Best Frontotemporal Podcasts (2025)

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Experiencing a Father With Frontotemporal Degeneration as a 7 Year Old Child and Fiercely Advocating for Change and Awareness, with Spencer Cline (Episode 139) 26:10

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7d ago26:10

26:10

Spencer Cline was only 7 years old when his father was first diagnosed with frontotemporal degeneration (behavioural variant). From a very young age, he witnessed how profoundly this illness affected his father, mother, and entire family. Today, Spencer is a passionate advocate for FTD, dedicated to changing the narrative around the disease and sup…

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Frontotemporal Dementia: From Bruce to Gary, 'FUB' Happens 37:24

15d ago37:24

37:24

Hello Alzheimer's host Karla Hult talks with Nanci Anderson, Co-Founder of Gary's FUB Team and Ambassador for the Association for Frontotemporal Degeneration. Nanci shares about her life mission to educate the greater community about FTD while also uplifting families and individuals on the FTD journey today... all in honor of her beloved husband, G…

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We have the right to our autonomy and right to live at risk- why is it that institutions or agencies are telling us how to engage in activities of daily life? (Episode 140) 7:00

5h ago7:00

7:00

The person you care for has a daily routine or activities in their daily life they hope to continue to uphold, but yet when connected to a new home care agency or when in hospital, they are told they may have to modify or change how they approach their activities of daily life. How can these third parties tell you and the person you care for how to…

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Rachael Dashiell: How Animals Can Help During the Dementia Marathon 25:31

3h ago25:31

25:31

Hello Alzheimer's host, Karla Hult, talks with Rachael Dashiell, the Community Programs Manager at the Animal Humane Society. Rachael recently launched a fabulous new program, Coffee & Companions, which brings together aging adults and animals. And that program leads Rachael and Karla into a conversation about all the cognitive and other health ben…

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Taking a Positive Approach to Dementia Care with Strategies from Teepa Snow 51:35

2d ago51:35

51:35

Caring for someone living with dementia can be both deeply meaningful and incredibly challenging. Finding effective ways to connect, communicate and provide support often requires shifting how we see and respond to changes in the brain. In honor of National Family Caregivers Month, renowned dementia care specialist Teepa Snow joins the podcast to s…

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Maren Levad: Our Youngest 'Dementia Friends' 26:55

7d ago26:55

26:55

Hello Alzheimer's host, Karla Hult, talks with Maren Levad, the Dementia Friendly Initiatives Program Manager at Trellis, the Twin Cities Metropolitan Area Agency on Aging. Maren shares about an amazing new Dementia Friends program -- one that helps younger children (kindergarten through 2nd grade) learn more about how to cope and even help during …

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Mini Podcast: Freebie of the Month 2:52

7d ago2:52

2:52

It's actually been a full year of Freebies of the Month now, but they're still going strong! Topics have ranged from "How Do Doctors Test for Dementia?" to Sundowning, and have covered so much in between. At the time of this recording, our Freebies of the Month were just getting started. We decided to release this episode to ensure all segments of …

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Episode 23- Jenny Lange on the gothic history of neuroscience, a Halloween special 34:34

9d ago34:34

34:34

In this special Halloween episode of Brainstories, Selina and Caswell speak with Dr Jenny Lange (UK DRI at UCL) about the gothic history of neuroscience — and how scientific experiments shaped gothic literature. Date of episode recording: 2025-10-02 Duration: 00:47:48 Language of episode: English Presenter: Steve Fleming, Selina Wray Guests: Caswel…

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The Hidden Truths About Long-Term Care and What it will take to Create a Better Future in the Long-Term Care System with Dr. Vivian Stamatopoulos (Episode 138) 51:32

14d ago51:32

51:32

Vivian Stamatopoulos - advocate, professor, and long-time researcher in the field of caregiving and long-term care-joins the podcast to uncover the hidden truths about our long-term care system. Vivian shares what she realized during COVID about the nursing home crisis, where long-term care stands today, and the significant changes needed to improv…

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A Guide to Grief: Strategies for Navigating Loss and Dementia 29:51

16d ago29:51

29:51

Grief is a complex topic for people with dementia, their loved ones, caregivers and doctors to navigate. Dr. Erica Srinivasan, an expert on the psychology behind grief, joins the podcast to discuss the different kinds of grief people can experience and share strategies and resources for addressing the grief associated with dementia. Guest: Erica Sr…

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Caregiving as a teenager for a mother with Parkinson’s disease and informing her career using technology to help others through caregiving experiences, with Carla Velastegui (Episode 137) 38:03

21d ago38:03

38:03

Carla Velastegui began caring for her mother with Parkinson’s disease while still in high school, experiencing both the challenges and deep insights that caregiving can bring. In this episode, Carla shares how those early experiences shaped her life, her relationships, and her future. She discusses the ups and downs of her caregiving journey and ho…

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Dr. Madeline Cross: Women & Dementia (A Perfectly-Timed Encore) 28:11

22d ago28:11

28:11

Yes! We're returning to this conversation, because we think it's THAT important AND because we want to make sure everyone is caught up on all the wonderful "Hello Alzheimer's" episodes from the last few months. So please enjoy... and please make memories and find moments this week. As always, you're not alone... ***** If you've ever wondered what's…

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Mini Podcast: Accusations - Part 2 3:10

21d ago3:10

3:10

Let's continue the conversation around accusations. These can feel like a trap to those of us who work so hard to Embrace The Reality of the people in our lives living with dementia. Don't fall into the trap! Instead, focus on solving the person's emotional problem by trying to figure out what is at the root of it. Rather than arguing, ask question…

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Ask Nordestgaard on long-term stroke risk in women 11:25

22d ago11:25

11:25

In this episode, host Laura Hart chats with Ask Nordestgaard (Brigham and Women's Hospital, Boston, USA) about the long-term risk of stroke in healthy women, the role of inflammation and lipoproteins, and how early biomarker screening could transform stroke prevention strategies. Click here to read the full article. Continue this conversation on so…

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Brain Stories Episode 22 Caswell Barry and Lucy Unwin talk about the neuroscience behind their new children’s book – Inside Your Brain 47:49

23d ago47:49

47:49

Caswell Barry and Lucy Unwin talk about the neuroscience behind their new children’s book – Inside Your Brain. Inside Your Brain takes readers on an irreverent gallop through history to uncover ten ground breaking discoveries that led to our current understanding of how the brain works. Date of episode recording: 2025-10-02 Duration: 00:47:48 Langu…

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The Statistics Behind Caregiver Mental Health: You’re Not Alone (Episode 136) 5:22

28d ago5:22

5:22

In this episode, we dive into the numbers behind caregiver mental health, sharing Canadian statistics that reveal just how many caregivers, including those who are working caregivers, face similar challenges. While it can often feel like you’re alone in your struggles, the truth is that far more people are experiencing the same difficulties than yo…

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Brian McDonald: Rocket Scientist + Med School = Compassionate Caregiver 31:53

29d ago31:53

31:53

Hello Alzheimer's host Karla Hult talks with Brian McDonald, President of SYNERGY HomeCare of Northeast Metro, Twin Cities, Minnesota. We know EVERY care partner -- whether family/personal or professional -- is doing the most important "work" in our world by walking alongside those living with Alzheimer's or other dementia. And while we can learn f…

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Clarifying the Alzheimer’s Disease Clinical Trials Landscape 29:52

1M ago29:52

29:52

Clinical trials are essential for improving the lives of those diagnosed with Alzheimer’s disease and related dementias. With so many trials out there, it can be difficult for someone who’s interested in participating in research to know where to start. Dr. Jonathan Graff-Radford joins the podcast to discuss the ins and outs of clinical trials and …

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Do I need to change my entire routine to feel better as a caregiver? (Episode 135) 9:48

1M ago9:48

9:48

In this episode, Stephanie explores a common question caregivers face: Do I need to change my entire routine to feel better if I am overwhelmed as a caregiver? When self-care feels overwhelming or unattainable, is a complete lifestyle overhaul the only answer-or can small, realistic steps make a real difference? Stephanie shares insights on what tr…

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Tamara Statz: Advice for EVERYONE Connected to Dementia 33:32

1M ago33:32

33:32

Hello Alzheimer's host Karla Hult talks again with Tamara Statz, a licensed marriage and family therapist and founder of Vibrant Living Senior Services. This time, Karla draws upon her recent role at the Walk to End Alzheimer's -- where we all hold flowers representing our connection to dementia -- to ask Tamara for her specific advice for each "ro…

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Mini Podcast: Accusations - Part 1 3:02

1M ago3:02

3:02

When it comes to Embracing Their Reality™️ in dementia care, some of the most challenging and uncomfortable situations come from accusations. You might be thinking: "How can I Embrace Their Reality when they're accusing me of stealing money or cheating on them?" These two awful accusations are unfortunately two of the most common lobbed at caregive…

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What does the research show when it comes to caregiver mental health and is there hope on the horizon, with Dr. Adrianna Shnall (Episode 134) 46:34

1M ago46:34

46:34

Dr. Adrianna Shnall, program director at the Baycrest Kochinsky Centre, has been a social worker and clinician in the field of aging and caregiving for over 30 years. In today’s episode, she shares her top learnings in the field, what she feels is the most noteworthy in the area of aging and caregiver mental health today, and what may be on the hor…

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The Walk to End Alzheimer's: Finding Empathy & Joy in Community 30:21

1M ago30:21

30:21

Hello Alzheimer's host Karla Hult talks with Jennifer Hendrickson, Director of the Walk to End Alzheimer's, Twin Cities. Of the 600 walks throughout the country, the Twin Cities walk is one of the largest (typically in the top three). Jennifer shares how she works year-round to prepare for the powerful morning, and what -- or who -- inspires her co…

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Making Sense of Microplastics: New Research Looks at How Microplastics Build Up in the Brain and Body 31:00

1M ago31:00

31:00

Microplastics are a growing concern in the field of environmental health, but their impact on the brain is only beginning to be understood. Joining the podcast to share the latest research on these tiny particles, which have been found in the brain and other parts of the body, is Dr. Matthew Campen, a leading researcher in the field whose work is h…

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What if I promised the person I care for that I would always keep them at home, yet now I need to move them to a facility or other location, with Jeanette Yates (Episode 133) 39:25

2M ago39:25

39:25

Many of us have had the conversation- we vow to keep the person we care for home forever; We will never move them to a facility or otherwise... And then one day, reality hits, and we face the fact that we may not be able to follow through on this promise that once seemed feasible. In today’s episode, Jeanette Yates discusses how she navigated this …

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Dr. Kate Wyman: The ABCs of AAIC (The Latest Hope in Alzheimer's & Other Dementia Research) 33:02

2M ago33:02

33:02

Hello Alzheimer's Host Karla Hult talks with Dr. Kate Wyman, a Clinical Neuropsychologist and Clinician-Investigator at HealthPartners Neuroscience Center. Every year, Dr. Wyman joins thousands of researchers from around the world at the Alzheimer's Association International Conference. The annual event always delivers the "latest and greatest" whe…

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Shiv Saidha on recent updates in the diagnosis of multiple sclerosis 29:36

2M ago29:36

29:36

Morgane Boillot chats with Professor Shiv Saidha (Johns Hopkins University, USA) about recent developments in diagnosing multiple sclerosis, and specifically on the use of paraclinical tests of the optic nerve in this context. Read the full article: https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(25)00270-4/fulltext?dgcid=buzzsprout…

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Emergency Contact NFC Keychains: Interview with Dawna Duke 26:02

2M ago26:02

26:02

The Dementia By Day Team interviewed Dawna Duke about the keychains she's creating, which are programmed to share emergency contact information with the tap of your phone. As easily as you set up and use the "tap to pay" function on your smart phone, you can program Near-Field Communication (NFC) chips with important information like an emergency c…

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What is the purpose of a caregiver processing deep emotions in therapy (isn’t it better to just let these things go as life is already so stressful?) (Episode 132) 9:04

2M ago9:04

9:04

Why would you even want to talk about or process the deep emotions? The painful thoughts or feelings that just feel too difficult to think about? In caregiving, isn’t it easier to just let these go and focus on the task of hand since things are already so stressful? In today’s episode, Stephanie answers these questions and talks about why therapy c…

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Voices of Dementia: Michael Ellenbogen 33:59

2M ago33:59

33:59

Hello Alzheimer's host Karla Hult kicks off the fall "Hello Alzheimer's" season with a profound conversation with Michael Ellenbogen. Michael is a husband, father and former high-powered network operations manager for a Fortune 500 financial institution. And Michael -- a self-described "bulldozer of dementia" -- is also a fierce and tireless intern…

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Identifying and Addressing Changes in Decision-Making Ability with Capacity Testing 37:04

2M ago37:04

37:04

As an individual develops dementia, they may need support in many areas of their lives. One of these areas is decision-making, particularly regarding health care decisions, but how can someone or their loved one determine if they need support with decision-making? To answer these questions, Dr. Victoria Williams joins to discuss capacity and capaci…

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Some of the WILD things people have said to me as a caregiver and following my mom’s passing (Episode 131) 10:02

2M ago10:02

10:02

In this episode, Stephanie shares some of the most memorable (frankly, ridiculous) things people have said to her while she was caring for her mother and following her mother’s passing. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compas…

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The Incomparable Dr. Ron Petersen on Reducing Your Alzheimer's (or Other Dementia) Risk 20:34

2M ago20:34

20:34

Hello Alzheimer's host Karla Hult talks with the one and only Dr. Ron Petersen of the Mayo Clinic about what we can do -- right now -- to help prevent Alzheimer's or other dementia, especially if we're more likely (due to genetics) to develop the disease. Petersen weighs in on all the latest research about basic behavioral changes and steps we can …

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Creator of Dementia-Friendly Online "Shopping" Experience, Sori Han 28:17

2M ago28:17

28:17

Rachael and Natalie of the Dementia By Day Team had a really interesting conversation with Sori Han, the inventor of and mastermind behind Shopazon! Shopazon is a unique website for people living with dementia in which they can experience "shopping" without spending any money. In this episode, Sori shares other dementia-friendly websites and apps h…

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From not speaking, to forming a close relationship and caregiving for both his parents (for years), with Charles Morris (Episode 130) 42:12

2M ago42:12

42:12

Charles Morris has an incredible story, and we are so thankful he is sharing it on our podcast today. From not speaking to his mother for years, to forming a beautiful and meaningful relationship with her, to moving in with his parents and caring for them for years… And then a traumatic brain injury…. This is an episode you do not want to miss. Abo…

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The Beauty of Becoming a 'Dementia Friend' (and the best example) 29:48

2M ago29:48

29:48

As we savor the final days of summer, we're returning to a conversation about the beauty of becoming a "Dementia Friend." And we begin this episode with a tribute to the best kind of friend to those living with any form of dementia (my partner in this mission, Ron Stover). As for the overall summary... Hello Alzheimer's host Karla Hult talks with C…

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Mindfulness and Meditation Practices for Living with MCI 26:30

2M ago26:30

26:30

Receiving a diagnosis of mild cognitive impairment (MCI) or dementia can be an emotional and challenging experience. How can meditative practices support those living with MCI? Buddhist chaplain Sharon Lukert wrote her book, Until My Memory Fails Me, with the goal of sharing mindfulness and spiritual practices that have helped her since being diagn…

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The need for a national caregiving strategy in Canada, government-level advocacy and policy change and the hope on the horizon, with James Janeiro (Episode 129) 41:19

3M ago41:19

41:19

Canada is in dire need of a national caregiving strategy. And on today’s episode, we welcome James Janeiro, director of policy and government relations at the Canadian Centre for Caregiving Excellence (CCCE), a program of the Azrieli Foundation, to discuss what he and the CCCE are tirelessly working on to make this dream a reality. If you have ever…

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Robbin Frazier: How Faith Communities are Walking Alongside Those Living With Dementia 27:45

3M ago27:45

27:45

We're revisiting an important conversation today, because summer is busy... but that doesn't mean we should miss the information that could make a profound difference for us, our loved ones or anyone on the Alzheimer's or other dementia marathon. Enjoy, friends. And please... savor these waning days of summer. Hello Alzheimer’s host Karla Hult talk…

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Mini Podcast: Behind the Scenes of Our Short Film 3:22

3M ago3:22

3:22

We are exactly one month away from the one-year anniversary of our short film's release! In this mini podcast episode, Rachael Wonderlin talks about the inspiration behind Dementia By Day's short film, "Embracing Their Reality." She talks about why the Dementia By Day team decided to make this as narrative as possible, instead of a straightforward …

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Brain Stories - Episode 21: Professor Adrian Isaacs on Frontotemporal Dementia 38:49

3M ago38:49

38:49

Selina and Caswell chat with Professor Adrian Isaacs from the UK Dementia Research Institute at UCL to talk Frontotemporal Dementia — from how fruit flies are helping, to the role of DNA repeat expansions in disease, and why lipids might protect the brain. Presenters: Caswell Barry and Selina Wray Guests: Professor Adrian Isaacs Producer: Patrick R…

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All about the Association of Frontal Temporal Degeneration (AFTD) including what they do, who they help, and where they hope to go next, with Esther Kane and Debbie Elkins (Episode 128) 44:37

3M ago44:37

44:37

In today’s episode, caregiver @debbieelkins , shares her story caring for her husband Chuck with frontotemporal degeneration (FTD), and discusses how @theaftd supported her during both her caregiving journey, and provided her a sense of purpose through volunteer and advocacy. AFTD’s director of support and education, Esther Kane, also joins us on t…

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Dr. Madeline Cross: The Alzheimer's Gender Gap 27:12

3M ago27:12

27:12

If you've ever wondered what's behind the "Alzheimer's gender gap," then this conversation is for you... Hello Alzheimer's host Karla Hult talks with Dr. Madeline Cross, a neurologist at HealthPartners. Dr. Cross covers why women are especially vulnerable to Alzheimer's disease, touching on the most popular theories related to hormones, the immune …

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Michael Rafii on Down syndrome-related Alzheimer’s disease 22:41

3M ago22:41

22:41

People with Down syndrome face a high risk of developing Alzheimer’s disease, which is the leading cause of death in this population over the age of 35. In this episode, Morgane Boillot (Senior Editor) is joined by Professor Michael Rafii to explore the intersection of Down syndrome and Alzheimer’s disease. They discuss the latest research into dis…

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Under the FTLD Umbrella: A Deep Dive into Frontotemporal Dementia 38:30

3M ago38:30

38:30

Frontotemporal lobar degeneration (FTLD) is one of the most common causes of dementia in individuals under the age of 60, yet it remains lesser known and often misunderstood. From the early symptoms to the challenges of diagnosis and treatment, FTLD presents unique hurdles for clinicians, researchers and families alike. Joining the podcast to discu…

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Do I even need a power of attorney document and/or advanced directives? (Episode 127) 12:04

3M ago12:04

12:04

This is not commonly provided education so do not worry if this is all new or confusing! Most people are confused about powers of attorney, advanced directives and wills and why they can be extremely important/ what they can help with. In today’s episode, Stephanie discusses her perspectives on having a power of attorney document and what she has s…

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Voices of Dementia: Peter Zubert 29:29

3M ago29:29

29:29

Hello Alzheimer's host Karla Hult talks with Peter Zubert, a sales executive, husband, dad and son who's today walking alongside his mother during her dementia journey. But this "Voices of Dementia" conversation also touches on Peter's own journey to reduce his risk of later developing dementia by addressing his hearing loss. Together, Karla and Pe…

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Mini Podcast: Is this Study Real? 3:13

3M ago3:13

3:13

When you come across an article about a so-called study that claims X thing "cures" or "causes" dementia, ask yourself one critical question before researching any further: Is this claim measurable? In order to be scientifically valid, studies need to consistently prove that they have measured the same results over and over. A small sample set of c…

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People no longer visit the person I care for (Episode 126) 10:08

3M ago10:08

10:08

This is a common scenario- perhaps when there was an initial diagnosis, people showed up and offered support and over time they stopped coming as often or at all. Or maybe even at the time of diagnosis people did not visit. Whatever the case may be, if you are finding that no one visits, this episode is for you. Stephanie breaks down the most commo…

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Dave Fabry, Ph.D.: Hearing Loss & Dementia, An Update 31:52

3M ago31:52

31:52

Hello Alzheimer's host Karla Hult reunites with expert and friend, Dave Fabry, Ph.D., the Chief Hearing Health Officer at Starkey. The two catch up on Karla's ongoing transition to life with hearing aids (spoiler alert: she can now hear the responses of her strong, sassy and beloved teen daughters). Most importantly, Dr. Dave dives into the latest …