinical genetic counselor at the UPMC Department of Family Medicine who works within the primary care precision medicine clinic. She provides direct patient care to patients for a variety of indications. …
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Taking Aim at Huntington’s Disease and Other Repeat Expansion Disorders
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Huntington’s disease is a rare, inherited neurodegenerative disorder caused by a type of genetic mutation known as a trinucleotide repeat expansion, which leads to the production of a toxic protein that causes progressive brain cell loss. Vico Therapeutics is developing an experimental antisense oligonucleotide to treat the condition. Because the t…
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Death in Jail 12 Hours After Discharge For "Abdominal Pain"
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In this episode of Medical Manners, we share the story of a woman who came to the emergency department for abdominal pain. She was under the influence, declined care, and left—only to be found dead 12 hours later in a jail cell. This case led to a lawsuit, but more importantly, it raises crucial questions about how we care for our most vulnerable p…
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Douglas Leech - CEO, Ascension Recovery Services - Fully Integrated Substance Use Disorder Treatment Centers
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Send us a text Douglas Leech is Founder and CEO of Ascension Recovery Services ( https://www.ascensionrs.com/ ), an organization focused on developing and managing comprehensive, fully integrated behavioral health systems, treating Substance Use Disorders and co-occurring mental illness across the full continuum of care. Mr. Leech has a B.S. degree…
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Lab Notes: Times we thought we found aliens
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We have a mysterious visitor to our little patch of the cosmos this week: A comet called 3I/ATLAS. This icy, rocky ball is only the third interstellar object we've discovered zooming past our Sun. There are scientists who think the comet may be alien technology sent from another solar system to invade Earth, but space agencies poured cold water on …
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Yael Elish - CEO/Founder, StuffThatWorks - OpenStuff / Patient-Powered AI Health Search
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Send us a text Yael Elish is CEO and Founder of StuffThatWorks (https://www.stuffthatworks.health/open-stuff), a company that offers an online platform where people suffering from chronic diseases can share information to learn which treatments work best for their specific condition, based on the experience of their peers combined with a smart, AI-…
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Paint additive boosts plant growth in greenhouses
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An additive in paint converts ultraviolet light into red light allowing plants to grow more producing higher yields, a boon for greenhouse agriculture.By Australian Broadcasting Corporation
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SFN Dad To Dad 401 - Greg Corey of Highland Park, IL, A Wealth Manager & Father Of Three Including A Son With Down Syndrome
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Our guest this week is Greg Corey of Highland Park, IL a wealth manager at Ameriprise Financial Services and father of three children including a son with Down Syndrome. Greg and his wife, Carly, have been married for 10 years and are the proud parents of three children: Ashton (4), Frankie (6) and Presley (8), who has Mosaic Down syndrome, which w…
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Joel Krikston - Managing Director Venture Investments, Merck Global Health Innovation Fund / Co-Founder, MSD Idea Studios - Investments To Improve Patients' Lives
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Send us a text Joel Krikston is a seasoned executive with extensive experience in venture investments and strategic innovation within the healthcare sector. Joel currently serves as Managing Director Venture Investments Merck Global Health Innovation Fund ( https://www.merckghifund.com/?profile=joel-krikston ) and Co-Founder of MSD Idea Studios ( h…
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Dr. Théau Peronnin, Ph.D. - CEO, Alice & Bob - Fault-Tolerant Quantum Computing
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Send us a text Dr. Théau Peronnin, Ph.D. is a physicist by training and a visionary leader in the field of quantum computing. After earning his master’s degree from École Polytechnique in Paris and completing his PhD in quantum physics at École Normale Supérieure de Lyon, Dr. Peronnin embarked on a mission to tackle one of the greatest technologica…
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After Philippa Ward’s five-month-old son, Thomas, suffered infantile spasms, he was soon diagnosed with tuberous sclerosis complex—a rare genetic disorder that causes noncancerous tumors to form on various organs, including the brain. Thomas experiences near-daily seizures, cannot communicate verbally, and, due to delayed motor skills, often requir…
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Building Global Connections: The story of the International ITP Alliance
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In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance. Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, sha…
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Xaque Gruber - Director / Writer, Sallywood - Rewriting the Script on Age and Art
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Send us a text Xaque Gruber ( https://www.xaquegruber.com/ ) is an award-winning filmmaker, writer and artist. Xaque is the writer and director of the hit independent film Sallywood ( https://sallywoodmovie.com/ ) — a touching, funny and deeply insightful look at the career of actress Sally Kirkland ( https://www.sallykirkland.com/ ), as well as cu…
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In this episode of Rare Aware, we explore the power of advocacy — and just how far we’ve come in New Zealand. We’re joined by James McGoram, Chair of the Board for Rare Disorders NZ, who shares his personal journey from receiving a rare diagnosis to becoming a passionate advocate for change. James opens up about the challenges of navigating the hea…
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Lab Notes: The extinct ape-like human relative that made tools
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Around 1.5 million years ago, in what's now Kenya, a human-like figure walked across the savannah. He was probably quite short by our standards, no taller than Danny DeVito. But unlike Danny DeVito, this ancient figure was not human. He was a long-extinct relative of ours called Paranthropus boisei. And now his fossilised hand bones are giving us n…
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Karen Mayer Cunningham - Founder & CEO, Special Education Academy - Transforming Special Education
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Send us a text Karen Mayer Cunningham is a nationally recognized leader in special education advocacy and the Founder and CEO of the Special Education Academy ( https://specialeducationacademy.com/ ), an organization dedicated to empowering parents to navigate the complex world of special education with clarity, confidence, and purpose. After confr…
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Edward You - EHY Consulting LLC - fmr. Supervisory Special Agent, FBI’s Weapons of Mass Destruction Directorate - Safeguarding Science, Innovation And The Bioeconomy
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Send us a text Edward You is recently coming off an amazing career at the U.S. Federal Bureau of Investigation (FBI) where most recently he served in roles as Supervisory Special Agent, National Counterintelligence Task Force, Counterintelligence Division, as well as a Supervisory Special Agent in the FBI’s Weapons of Mass Destruction Directorate. …
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Jonathan Porritt’ recent book, Love, Anger and Betrayal charts the lives of young British climate campaigners. Meanwhile in Australia under-16s are about to be banned from using social media.By Australian Broadcasting Corporation
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