Best Frontotemporal Podcasts (2026)

1
When Dementia Comes Early: The Truth About Frontotemporal Degeneration 59:42

Play Pause

6d ago59:42

59:42

Frontotemporal Degeneration (FTD) is a lesser-known form of dementia that often affects people in their 40s and 50s, bringing profound changes in behavior, personality, and language. In this episode of Honestly Aging by Friends Life Care VigR®, we're joined by Esther Kane, Support & Education Director at The Association for Frontotemporal Degenerat…

1
EP 219: A global effort to decode frontotemporal dementia with Arabella Bouzigues of GENFI 37:53

14d ago37:53

37:53

This week on The Genetics Podcast, Patrick is joined by Dr. Arabella Bouzigues, Coordinator of the Genetic Frontotemporal Dementia Initiative (GENFI) and postdoctoral researcher. They discuss the scale and structure of GENFI as a global collaboration and what longitudinal data is revealing about genetics and biomarkers in frontotemporal dementia. S…

1
Can Cancer Cells be Turned Against Themselves? Cyriac Roeding & Dr. David Suhy, Co-Founders, Earli 24:09

1d ago24:09

24:09

This week on BioTech Nation, Moira speaks with Cyriac Roeding and Dr. David Suhy, Co-Founders of Earli, about an innovative new approach to treating solid tumor cancer. They discuss their effort to turn the cancer cells inside solid tumors into factories that produce their own cancer-fighting therapeutic.…

1
Decoding Diseases of Aging...Dr. Martin Borch Jensen and Dr. Francisco LePort, Gordian Biotechnology 25:51

8d ago25:51

25:51

This week on Biotech Nation, Dr. Martin Borch Jensen and Dr. Francisco LePort from Gordian Biotechnology share a bold new approach to fighting diseases of aging before they take hold. Instead of testing one drug at a time, their technology allows scientists to test hundreds of potential treatments at once, making drug discovery faster and more prec…

1
EP 220: Turning human brain physiology into RNA medicines with Graham Dempsey of Quiver Bioscience 43:22

7d ago43:22

43:22

This week on The Genetics Podcast, Patrick is joined by Dr. Graham Dempsey, CEO and co-founder of Quiver Bioscience. They discuss Graham’s path into neuroscience and biotech, how Quiver is building genetically validated programs in pain and neurodevelopmental disorders, and what recent advances in RNA-based therapies could mean for the future of ne…

1
When Your Immune System Overreacts...Prof. Dr. Niels Riedemann, Co-Founder & CEO, InflaRx 21:52

16d ago21:52

21:52

This week on BioTech Nation, we explore what happens when your immune system overreacts. Professor Niels Riedemann, CEO of InflaRx, explains how the body’s defense system can sometimes cause more harm than good, leading to serious conditions like rheumatoid arthritis, severe COVID-19, and lung failure. Learn how InflaRx is developing treatments to …

1
Giving and receiving care with a disability and working to shift societal caregiving assumptions and beliefs in regards to caregiving with a disability, with Elizabeth Mohler (Episode 146) 32:19

18d ago32:19

32:19

Born blind, from a very young age, Elizabeth Mohler experienced the barriers and obstacles one with a disability can face in an ableist society. With lived experience as both a care recipient and a caregiver, Elizabeth shares her insightful perspectives on care and the education and changes she feels are instrumental in supporting a culture of acce…

1
EP 218: Cardiovascular genomics and the future of preventing heart failure with Krishna Aragam of the Cleveland Clinic 48:42

19d ago48:42

48:42

This week on The Genetics Podcast, Patrick is joined by Dr. Krishna Aragam, Section Head of Cardiovascular Genomics and Precision Medicine at the Cleveland Clinic. They discuss Krishna’s early experiences in population research and how they shaped his approach to genetics, the major discoveries transforming cardiovascular genomics from monogenic to…

1
Renewed Potential: Reviving an ALS Drug...Dr. Ari Azhir, Founder & CEO, Neuvivo 17:47

22d ago17:47

17:47

This week on Biotech Nation, Dr. Ari Azhir, Founder and CEO of Neuvivo, shares the incredible journey of an ALS drug that was once abandoned, but is now making its way toward FDA approval. After two failed phase two trials, the drug was left behind until Dr. Azhir and her team discovered a crucial mistake in the trial data. Now with new insights an…

1
From Corporate to Creative: Reinventing Life After Work 37:14

20d ago37:14

37:14

In this episode of Honestly Aging by Friends Life Care VigR®, we talk with Holly Beebee, a Friends Life Care member who reinvented her life after leaving a 38-year corporate sales career. Holly shares how burnout led her to a bold leap of faith and into a joyful second chapter: creating a successful Dancin' Chairs program for older adults, performi…

1
Using personal pain, grief and insights from the loss of her mother, and later the loss of her father, as a way to support others in their mourning, grief and pain, with Barri Leiner (Episode 145) 43:53

25d ago43:53

43:53

Facing the loss of her mother in her 20s, Barri Leiner found herself experiencing the sudden shock of grief. Turning her pain and learning into purpose, Barri transformed her life and career into meaningful giving and support through The Memory Circle. In today’s episode, Barri shares the experience of losing both her parents and how she started an…

1
EP 217: Building a genomic passport for every family: Insights from tech leader and rare disease parent Lisa Gurry of GeneDx 33:51

26d ago33:51

33:51

Summary: This week on The Genetics Podcast, Patrick is joined by Lisa Gurry, Chief Business Officer of GeneDx. They discuss her path from two decades at Microsoft to leading one of the most influential genomics companies, GeneDx’s mission to deliver the fastest rare disease diagnoses, and how large-scale data, newborn screening, and AI are shaping …

1
Holidays and Dementia: Part 2 2:40

26d ago2:40

2:40

Let us help you this holiday season! You may have family members in town interacting with your loved one for the first time in a while. Maybe Mom has declined, or Dad is more forgetful, or your spouse may not be as verbal as they used to be. You've learned a lot about dementia recently, and educating your entire family on best practices in dementia…

1
Preventing Pressure Injuries: Detecting the Invisible Signs, Martin Burns, CEO Bruin Biometrics 20:22

28d ago20:22

20:22

This week on BioTech Nation, Bruin Biometrics CEO Martin Burns talks about a new diagnostic tool being used to detect and prevent potentially fatal bedsores in their earliest stages.By Moira Gunn

1
An extraordinary multi-generational caregiver for several children, including a son with complex medical needs, who has used her experiences for systemic change, advocacy and education, with Elizabeth ... 51:01

1M ago51:01

51:01

Elizabeth Marie Chambers shares her experiences as a muti-generational caregiver in today’s episode as she highlights caring for a child with complex medical needs, multiple children, and a parent. She details her breaking point in care and how she recognized the need to care for herself. She further highlights how she uses her experiences to drive…

1
Are we moving from Dr. Google to Dr. ChatGPT??? Dr. Daniel Kraft, Tech Nation Health Chief Correspondent 7:28

1M ago7:28

7:28

For years, we've all turned to Google to self-diagnose every cough, rash, and weird pain. Dr. Daniel Kraft says the shift is happening, from Dr. Google to Dr. ChatGPT.By Moira Gunn

1
Anyone Can Move: Safe Steps for Better Balance 53:44

1M ago53:44

53:44

In this episode of Honestly Aging by Friends Life Care VigR®, we explore an important part of vibrant aging: staying confident on your feet. Our guest, Judith Sachs, founder of Anyone Can Move, brings decades of experience as a dancer, movement educator, and certified instructor in Dance for Parkinson's, balance and gait work, and fall-recovery tra…

1
EP 216: Four decades of advancing Duchenne research with Jeffrey Chamberlain of University of Washington 47:03

1M ago47:03

47:03

This week on The Genetics Podcast, Patrick is joined by Dr. Jeffrey Chamberlain, Professor at the University of Washington School of Medicine, co-founder of Kinea Bio, and Director of the Muscular Dystrophy Cooperative Research Center of Seattle. They discuss the early breakthroughs that revealed the structure and function of the dystrophin gene, h…

1
Connecting the Data that Changes Medicine, Dr. Lincoln Nadauld, President & CEO, Culmination Bio 18:27

1M ago18:27

18:27

This week on Biotech Nation, Dr. Lincoln Nadauld shares how Culmination Bio is using 9 million preserved tissue samples and decades of patient data to improve how we understand and treat diseases. From discovering patterns in cancer treatments to exploring breakthroughs in heart and autoimmune diseases, this unique approach is changing medicine.…

1
The importance of friendship and community in caregiving and loss (and finding chosen family), with Jacquelyn Shapiro (Episode 143) 59:54

1M ago59:54

59:54

A very common sentiment we hear from caregivers is the loneliness and isolation felt as a result of misunderstandings between other family members or friends, the feeling that others don’t understand the caregiving perspective and feeling as though there is no one to share the day-to-day highs and lows with. In today’s episode, Stephanie invites he…

1
EP 215: Vectorized RNAi and the next frontier of gene silencing with Rachel Salzman of Armatus Bio 43:33

1M ago43:33

43:33

Summary: This week on The Genetics Podcast, Patrick is joined by Dr. Rachel Salzman, CEO of Armatus Bio. They discuss the promise of vectorized RNAi for autosomal dominant diseases, the key scientific and clinical hurdles in gene therapy, and Rachel’s lessons from two decades in the field. Show Notes: 0:00 Intro to The Genetics Podcast 01:00 Welcom…

1
Planning for the Holidays as a Dementia Caregiver 3:20

1M ago3:20

3:20

This time of year, we get lots of questions from family caregivers about how to approach the holidays with a loved one living with dementia. There are a few things you can do to minimize stress: plan ahead, talk to your family members, and make sure you have a clear understanding of your loved one's abilities at the current stage of their disease p…

1
A remarkable journey of care for multiple family members (including her spouse) as a young parent and using her experiences to shape her career and the caregiving landscape as a whole, with Katie Brandt ... 50:40

2M ago50:40

50:40

Having just started her career and life as a young mom, Katie Brandt’s entire world changed in an instant when her husband was diagnosed with FTD in his early 30s. The next several years, compounded by care for multiple family members in addition to her young son, threw her in the depths of ongoing crisis. But through her tremendous resiliency and …

1
EP 214: Innovating large-scale and sustainable genomics with Slavé Petrovski of AstraZeneca 51:19

2M ago51:19

51:19

Summary: This week on The Genetics Podcast, Patrick is joined by Slavé Petrovski, Vice President of the Center for Genomics Research at AstraZeneca. They discuss how AstraZeneca is scaling population genomics through massive biobank collaborations, developing AI models for early disease prediction, and pioneering sustainable “green” algorithms to r…

1
Caregiving in the Digital Age: How Technology Eases the Journey 46:29

2M ago46:29

46:29

In this episode of Honestly Aging by Friends Life Care VigR®, we're exploring what it really means to care for a loved one in today's world and how technology can make that journey a little lighter. We're joined by Traci Lamb, Business Development Specialist at OdessaConnect, a platform that helps older adults stay connected through the most famili…

1
Correcting Gene-based Frontotemporal Dementia, Lisa Deschamps, CEO Aviado Bio 14:41

2M ago14:41

14:41

What if we could fix the gene that causes dementia? In this episode, Aviado Bio CEO Lisa Deschamps tells us how her team is working to correct the gene driving many cases of frontotemporal dementia.By Moira Gunn

1
The episode on working caregivers, with Christa Haanstra (Episode 141) 42:22

2M ago42:22

42:22

We have heard about caregiving, we have heard about eldercare, but how often do you hear about working caregivers? This topic is JUST starting to come to the forefront, yet millions of caregivers have been balancing work and care for years and continue to on a daily basis. In today’s episode, Christa Haanstra, lead for the working caregiver initiat…

1
Mini Podcast: Understanding Embracing Their Reality™️ 3:01

2M ago3:01

3:01

Embracing Their Reality™️ is hardest to grasp for those folks who are uncomfortable in the grayer areas of life. This dementia communication framework teaches us that it's best to let go of black and white binaries when it comes to communicating with the cognitively impaired. Let's talk about it.By Rachael Wonderlin

1
EP 213: Inside the science of hearing loss and gene therapy for deafness with Ellen Reisinger of the University of Tübingen 35:29

2M ago35:29

35:29

This week on The Genetics Podcast, Patrick is joined by Dr. Ellen Reisinger, Professor and group leader at the University of Tübingen. They discuss her journey into hearing loss research, why otoferlin has become a leading target for gene therapy, and the emerging science shaping the next generation of treatments. Show Notes: 0:00 Intro to The Gene…

1
Tuning your own DNA?? Dr. Derek Jantz, Chief Scientific Officer, Tune Therapeutics 17:38

2M ago17:38

17:38

What if you could tune your DNA to fix any mistakes? Dr. Derek Jantz from Tune Therapeutics talks about tuning DNA, not just with humans, but stopping the Hepatitis B virus in its tracks.By Moira Gunn

1
We have the right to our autonomy and right to live at risk- why is it that institutions or agencies are telling us how to engage in activities of daily life? (Episode 140) 7:00

2M ago7:00

7:00

The person you care for has a daily routine or activities in their daily life they hope to continue to uphold, but yet when connected to a new home care agency or when in hospital, they are told they may have to modify or change how they approach their activities of daily life. How can these third parties tell you and the person you care for how to…

1
EP 212: A hub-and-spoke model for accelerating rare disease drug development with Ananth Sridhar and Sun-Gou Ji of BridgeBio 46:05

2M ago46:05

46:05

Summary: This week on The Genetics Podcast, Patrick is joined by BridgeBio’s Ananth Sridhar, Chief Operating Officer of Cardiorenal Programs, and Sun-Gou Ji, Vice President of Computational Genomics. They discuss the hub-and-spoke model for de-risking and accelerating rare disease drug development, the role of human genetics in target discovery, le…

1
Understanding Grief - Support, Healing, and Connection 45:22

2M ago45:22

45:22

Grief is a universal experience, yet each person's journey through it is deeply personal. In this episode of Honestly Aging by Friends Life Care VigR®, we're joined by George Salloom, a retired social worker and long-time bereavement support facilitator with over 30 years of experience. George shares insights from his decades of work in hospitals, …

1
A New Way to Treat Wounds?? Dr. Ned Swanson, Co-Founder, President & Chief Medical Officer, Polarity Bio 15:02

2M ago15:02

15:02

Imagine a world where the toughest wounds heal twice as fast, and patients get their lives back sooner than anyone thought possible. Dr. Ned Swanson, the President and Chief Medical Officer of Polarity Bio, tells us about their approach to healing serious, hard-to-treat skin wounds. In early trials, it's twice as effective as the current treatment …

1
Experiencing a Father With Frontotemporal Degeneration as a 7 Year Old Child and Fiercely Advocating for Change and Awareness, with Spencer Cline (Episode 139) 26:10

2M ago26:10

26:10

Spencer Cline was only 7 years old when his father was first diagnosed with frontotemporal degeneration (behavioural variant). From a very young age, he witnessed how profoundly this illness affected his father, mother, and entire family. Today, Spencer is a passionate advocate for FTD, dedicated to changing the narrative around the disease and sup…

1
EP 211: Building hope for inherited blindness and deafness with Justin Porcano of Save Sight Now 30:24

2M ago30:24

30:24

Summary: This week on The Genetics Podcast, Patrick is joined by Justin Porcano, co-founder and Executive Director of Save Sight Now. They discuss how his daughter’s diagnosis with Usher syndrome type 1B (USH1B) inspired the founding of Save Sight Now, the organization’s efforts to accelerate research and overcome barriers in gene therapy, and the …

1
Mini Podcast: Freebie of the Month 2:52

2M ago2:52

2:52

It's actually been a full year of Freebies of the Month now, but they're still going strong! Topics have ranged from "How Do Doctors Test for Dementia?" to Sundowning, and have covered so much in between. At the time of this recording, our Freebies of the Month were just getting started. We decided to release this episode to ensure all segments of …

1
Treating the Untreatable in Rheumatoid Arthritis! Rob Armstrong, CEO, Artax Biopharma 17:12

2M ago17:12

17:12

40% of all rheumatoid arthritis patients do not respond to any of the current drugs. Rob Armstrong, CEO of Artax Biopharma, aims to bring new hope for those patients who've been left without effective treatment options.By Moira Gunn

1
Episode 23- Jenny Lange on the gothic history of neuroscience, a Halloween special 34:34

2M ago34:34

34:34

In this special Halloween episode of Brainstories, Selina and Caswell speak with Dr Jenny Lange (UK DRI at UCL) about the gothic history of neuroscience — and how scientific experiments shaped gothic literature. Date of episode recording: 2025-10-02 Duration: 00:47:48 Language of episode: English Presenter: Steve Fleming, Selina Wray Guests: Caswel…

1
The Hidden Truths About Long-Term Care and What it will take to Create a Better Future in the Long-Term Care System with Dr. Vivian Stamatopoulos (Episode 138) 51:32

3M ago51:32

51:32

Vivian Stamatopoulos - advocate, professor, and long-time researcher in the field of caregiving and long-term care-joins the podcast to uncover the hidden truths about our long-term care system. Vivian shares what she realized during COVID about the nursing home crisis, where long-term care stands today, and the significant changes needed to improv…

1
EP 210: Live from ASHG: Breaking barriers in genomics with Heidi Rehm of the Broad Institute and Slavé Petrovski of AstraZeneca 52:54

3M ago52:54

52:54

Summary: This week on The Genetics Podcast, recorded live at ASHG 2025, Patrick is joined by Heidi Rehm, Chief Genomics Officer at MGH’s Center for Genomic Medicine and Co-director at the Broad Institute, and Slavé Petrovski, Vice President of AstraZeneca's Centre for Genomics Research. They discuss the rapid progress of large-scale genomics, the b…

1
Staying Safe in a Digital World: Tech Tips for Older Adults 53:15

3M ago53:15

53:15

In this episode of Honestly Aging by Friends Life Care VigR®, we're joined by Alan Silverblatt, a Friends Life Care member and information technology expert with decades of experience helping individuals, nonprofits, and small businesses navigate the digital world. Now retired, Alan continues to share his knowledge by teaching, consulting, and empo…

1
Treating babies with congenital heart defects... Dr. Joshua Hare, Co-Founder and Chief Scientific Officer, Longeveron 23:57

3M ago23:57

23:57

Can you imagine parents expecting a baby, going in for an ultrasound, and finding out that their baby is missing the heart's left ventricle? This week on BioTech Nation, Dr. Joshua Hare, Co-Founder and Chief Scientific Officer of Longeveron, talks about how they are testing the use of stem cells to treat babies born with a serious congenital heart …

1
Caregiving as a teenager for a mother with Parkinson’s disease and informing her career using technology to help others through caregiving experiences, with Carla Velastegui (Episode 137) 38:03

3M ago38:03

38:03

Carla Velastegui began caring for her mother with Parkinson’s disease while still in high school, experiencing both the challenges and deep insights that caregiving can bring. In this episode, Carla shares how those early experiences shaped her life, her relationships, and her future. She discusses the ups and downs of her caregiving journey and ho…

1
A New Approach to Flu Shots! Dr. Jeff Stein, President & CEO, Cidara Therapeutics 19:23

3M ago19:23

19:23

This week on BioTech Nation, Dr. Jeff Stein, President & CEO of Cidara Therapeutics, brings up promising news about a new approach to flu shots.By Moira Gunn

1
EP 209: Reinventing Fabry disease treatment with Chris Hopkins of Glafabra Therapeutics 39:20

3M ago39:20

39:20

This week on The Genetics Podcast, Patrick is joined by Chris Hopkins, CEO of Glafabra Therapeutics. They discuss how Glafabra is advancing a next-generation cell therapy for Fabry disease, the differences between gene therapy modalities, and the future of cell and gene therapy innovation. Show Notes: 0:00 Intro to The Genetics Podcast 00:59 Welcom…

1
Mini Podcast: Accusations - Part 2 3:10

3M ago3:10

3:10

Let's continue the conversation around accusations. These can feel like a trap to those of us who work so hard to Embrace The Reality of the people in our lives living with dementia. Don't fall into the trap! Instead, focus on solving the person's emotional problem by trying to figure out what is at the root of it. Rather than arguing, ask question…

1
Brain Stories Episode 22 Caswell Barry and Lucy Unwin talk about the neuroscience behind their new children’s book – Inside Your Brain 47:49

3M ago47:49

47:49

Caswell Barry and Lucy Unwin talk about the neuroscience behind their new children’s book – Inside Your Brain. Inside Your Brain takes readers on an irreverent gallop through history to uncover ten ground breaking discoveries that led to our current understanding of how the brain works. Date of episode recording: 2025-10-02 Duration: 00:47:48 Langu…

1
The Statistics Behind Caregiver Mental Health: You’re Not Alone (Episode 136) 5:22

3M ago5:22

5:22

In this episode, we dive into the numbers behind caregiver mental health, sharing Canadian statistics that reveal just how many caregivers, including those who are working caregivers, face similar challenges. While it can often feel like you’re alone in your struggles, the truth is that far more people are experiencing the same difficulties than yo…

1
EP 208: Gene therapy at a crossroads: Successes, concerns, and the path forward 42:58

3M ago42:58

42:58

Summary: This week on The Genetics Podcast, Patrick Short takes a solo deep dive into the current state of gene therapy ahead of next week’s live recording at ASHG. He explores the promise and limitations of adeno-associated virus (AAV) delivery, examples of gene therapies for neuromuscular diseases, and the challenges of balancing safety, cost, an…