Best Mecfs Podcasts (2025)

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46: "Do I have to earn my worth?" 21:46

Play Pause

6h ago21:46

21:46

This week, Rachel joins me as we discuss very honestly how my frustration at not being able to do things makes me question my self-worth. We also discuss whether Florence Nightingale might have had ME/CFS. www.lifewithlongcovid.co.uk To receive weekly posts and support my work, consider becoming a free or paid subscriber. Get full access to Life Wi…

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45: "You should be working" 14:34

10d ago14:34

14:34

It's impossible to live up to others’ expectations when you have a chronic illness. In this episode, I reflect on the negative influence of social media and the feeling that I should be contributing to the workplace. Visit www.lifewithlongcovid.co.uk to subscribe My book is available on Amazon. Get full access to Life With Long Covid at www.lifewit…

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191 - The Viral Aftermath: A Web of Healing with Dr. Galland 57:57

12d ago57:57

57:57

This episode welcomes Dr. Leo Galland, Internal Medicine Specialist with over 40 years of experience working with complex conditions, which now includes Long Covid and of course ME/CFS. In this episode: Comprehensive exploration of Long Covid's complex nature Introduction to the "Web of Long Covid" concept Insights into post-viral illness from a 40…

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44: "Don't let your illness define your life" 10:09

14d ago10:09

10:09

In this update, Paul shares openly and honestly about how long covid affects his mental health, particularly during a crash. www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribeBy Paul Ian Clarke

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190 - Dr. Google Gets an Upgrade: Can AI have a role in patient empowerment? 52:48

19d ago52:48

52:48

Technology offers unprecedented access to health information, but navigating it effectively requires understanding which tools serve our recovery and when to step away from screens. Jess from TurnTo shares insights on using AI and technology tools to support recovery from conditions like Long Covid and ME/CFS. • Different technology platforms have …

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43: "Why are you still talking about Covid?" 21:00

24d ago21:00

21:00

I have now had the symptoms of Long Covid for more than three years. In this episode, I reflect on the journey so far and how the world seems to have moved on without us. To subscribe, please click here. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribeBy Paul Ian Clarke and Rachel Clarke

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189 - When Your Brain Keeps Telling You to Buy Salami - Natalie's Recovery Story 53:26

26d ago53:26

53:26

Natalie Gould shares her journey from severe Long Covid to full recovery, revealing how nervous system regulation transformed not only her Long Covid symptoms but also pre-existing chronic conditions like psoriatic arthritis and migraines. • Life before illness included working as a CFO and living on a small farm • Initial Covid infection in July 2…

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42 "You Have Changed" 21:28

1M ago21:28

21:28

What does it feel like to have not only your job, but your self-identity stripped away? In this episode, Paul reflects on how much his life has changed since contracting Covid in 2021 and how the journey is far from over. www.lifewithlongcovid.co.uk Book Available on Amazon now, please click here. Get full access to Life With Long Covid at www.life…

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188 - Moving Through the Liminal Space Between Illness and Wellness 25:26

1M ago25:26

25:26

Recovery from Long Covid & ME/CFS involves exploring ways to move forward when you're nearly there or making progress but unsure how to reach the next level. Finding your own path is essential as there isn't a one-size-fits-all approach to healing. • Jackie's recovery had 3 phases: denial & pushing through, education & strategy-building, and gentle…

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41 "You might get a speeding ticket in that!" 27:07

1M ago27:07

27:07

My scooter and wheelchairs have given me some of my freedom back and I am incredibly grateful for them. However, they also come with a lot of stress and sometimes I get fed up with having to use them. In this episode, I reflect on buying and using my wheeled friends and the shock of how much they cost. Please consider visiting and subscribing to my…

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187 - Energy Crisis: How Your Cell's Power Plants are Hijacked 54:30

1M ago54:30

54:30

Dr. Robert Groysman returns to discuss the mechanisms behind Long Covid, focusing on mitochondrial dysfunction and its role in symptoms like fatigue and brain fog. • Dr. Groysman identifies six major mechanisms in Long Covid: dysautonomia, mitochondrial dysfunction, gut dysbiosis, endothelial dysfunction, mast cell activation syndrome, and hormone …

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40: "You just need a good nights sleep" 19:59

2M ago19:59

19:59

What is it like to suffer from chronic fatigue? In this episode I try to describe living with this aspect of long covid and peoples reactions to it. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribeBy Paul Ian Clarke and Rachel Clarke

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186 - From Bedbound to Thriving: How Jamie Overcame Long Covid 44:16

2M ago44:16

44:16

**Content warning for discussion of suicidal thoughts from around 8:45 for 2 minutes** Jamie shares her powerful journey from being bedbound with Long Covid to full recovery, offering hope and practical insights into the healing process. • Initially experiencing tachycardia, PoTS, extreme fatigue, and sensitivities to light and sound • Deterioratin…

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185 - Dr Kendal Stewart - When Your Killer T-Cells Need a Vacation 50:31

2M ago50:31

50:31

Dr. Kendal Stewart shares his unique perspective on Long Covid through his background as a surgeon with training in functional medicine, neurosurgery, and cell biology. His approach examines the body as an integrated system rather than separating it into isolated specialties. • Complex conditions like Long Covid require a holistic view of the body …

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39: "Did you have a nice holiday?" 21:59

2M ago21:59

21:59

After a summer break, the podcast is back! This week, I reflect on the experience of going on holiday and the challenge of changing routines with a chronic illness. If you find this podcast useful, please do consider following and reviewing. There is a lot more to 'Life with Long Covid', visit our page here to subscribe and receive all my updates. …

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Remembering What Real Life Is Like 6:30

2M ago6:30

6:30

My Jtube broke finally and I have to go to the hospital tomorrow and I’m feeling stressed...It is so hard seeing the real world and really feeling it and then coming back to my room and closing all the doors…The spontaneity that healthy people show so clearly is at once a refreshing reminder of what life is supposed to be like, but also a shocking …

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A Moment of Silence for Severe ME/CFS Patients 5:27

3M ago5:27

5:27

To all those living in silence and darkness. Today we take a moment in silence and darkness to honor your courage, your bravery, your resilience, your strength, and we acknowledge your profound suffering, agony and loss… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print Store…

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184 - Brain Health Breakthrough with Dr Henry Mahncke & Dr Gitendra Uswatte 1:00:52

3M ago1:00:52

1:00:52

Dr. Henry Mahncke and Dr. Gitendra Uswatte share groundbreaking research on using brain plasticity principles to treat Long Covid brain fog through a comprehensive approach combining cognitive processing speed training, real-world skill practice, and personalized cognitive rehabilitation strategies. • Neuroplasticity is the brain's ability to chang…

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Living In Unknowns 4:58

3M ago4:58

4:58

That is ME/CFS. We live with world champion symptoms with no idea what is causing them or what will happen with those symptoms or what our future holds. We hold onto hope but are often crushed by this harsh, unrelenting illness… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print Store…

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183 - Strength in Vulnerability: Theresa's Recovery Story 52:44

3M ago52:44

52:44

In this episode, Jackie is joined by Theresa Aristarco who shares her Long Covid recovery story. Theresa's journey from an active software engineer to battling long-haul COVID Navigating complex medical challenges and invisible symptoms The critical role of mental health in recovery Overcoming vestibular issues and physical limitations Finding hope…

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Too Many Of Us Are Dying 7:45

3M ago7:45

7:45

I see people protesting the rights of many marginalized groups and important issues. I see people up in arms over injustices faced by people all around the world…BUT WE ARE DYING. Not to mention suffering endlessly from symptoms that are often only comparable to what any other human being experiences right before death. For neverending decades. And…

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182 - Finding Rest in a World That Never Stops - Karen's Recovery Story 46:32

3M ago46:32

46:32

Karen Wright from Sage Health and Wellness shares her powerful recovery story from Long COVID, offering hope and practical wisdom for those still struggling with chronic illness. • Karen was a busy NHS physiotherapist involved in developing Long COVID services before becoming ill herself in autumn 2021 • Her severe case left her unable to speak at …

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181 - Dr David Putrino - The Multifaceted Approach to Long Covid Recovery 1:01:02

4M ago1:01:02

1:01:02

Dr. David Putrino shares his expertise on Long Covid, approaching it through the lens of comprehensive rehabilitation and personalized medicine rather than one-size-fits-all treatments. He explains how identifying the specific drivers behind common symptoms leads to more effective intervention strategies. • Rehabilitation medicine encompasses far m…

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Dear America, 8:46

4M ago8:46

8:46

The "Big Beautiful Bill" that Trump signed into law on the 4th of July will take away insurance from an estimated 17 million people, mostly from people on Medicaid. I want to tell you how losing Medicaid would impact me directly.…If I lost Medicaid, my parents would have to sell our house to pay for medical expenses that keep me alive…What are we d…

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4th of July Disgrace 4:03

4M ago4:03

4:03

This 4th of July, if I could fly an American flag, it would be flown upside down…Today should be a disgrace to all Americans…Today President Trump signs into law a bill that will take away healthcare from 17 million Americans…most of them on Medicaid... ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ …

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180 - Jules Rogers - The Art of Saying No: Why Boundaries Matter in Healing 42:45

4M ago42:45

42:45

Jules Rogers returns to the podcast to discuss the essential role of boundaries in chronic illness recovery and everyday wellbeing, sharing how learning to protect our energy can be transformative. • Boundaries are conscious protections we put in place to maintain our energy and ensure we're not giving beyond what feels right • Different types incl…

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179 - Dr David Clarke - Decoding Your Body's Secret Language 58:06

4M ago58:06

58:06

Dr. David Clarke shares his 40-year journey as a medical consultant specializing in neuroplastic conditions—real physical symptoms generated by the brain in response to stress, trauma, or emotional challenges. He explains how these conditions affect 20% of adults and 40% of doctor visits, yet remain frequently misdiagnosed despite being highly trea…

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178 - Rebuilding Safety: from Couch to Mountains - Alisha's Recovery Story 46:24

5M ago46:24

46:24

Alishia shares her powerful Long Covid recovery journey—from a highly active farm worker to being couch-bound for over a year, and ultimately back to health through finding safety in her body. • Worked long weeks in manual farm labour & enjoyed being active before catching Covid in 2020 • Experienced extreme anxiety, heart palpitations, shortness o…

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Growing Up With ME/CFS 4:34

5M ago4:34

4:34

I’ve done most of my "growing up" here in bed. And lately I’ve realized that "growing up" hasn’t been about figuring out the whole universe, but a process of acceptance - accepting that I don’t have it figured out and most importantly accepting myself and loving myself without "knowing it all"…And this is part of one of the saddest things about liv…

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177 - The Stool with Four Legs: Rachel's Long Covid Recovery 48:17

5M ago48:17

48:17

Rachel Rock shares her powerful Long Covid recovery story, detailing her journey from initial illness to healing through understanding and supporting her autonomic nervous system. • Contracted COVID in May 2022 & developed long COVID whilst attempting to train for a cycling event • Discovered she was experiencing Dysautonomia & significant blood pr…

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Dear Healthy People 3:17

5M ago3:17

3:17

I feel like I am in a position where I have to be against the whole world because the whole world is against me…But I don't enjoy that, I didn't choose that. I was put in this position. I love this world. I want to be a part of this world…Not excised like a broken part, tossed aside and marginalized and painted in all kinds of colors that do not de…

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38: "I should be doing more" 14:23

5M ago14:23

14:23

Sometimes I get stuck in the past and think that I am the Paul who used to have lots of energy and had lists of things to do everyday. Living with a Chronic illness has meant a period of adjustment, which I am still struggling with. You can purchase my book here You can subscribe to the community here Get full access to Life With Long Covid at www.…

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This Ain't No F*ing Flu 6:14

5M ago6:14

6:14

I'm sick of ME/CFS being compared to a never-ending flu. This ain’t no f*ing flu. I feel like every system in my body is broken and in pieces. I am mentally and physically 1% as alive as I used to be…But even if you have a very severe flu and are bed bound, the never-ending part is a huge deal… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS…

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176 - When Your Body Becomes a Stranger: One Man's Path Back to Health 47:58

5M ago47:58

47:58

Karl Robottom shares his remarkable journey from Long Covid symptoms to running marathons, offering hope and practical insights for those still struggling with the condition. • Former PE teacher whose active lifestyle was completely derailed by Long Covid despite having only mild initial Covid symptoms • Experienced breathlessness, severe fatigue, …

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E27 - Can’t Cope with Chronic Illness? One Mental Shift Ignited My Resilience 15:07

5M ago15:07

15:07

In this video Dan shares the one mental shift that ignited more resilience after years of suffering and frustration. If you’re searching for practical ways to cope, rebuild psychological strength and improve daily life with chronic illness like ME/CFS, Fibromyalgia, PVFS (long covid), POTS, MCS or related illness, this could be key for you. SHOWNOT…

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37: "What do you do all day?" 16:28

6M ago16:28

16:28

The covid pandemic might be a thing of the past for most people, but to some, it has changed their lives forever. In this episode, I reflect on having to stop doing some of the things I loved and coming to terms with a new life, with long covid. You can purchase my book here. Please subscribe to become a member of the community. Get full access to …

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175 - Jackie dives into Cold Water Immersion 34:58

6M ago34:58

34:58

Cold water immersion - friend or foe? One of the things that helped Jackie the most in her recovery - cold water immersion - and one of the most commonly asked questions from listeners. But it doesn't work well for everyone. In this episode, Jackie dives into the science behind the power of cold water, as well as discussing her own expertise and he…

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Unseen Courage 1:54

6M ago1:54

1:54

Starting a new day with ME/CFS, with full awareness of the suffering that lies ahead and the helplessness of a reality with no effective treatments, no suport from the world around you, and no concrete knowledge of a cure; This is one of the most profound acts of courage... ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate t…

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This Is ME/CFS 8:41

6M ago8:41

8:41

This is ME/CFS. Unrelenting. Unforgiving. Never ending. You fight and fight for crumbs of life that most muggles throw away. Crumbs that are not even good enough for the dogs. And then ME/CFS launches a new assault and you are back in the trench you were in years ago. No mercy. No solace. A forever war that keeps taking and taking and taking… ✏️ My…

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174 - Uroš Čimžar - From Crisis to Rebirth: One Man's Journey Through Long Covid 55:13

6M ago55:13

55:13

Uroš shares his inspiring recovery journey from long COVID, revealing how addressing hidden emotional patterns and learning self-compassion transformed not only his health but his entire approach to life. • Prior to illness, Uroš appeared to be living his best life following a 15-month sabbatical, with a fitness routine and new career mentoring ent…

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36: "I cannot face recording a podcast episode" 15:29

6M ago15:29

15:29

Chronic Illness can get you down. In this episode, I talk about why I have not uploaded an episode lately and how my illness affects my mental health. It's a candid, raw and honest exploration of how it affects me. Please do consider subscribing here You can purchase my book here Get full access to Life With Long Covid at www.lifewithlongcovid.co.u…

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173 - Diana Driscoll - Healing PoTS and Dysautonomia: From Patient to Pioneer 49:22

6M ago49:22

49:22

Dr. Diana Driscoll shares her remarkable journey from bedridden POTS patient to pioneering medical researcher developing treatments for autonomic dysfunction. Motivated by her own ten-year battle with post-viral dysautonomia and her children's similar struggles, she created patented solutions when conventional medicine offered no answers. • POTS is…

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Chocolate Fix! 4:46

6M ago4:46

4:46

Chocolate, no joke, makes me feel better than all of my huge box of supplements combined. That is, in the short term. In other words, the meds and supplements I’m taking are I’m *sure* helping me more than chocolate in a more long term sense, but chocolate… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research…

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172 - Jo Thomas - Overcoming the Curse of "Recovery Perfection" 50:06

6M ago50:06

50:06

Recovery doesn't have to be perfect to be effective, and sometimes the very quest for perfect recovery can keep us stuck in our healing journey. Jo Thomas shares her personal experience with overcoming POTS and chronic fatigue, highlighting how shifting mindsets and letting go of perfectionism accelerated her healing process. • Jo's recovery journe…

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35: "Let's go out for the day" 20:54

7M ago20:54

20:54

This week I reflect on a visit to London on the train and rant about assessments! Please support the podcast if you can by subscribing here.My book is available here. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribeBy Paul Ian Clarke and Rachel Clarke

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171 - Light Switch Recovery: Aaron's Story of When Reinfection Leads to Healing 50:53

7M ago50:53

50:53

Aaron West shares his remarkable two-and-a-half-year journey with Long COVID and his unexpected path to recovery. From being a highly athletic cyclist who once rode across South Carolina in a single day to becoming bedbound with debilitating symptoms, his story demonstrates that recovery is possible—sometimes in the most unexpected ways. • Previous…

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34: "It's just a routine appointment." 24:39

7M ago24:39

24:39

This week, I reflect on a recent post and a trip to our local hospital for a blood test. Rachel joins me again, and we read through some of the responses to the post and how, by sharing experiences, we can feel less alone. Subscribe to the show here to join the community and to receive posts and episodes. You can purchase Paul's book here. Get full…

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170 - Amy Mooney - "Flipping the Iceberg" - What if everything you thought about recovery is underwater? 51:05

7M ago51:05

51:05

Amy Mooney shares her unique perspective as both an occupational therapist and caregiver to her daughter with ME-CFS, revealing essential insights about rest, recovery, and meaningful approaches to chronic illness management. • 25 years of occupational therapy experience transformed by caring for her daughter with ME-CFS for the past decade • Learn…

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Turning The Tables: The Partners Perspective 27:56

7M ago27:56

27:56

In this episode, I turn the tables on my wife, Rachel, and ask her about what it's like to live with someone who has Long Covid. It's a candid and honest conversation that will benefit anyone navigating chronic illness or supporting someone dealing with it. You can subscribe to receive more articles and episodes here. You can buy the book here. Get…

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Cutting 99.7% Out Of Your Life 1:54

7M ago1:54

1:54

I often say this to healthy muggles: Close your eyes and picture all of the things you do in your life…Now imagine removing 99.7% of those things… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print StoreBy Whitney Dafoe