Best Frontotemporal Podcasts (2025)

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Shiv Saidha on recent updates in the diagnosis of multiple sclerosis 29:36

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3h ago29:36

29:36

Morgane Boillot chats with Professor Shiv Saidha (Johns Hopkins University, USA) about recent developments in diagnosing multiple sclerosis, and specifically on the use of paraclinical tests of the optic nerve in this context. Read the full article: https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(25)00270-4/fulltext?dgcid=buzzsprout…

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Emergency Contact NFC Keychains: Interview with Dawna Duke 26:02

19h ago26:02

26:02

The Dementia By Day Team interviewed Dawna Duke about the keychains she's creating, which are programmed to share emergency contact information with the tap of your phone. As easily as you set up and use the "tap to pay" function on your smart phone, you can program Near-Field Communication (NFC) chips with important information like an emergency c…

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Identifying and Addressing Changes in Decision-Making Ability with Capacity Testing 37:04

4h ago37:04

37:04

As an individual develops dementia, they may need support in many areas of their lives. One of these areas is decision-making, particularly regarding health care decisions, but how can someone or their loved one determine if they need support with decision-making? To answer these questions, Dr. Victoria Williams joins to discuss capacity and capaci…

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Creator of Dementia-Friendly Online “Shopping” Experience, Sori Han 28:17

5d ago28:17

28:17

Rachael and Natalie of the Dementia By Day Team had a really interesting conversation with Sori Han, the inventor of and mastermind behind Shopazon! Shopazon is a unique website for people living with dementia in which they can experience "shopping" without spending any money. In this episode, Sori shares other dementia-friendly websites and apps h…

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Mindfulness and Meditation Practices for Living with MCI 26:30

14d ago26:30

26:30

Receiving a diagnosis of mild cognitive impairment (MCI) or dementia can be an emotional and challenging experience. How can meditative practices support those living with MCI? Buddhist chaplain Sharon Lukert wrote her book, Until My Memory Fails Me, with the goal of sharing mindfulness and spiritual practices that have helped her since being diagn…

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Mini Podcast: Behind the Scenes of Our Short Film 3:22

1M ago3:22

3:22

We are exactly one month away from the one-year anniversary of our short film's release! In this mini podcast episode, Rachael Wonderlin talks about the inspiration behind Dementia By Day's short film, "Embracing Their Reality." She talks about why the Dementia By Day team decided to make this as narrative as possible, instead of a straightforward …

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Brain Stories - Episode 21: Professor Adrian Isaacs on Frontotemporal Dementia 38:49

1M ago38:49

38:49

Selina and Caswell chat with Professor Adrian Isaacs from the UK Dementia Research Institute at UCL to talk Frontotemporal Dementia — from how fruit flies are helping, to the role of DNA repeat expansions in disease, and why lipids might protect the brain. Presenters: Caswell Barry and Selina Wray Guests: Professor Adrian Isaacs Producer: Patrick R…

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Michael Rafii on Down syndrome-related Alzheimer’s disease 22:41

1M ago22:41

22:41

People with Down syndrome face a high risk of developing Alzheimer’s disease, which is the leading cause of death in this population over the age of 35. In this episode, Morgane Boillot (Senior Editor) is joined by Professor Michael Rafii to explore the intersection of Down syndrome and Alzheimer’s disease. They discuss the latest research into dis…

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Under the FTLD Umbrella: A Deep Dive into Frontotemporal Dementia 38:30

28d ago38:30

38:30

Frontotemporal lobar degeneration (FTLD) is one of the most common causes of dementia in individuals under the age of 60, yet it remains lesser known and often misunderstood. From the early symptoms to the challenges of diagnosis and treatment, FTLD presents unique hurdles for clinicians, researchers and families alike. Joining the podcast to discu…

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Mini Podcast: Is this Study Real? 3:13

1M ago3:13

3:13

When you come across an article about a so-called study that claims X thing "cures" or "causes" dementia, ask yourself one critical question before researching any further: Is this claim measurable? In order to be scientifically valid, studies need to consistently prove that they have measured the same results over and over. A small sample set of c…

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Helpful or Harmful? New Study Looks at the Impact of Technology Use on Cognition 44:41

1M ago44:41

44:41

Smartphones and technology are ubiquitous in nearly every aspect of our lives, but is technology helping or hurting us when it comes to memory and cognition? Dr. Jared Benge, neuropsychologist and associate professor from the University of Texas at Austin, joins the podcast to discuss his research into how technology and smartphone use impacts the …

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Mini Podcast: "Sensory" Activities in Dementia Care 3:06

2M ago3:06

3:06

We aren't big fans of "sensory" items/boxes/walls in dementia care. Even though the intention behind these programming items is great, they are often difficult to introduce and residents aren't sure how to interact with them. Listen to find out what we suggest to replace these types of activities!By Rachael Wonderlin

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Amit Bar-Or on fenebrutinib for relapsing multiple sclerosis 8:40

2M ago8:40

8:40

In this episode, host Laura Hart chats with Professor Amit Bar-Or (University of Pennsylvania) about the potential of the BTK inhibitor fenebrutinib in treating relapsing multiple sclerosis, highlighting future challenges in MS research. Read the full article: https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(25)00174-7/fulltext?dgcid…

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Facing the Facts: Looking at the Alzheimer’s Association’s 2025 Annual Report 19:55

2M ago19:55

19:55

What is the current impact of Alzheimer’s disease and related dementias on the United States? To best understand its significance in 2025, we can turn to the Alzheimer’s Association’s Alzheimer’s Disease Facts and Figures report, a comprehensive resource that highlights the effect of Alzheimer’s on individuals, care partners, health care profession…

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Mini Podcast: Activities for People with Low Vision 3:01

2M ago3:01

3:01

These are activities that Rachael Wonderlin, founder and CEO of Dementia By Day, recommends for anyone living with dementia, but they are particularly well-suited to people with low vision. Rachael encourages you to get creative engaging your other senses and offers a couple of concrete ideas to get you started in this niche of activities.…

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Paying the Price: The Cost of Dementia in 2025 32:53

2M ago32:53

32:53

How much does it cost to live with dementia in the United States? The hidden costs are often overlooked, but these numbers and trends are important to understand in order to inform the public and effectively allocate resources. Dr. Julie Zissimopoulos leads The United States Cost of Dementia Project, where they recently published a report on the to…

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Mini Podcast: Dementia Caregiving Cost/Benefits Analysis 3:30

3M ago3:30

3:30

This is what you’re going to do when you’re deciding to make— or not make— a change to your loved one’s care. Should you make this change, especially if it's drastic? The answer is ultimately, “It depends.” It depends on the person and how much their quality of life would improve (benefit) for the inconvenience, or even trauma, it would cause (cost…

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Marte-Helene Bjørk on reproductive risks in people with epilepsy 20:40

3M ago20:40

20:40

Sarah Passey is joined by Dr Marte-Helene Bjørk (Haukeland University Hospital, Norway) to discuss the latest evidence and practical guidance on managing reproductive risks in people with epilepsy, including medication safety, pregnancy planning, and global challenges in care. Read the full article: https://www.thelancet.com/journals/laneur/article…

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Harnessing Habits: The Power of Routines on the Brain 44:38

3M ago44:38

44:38

Everyone has habits. Some are beneficial for brain health while others are less so, but it turns out that habits as simple as brushing your teeth at the same time each morning can help your brain adapt to changes from cognitive impairment. Dr. Gordon Giles joins the podcast to dive into the fascinating world of neurological rehabilitation and how b…

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Mini Podcast: You're Still the Caregiver 3:12

3M ago3:12

3:12

Even if you move your loved one to a dementia care community, you are still their caregiver, the person who is responsible for them. Though the responsibilities may shift, the "buck stops with you," as the expression goes. Let's talk about it.By Rachael Wonderlin

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Aging in Place: Addressing the Challenges of Living Alone with Dementia 36:39

4M ago36:39

36:39

It’s estimated that 4.3 million older adults across the United States live alone with cognitive impairment. How do these individuals navigate the challenges and concerns that arise due to these memory and thinking changes, and what recommendations are there to support them as they continue living independently? Dr. Elena Portacolone joins Dementia …

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Mini Podcast: Should You Get a Sitter for Your Loved One with Dementia? 3:35

4M ago3:35

3:35

What is a "sitter" and does your loved one living with dementia need one? Let's talk about it. In this episode, Rachael breaks down considerations you should make when weighing whether or not to hire a sitter for your loved one living with dementia. She discusses options that are worth trying first before resorting to hiring a sitter, and cases in …

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Family Ties: How Family History Affects Alzheimer’s Risk 36:52

4M ago36:52

36:52

How important is one’s family history when determining Alzheimer’s risk? Returning guests Drs. Jessica Langbaum and Sterling Johnson discuss the latest research on family history and genetic risk factors and share their perspectives on the topic, specifically focusing on the role of the APOE gene as a risk factor. Guests: Sterling Johnson, PhD, lea…

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Geoff Manley on a new classification system for traumatic brain injury 25:34

4M ago25:34

25:34

Assistant Editor Sam Griffiths is joined by Professor Geoff Manley (UCSF, CA, USA) to discuss his new NIH-NINDS classification of acute TBI, the limitations of traditional classifications, how the new framework was developed, and what it means for the future of TBI research and patient care. Read the full article: https://www.thelancet.com/journals…

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Interview with Janice Goldberg from Matter of Mind film 31:05

4M ago31:05

31:05

After 45 happy years together, Janice noticed that her life partner Sue had begun to repeat herself. "What do you want for dinner?" she'd ask. Then, a few minutes later, she'd say again, "What do you want for dinner?" As it turns out, Sue has Alzheimer's. Janice and Sue were recently featured in Matter of Mind, a PBS documentary that follows three …

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Explaining Dementia to Kids Through the Power of Children’s Books 44:17

5M ago44:17

44:17

Having a relative or loved one receive a dementia diagnosis can be challenging for families, especially for families with children. How can parents, guardians and other adults explain these complex memory and thinking changes to children in a way they’ll understand? One possible way – children’s books. Dr. Tomás León joins the podcast to discuss hi…

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Mini Podcast: Bring a Task 3:09

5M ago3:09

3:09

Whether you live with your loved one with dementia or you visit them in a care community, your time together will probably be most enjoyable if you bring an activity with you for the two of you to do together. This is a great way for you to connect with your loved one! I suggest simple, everyday activities like folding, sorting, or games like finis…

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Training the Next Generation: How the Research Education Component Supports Early Career Researchers 28:40

5M ago28:40

28:40

The Research Education Component (REC) focuses on educating, mentoring and training the next generation of researchers at the over 30 Alzheimer’s Disease Research Centers (ADRCs) across the United States, offering a range of fellowships, educational activities and events like the annual Alzheimer’s Disease and Related Dementias (ADRD) Research Day.…

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Mini Podcast: The "Out-of-Towners" 3:06

5M ago3:06

3:06

"They seem fine!" This is the refrain of the folks we at Dementia By Day refer to as the "out-of-towners." The out-of-towners think they know best and they are very vocal about the care they believe your loved one should receive, but in reality, they are out of touch with what it's like caring for someone living with dementia. If you have out-of-to…

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Wayne Feng on stroke rehabilitation using brain stimulation and constraint-induced movement therapy 19:52

5M ago19:52

19:52

Increasing numbers of people are surviving stroke but with motor impairments that can contribute substantially to long-term disability. Transcranial direct current stimulation has shown promise in reducing motor impairment when combined with rehabilitation therapy. Sarah Passey talks to Wayne Feng (Duke University School of Medicine, Durham, NC, US…

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Talking about Tau: The Role of Tau PET Scans in Alzheimer’s Research and Care 55:33

6M ago55:33

55:33

Early detection is a top priority in the field of Alzheimer’s research, and one indicator of Alzheimer’s disease is the buildup of tau in the brain. What is tau, though? How can we detect this protein, and what can it tell us about a person’s symptoms or disease progression? Dr. Gil Rabinovici, a leader in the field of brain imaging, joins Dementia…

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Mini Podcast: The 3-Prong Approach to Moving Someone to Dementia Care 3:10

5M ago3:10

3:10

People often ask me how to break the news to their loved one living with dementia that they will be moving to a dementia care community. We NEVER want to say something like, "Mom, we are moving you to dementia care because there is something wrong with your brain," and we especially don't want to add, "remember?!" when they ask about what's going o…

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Mini Podcast: Dementia and Hospice 3:25

6M ago3:25

3:25

My #1 piece of advice when it comes to hospice: Look into it before you think it's time. Don't wait too long, because it's an invaluable resource for people living with dementia and their families. Listen to learn how someone living with dementia might qualify for hospice.By Rachael Wonderlin

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Changing the Narrative: One Man’s Journey to Alzheimer’s Diagnosis and Treatment 28:50

6M ago28:50

28:50

Receiving a diagnosis of Alzheimer’s disease or a related dementia can be a complicated experience. While some experience relief at being able to put a name to their concerns, many worry about telling loved ones or being treated differently due to the stigma surrounding the word “dementia.” Mike Zuendel joins the podcast to share his experience of …

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Marialuisa Gandolfi on the management of chronic pain in Parkinson's disease 12:43

6M ago12:43

12:43

In this podcast, linked to the April 2025 issue of The Lancet Neurology, Laura Hart (Deputy Editor) chats to Marialuisa Gandolfi (University of Verona in Italy) about advances in the classification and management of pain in Parkinson’s disease. Continue this conversation on social! Follow us today at... https://thelancet.bsky.social/ https://instag…

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Mini Podcast: Types of Care 3:40

6M ago3:40

3:40

For family caregivers of people living with dementia, the offerings of the senior living landscape can be super confusing. In this mini episode of the Dementia By Day Podcast, Rachael Wonderlin introduces some of the most common types of care offered in senior living, and explains how these designations can vary widely not only from country to coun…

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A Pathway to Wellness: The Benefits of Integrative Medicine on Brain Health 29:58

6M ago29:58

29:58

Holistic medicine, alternative medicine, complementary medicine – you may have heard these terms or seen them used online and wondered what they mean. Each term refers to the concept of integrative medicine, a comprehensive approach to healthcare that focuses on treating a person’s mind, body and spirit rather than addressing symptoms or a specific…

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Mini Podcast: Misinformation on Social Media 4:14

7M ago4:14

4:14

Back when Rachael first started posting content about caring for people with dementia, there were very few people inhabiting this same niche on the internet. Now, there are more and more cropping up every day. In this mini podcast episode, Rachael talks about the importance of double-checking the information you come across on the internet when it …

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Putting a ‘Spotlight on Care’: Caregivers Help Other Caregivers Through Podcast Series 40:10

7M ago40:10

40:10

Caring for a loved one with Alzheimer’s disease or a related dementia can be challenging, with no two journeys being the same. Who better to turn to for caregiving support, tips and advice, then, than other caregivers who have been on similar paths? Steve O’Leary and Virginia Naeve join Dementia Matters to share their different experiences caring f…

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Michael Tymianski on neuroprotection in stroke 25:17

7M ago25:17

25:17

Sarah Passey (The Lancet Neurology) is joined by Michael Tymianski (University Health Network, Toronto, Canada) to discuss an Article in the March issue reporting a meta-analysis looking at neuroprotection in stroke and what can be learnt for future research. Read the full article: https://www.thelancet.com/journals/laneur/article/PiiS1474-4422(24)…

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Mini Podcast: "Therapeutic Lying" 3:35

7M ago3:35

3:35

Nomenclature is so important. Listen to why I hate the phrases "therapeutic lying," "fiblets," and "white lies." Embracing Their Reality™️ is about doing what's true for the person living with dementia, NOT lying.By Rachael Wonderlin

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Shining Light on Younger-Onset Dementia with Lorenzo’s House 41:02

7M ago41:02

41:02

Dementia diagnoses affect families in many different ways. One of the most challenging to navigate is that of younger-onset dementia (YOD), a form of dementia that affects someone below the age of 65. This diagnosis can be particularly jarring for young families, as resources, support and research for this form of dementia are limited. When Diana C…

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Mini Podcast: Validation Theory 4:24

7M ago4:24

4:24

In this mini episode, Dementia By Day CEO Rachael Wonderlin talks about Naomi Feil's Validation Theory for communicating with people living with dementia. Validation Theory contrasts directly with Embracing Their Reality™️ because it teaches to "never lie" to someone living with dementia, and often suggests avoiding certain lines of questioning ins…

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What Now? Next Steps After Receiving an MCI Diagnosis 44:42

8M ago44:42

44:42

What exactly does a mild cognitive impairment (MCI) diagnosis mean, and what should you do after receiving one? Hearing this diagnosis from a doctor can bring up a lot of emotions and questions for individuals and family members. Jennifer McAlister joins Dementia Matters to offer advice for next steps after receiving an MCI diagnosis and share stra…

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Elizabeth Finger on oxytocin for apathy in frontotemporal dementia 18:43

8M ago18:43

18:43

In this podcast, linked to the February 2025 issue of The Lancet Neurology, Elena Becker-Barroso (Editor-in-Chief) chats to Elizabeth Finger (Western University, London, ON, Canada) about the FOXY trial of oxytocin for apathy in people with frontotemporal dementia. Read the full article: https://www.thelancet.com/journals/laneur/article/PIIS1474-44…

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Mini Podcast: What is Timeline Confusion™️? 3:16

8M ago3:16

3:16

Listen to this mini podcast episode to learn the fundamentals of Timeline Confusion™️. A common misconception about people living with dementia is that they "don't recognize" their loved ones. In reality, people living with dementia aren't living on a linear timeline. This means that if they believe they themselves are 40, they may not understand w…

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LATE, Explained 22:24

8M ago22:24

22:24

While there are many kinds of dementia, like Alzheimer’s disease and Lewy body dementia, there’s one that researchers have only recently identified. LATE, or Limbic-predominant Age-related TDP-43 Encephalopathy, is a newly-characterized type of dementia associated with abnormal clumps of a protein called TDP-43. So, what exactly do we know about LA…

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Mini Podcast: Dementia isn't all that preventable 4:41

8M ago4:41

4:41

Welcome to our Mini Podcast season! These are unedited, super short episodes we created for our Patreon audience last year. Now they're available for you to enjoy! When we spot people posting things like this, they're really taking facts out of context...and typically new to the industry or running out of good content to post! Here's why this doesn…

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‘Tis the Season: Navigating the Holidays as a Dementia Caregiver 21:28

9M ago21:28

21:28

The holidays can be a stressful time for everyone, especially those with dementia and their care partners. In preparation for this season, Dr. Alexis Eastman joins Dementia Matters for our last episode of 2024. Drs. Chin and Eastman discuss strategies for managing the potential stress of holiday traveling and gatherings, important safety considerat…

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The Lancet Neurology Editors on advances in neurology in 2024 18:01

9M ago18:01

18:01

The Lancet Neurology Editors take a look back at advances in neurology in 2024, as highlighted by experts in a series of Round-ups published in the January issue. Continue this conversation on social! Follow us today at... https://thelancet.bsky.social/ https://instagram.com/thelancetgroup https://facebook.com/thelancetmedicaljournal https://linked…