Best Cftr Podcasts (2025)

101
Lipopolysaccharide Causes Acquired CFTR Dysfunction in Murine Nasal Airways 22:31

9d ago22:31

22:31

Editor-in-Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author Bradford A. Woodworth, MD, and Associate Editor Dana L. Crosby, MD, MPH, to discuss whether lipopolysaccharide generates a model of acquired cystic fibrosis transmembrane conductance regulator (CFTR) dysfunction murine nasal airways as outlined in the paper “Lipopolysacchari…

1
Voices of Care: A Live and Unfiltered Conversation 1:16:39

4d ago1:16:39

1:16:39

Live from Mix and Mingle Education Day: A Powerful Conversation with Caregivers In this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of caregivers—grandparents, parents, stepparents, dads, and friends—for a heartfelt discussion about the emotional journey of caring for a loved one wit…

1
Obesity in CF: A New Challenge in a Healthier Future 38:12

12d ago38:12

38:12

Cystic Fibrosis and obesity? Until recently this has not been a topic of conversation for the CF community. The reason for obesity in the CF community is better health and longer lives, so the concern is now a reality. University of Michigan CF doctor, Carey Lumeng is researching the issue. As he says in this podcast, researchers have a lot to lear…

1
70 years strong: The Luanne McKinnon story. 1:03:30

19d ago1:03:30

1:03:30

A 70-year-old person with cystic fibrosis. It’s a phrase that wasn’t just uncommon a few decades ago—it was virtually unheard of. When Luanne McKinnon was diagnosed in 1969 at just 13 years old, doctors told her parents she might live to be 19 years old. Today, Luanne stands on the edge of her 70th birthday—a milestone that not only redefines possi…

1
Live Fearlessly: Jacob Venditti 31:54

26d ago31:54

31:54

Eight miles. Two friends. One cause. In this inspiring episode, Jacob Venditti opens up about his life with cystic fibrosis, offering candid updates on his health and the challenges he faces as he prepares for a lung transplant. He emphasizes the vital role of community support and shares how his work with the Live Fearlessly Foundation fuels his m…

1
Elevated Risk of Thyroid Malignancy in Biological Males Taking Estrogen Hormone Therapy 15:08

1M ago15:08

15:08

Editor-in-Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author David Goldenberg, MD, to discuss role of estrogen in developing thyroid malignancy as outlined in the paper “Elevated Risk of Thyroid Malignancy in Biological Males Taking Estrogen Hormone Therapy” which published in the April 2025 issue of Otolaryngology–Head and Neck Surge…

1
From Bulky to Breakthrough: The Future of Airway Clearance 27:37

1M ago27:37

27:37

From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole Dunn When our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugged into the wall. The vests didn’t fit well—riding high in the armpits and leaving much to be desired in comfort and function. Fast forward 25 years, a…

1
Milestones, Medicine, and the CF Community with Siri Vaeth 53:36

2M ago53:36

53:36

CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend. We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor. Siri is truly among the smartest people I know. She is an advocate for her daughter Tess, who has CF, and is an incredible advocate for the CF comm…

1
Aaron Trumm: living his best life! 45:23

2M ago45:23

45:23

I love that I was able to bump into Aaron Trumm via an email. He reached out to check in about our scholarship program for college. We only award grants to undergrad students, but I was intrigued by all I learned about him. Aaron has CF, he is post-transplant, he started a recording label, he plays the piano and wraps, And he worked with the man kn…

1
Bob Coughlin, CF Dad: from Congress to Science 45:50

3M ago45:50

45:50

CF Dad Bob Coughlin see's a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious. In this conversation, Laura Bonnell and Bob Coughlin discuss the journey of Bob's son, Bobby, who has cystic fibrosis. They explore the advancements in treatment, the importance of advocacy, and the intersection of policy …

1
Is Outpatient Supraglottoplasty Possible? Examination of Perioperative Comorbidities and Outcomes 25:07

3M ago25:07

25:07

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author Gresham T. Richter MD, and Associate Editor John P. Dahl, MD, PhD, MBA, to discuss the outcomes of not admitting pediatric supraglottoplasty patients as outlined in the paper “Is Outpatient Supraglottoplasty Possible? Examination of Perioperative Comorbidities and Outcomes” …

1
Michael Armstrong, wise beyond his years 26:45

3M ago26:45

26:45

Michael Armstrong is a 25-year-old pre-law student. He loves to read, paint, play card games and video games. He was diagnosed with CF as an infant. We’re going to talk about his CF journey and how life took a turn when he was being evaluated for a lung transplant in 2023 and 2024. Michael was featured in the 2025 Portraits of cystic fibrosis calen…

1
Life after the death of a child to CF 42:53

4M ago42:53

42:53

If you lose a child to CF, what does that do to parents? To their identity? And their place in the CF community. These are hard discussions to have, but for a couple years now Peggy Hawkins has want to share her story on this podcast. Peggy talks about the toll waiting for a transplant takes on a family. One of the issues was that one of them alway…

1
Refractory Chronic Cough: A State-of-the-Art Review for Otolaryngologists 31:20

4M ago31:20

31:20

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author Lee M. Akst, MD, and Associate Editor Christopher M. Johnson, MD, to discuss diagnosis of, treatments, and solutions for refractory chronic cough as outlined in the paper “Refractory Chronic Cough: A State-of-the-Art Review for Otolaryngologists” which published in the Febru…

1
Advocate, Amanda Boone 1:05:19

4M ago1:05:19

1:05:19

Saving yourself by way of advocacy. Living with cystic fibrosis podcast host, Laura Bonnell talks to CF advocate, Amanda Boone about the fight that grew from a threat to her medications in Colorado. Amanda has led the way against the Prescription Drug Affordability Board (PDAB). Amanda, who has CF, was struggling prior to 2019 because her health wa…

1
Medical Malpractice in Otolaryngology within the United States: A LexisNexis-Based Demographic Analysis 38:07

4M ago38:07

38:07

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by first author Shiven Sharma, JD, and Associate Editor Michael J. Brenner, MD, to discuss what the specialty can learn about medical malpractice in the field for quality improvement as outlined in the paper “Medical Malpractice in Otolaryngology within the United States: A LexisNexis-Based …

1
BreatheStrong CF 44:09

4M ago44:09

44:09

I have known Becky Penuel for many years. Becky used to run Miles for cystic fibrosis and then merged her nonprofit with Brian Callanan’s nonprofit, CF Life Fitness. After the merger, the nonprofit name is now: BreatheStrong. Becky is the Executive Director and was not able to join us today but, her Director of Operations is with us . Shawna Gray i…

1
NonProfit Spot, Heather Carmona 38:25

5M ago38:25

38:25

The NonProfit Spot: a wealth of resources and classes about how to grow your board, fundraise and make strategic decisions that will change the trajectory of your Foundation for the better. They have an excellent newsletter too. Heather Carmona, the Managing Director (and co-founder) of NonProfit Spot is a great friend and I am honored to share all…

1
Rare Disease Diversity, Jenifer Waldrop 34:48

5M ago34:48

34:48

I encourage everyone to attend conferences when you can. I meet the most interesting experts in the field of the nonprofit world. From scientists, to pharma, to other nonprofit execs like me. I was thrilled to meet Jenifer Waldrop. She joined the Black Women’s Health Imperative as the Executive Director of the Rare Disease Diversity Coalition (RDDC…

1
Cost-Effectiveness Analysis of Operating Room and In-Office Reconstruction of Skin Cancer Defects 25:59

5M ago25:59

25:59

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author Priyesh N. Patel, MD, and Associate Editor Peter M. Vila, MD, MSPH, to discuss the role of the operating room and its necessity in treating skin cancer defects as outlined in the paper “Cost-Effectiveness Analysis of Operating Room and In-Office Reconstruction of Skin Cancer…

1
Melissa Yeager, Claire's Place Foundation 44:58

6M ago44:58

44:58

Melissa Yeager, Executive Director and Co-Founder of Claire’s Place Foundation Since the planning stages of Claire’s Place Foundation, Melissa has spent countless hours working for the cause and, of course, raising her two children, Claire (the foundation’s namesake) and Ellie. With many years’ experience in project management and event planning, s…

1
Rock Star, Emily Schaller: one on one. 30:39

6M ago30:39

30:39

Emily Schaller, 42, is a heroine with one goal in mind, to Rock CF. A lot of laughs on this podcast with my friend Emily! She talks about her health, the Foundation, new and old legislation and what's coming up in 2025! Equal parts spark, wit and humor, Emily is claiming her victories against cystic fibrosis having launched the Rock CF Foundation i…

1
Healthcare funds you could be eligible to get, but probably don't know about. 35:39

6M ago35:39

35:39

“Charity Care is the best kept secret in healthcare.” says Eli Rushbanks "Only 29 percent of the people who should be helped by 340B, are helped." If, like me, you have not heard about Charity Care or Dollar For, I am glad you're here! This podcast will tell you about both Charity Care and the nonprofit, Dollar For. I learned about the program duri…

1
Rare Disease Ph.D. Beth Vanstone and Laura Bonnell 27:39

6M ago27:39

27:39

Are titles important? As a rare disease parent, we think you're worthy of a Ph.D. Listen to our fun conversation about all things rare and the much needed title we may need (or not) to get things done. As a reminder, Beth Vanstone is the mother of two daughters, one who has CF. Madi is 23 years old. Beth is a huge advocate in Canada, and much of th…

1
Private Patient Advocate offers you help 31:46

6M ago31:46

31:46

What is a Private Patient Advocate? Do you need one? Laura talks to Dr. Elena Borrelli who is a Doctor of Medical Science and a Board-Certified Patient Advocate who helps people and families with their health care journey. She practices in Shelby Township, Michigan. Dr. Borelli manages their healthcare as she tries to help them live their healthies…

1
Running a marathon with CF: Dylan Mortimer 35:10

7M ago35:10

35:10

Dylan Mortimer did the NYC Marathon. If you know him, you know that he had two double lung transplants. One in 2017 and one two years later in 2019. His second transplant was in NYC and Dylan talks about what it was like to go back to the streets he could barely walk, pre-transplant. It so touching as Dylan chairs his story with us. I appreciate al…

1
Etiology of Childhood Profound Sensorineural Hearing Loss: The Role of Hearing Loss Gene Panel Testing 19:24

7M ago19:24

19:24

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by author Rohani Omar MRCP, MD(Res) and Associate Editor John P. Dahl, MD, PhD, MBA, to discuss causes, especially genetic causes, of pediatric hearing loss as outlined in the paper “Etiology of Childhood Profound Sensorineural Hearing Loss: The Role of Hearing Loss Gene Panel Testing” which…

1
Partnership to Improve Patient Care: legislation explained! 43:51

7M ago43:51

43:51

Patient rights: do you know about the rights you have in regard to healthcare? There is a lot of information for you that Sara and Thayer serve to you here, in terms you can understand. They both work for the Partnership to Improve Patient Care, or PIPC (a coalition). Sara Traigle van Geertruyden is the Executive Director at PIPC. Thayer Roberts is…

1
Heather Trammell: CF and finding your voice 37:53

7M ago37:53

37:53

Life with CF is different for everyone. We have a lot of the same challenges, but we do grow with the disease differently. Heather Trammell, CF Mom to 7 year old Charlie is married to Christopher, (for 13 years now). Heather is a legal assistant in the compliance department at Credit Acceptance. Heather has so much CF Mom wisdom. I am glad to call …

1
Touraj Manshadi falling through the gaps in health policy 36:41

8M ago36:41

36:41

We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell. Beth is introducing us to 32-year-old To Touraj Dehghan Manshadi who has a CF mutation that is common to Iran, but rare in Canada where he lives. You may be surprised to learn Canada does not have a rar…

1
OTO: Improving Operating Room Efficiency in Otolaryngology–Head and Neck Surgery: A Scoping Review 25:05

8M ago25:05

25:05

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author Julie E. Strychowsky MD, MAS, FRCSC, and Associate Editor Michael J. Brenner, MD, to discuss methods for improving the efficiency of ORs for surgeons as outlined in the paper “Improving Operating Room Efficiency in Otolaryngology–Head and Neck Surgery: A Scoping Review” whic…

1
CURE FOUND MSU EXPANDS TO UM 39:10

8M ago39:10

39:10

I always tell this group of undergrad students that they are our future, and that makes the future look bright. Atef Choudhury and Naim Mashni are incredible people and students. They're both Seniors at Lyman Briggs College -- majoring in Human Biology. They're minor is in business and they're on the pre- med track. Atef and Naim are the co-founder…

1
Laura Bonnell - From news reporting, to CF and beyond. 31:04

8M ago31:04

31:04

From news reporting, to CF and beyond. Laura talks about her journey. The Bonnell Foundation: Living with cystic fibrosis is 14 years old. "I was so hopeful all those years ago, that my Foundation would take off, and now look at it! We have helped CF families from Michigan to California with financial assistance, lung transplant grants and Educatio…

1
Sorcha's CF journey: from diagnosis to addiction and discovery 44:28

8M ago44:28

44:28

We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988. Sorcha Slyvester-Martin from diagnosis to drugs and discovery. When she was three days old, she was diagnosed with Cystic Fibrosis. She says she had several near-death experiences. Her…

1
OTO: When It's Not Allergic Rhinitis: Clinical Signs to Raise a Patient's Suspicion for Chronic Rhinosinusitis 26:35

9M ago26:35

26:35

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by author Ahmad R. Sedaghat MD, PhD, and Associate Editor Dana L. Crosby, MD, MPH, to discuss the possibility of chronic rhinosinusitis when allergies are assumed as outlined in the paper “When It's Not Allergic Rhinitis: Clinical Signs to Raise a Patient's Suspicion for Chronic Rhinosinusit…

1
My brother and me! Rare, a bit of CF & COTA! 41:11

9M ago41:11

41:11

In this podcast you'll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk about their journey from having a rare disease to being cured. Noah and Colton talk about their journey with the Children’s Organ Transplant Associati…

1
OTO: ctDNA as an Adjunct to Posttreatment PET for Head and Neck Cancer Recurrence Risk Assessment 26:17

10M ago26:17

26:17

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by author John Pang, MD, and Associate Editor Tristan Tham, MD, to discuss circulating tumor DNA (ctDNA) detection as a new technique to identify minimal residual disease in patients with solid tumors as outlined in the paper “ctDNA as an Adjunct to Posttreatment PET for Head and Neck Cancer…

1
OTO: Long-term Quality of Life After Thyroidectomy: Transoral Endoscopic Thyroidectomy Vestibular Approach Versus Transcervical Approach 23:24

10M ago23:24

23:24

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author Jonathon O. Russell MD, and Associate Editor Raymond Liu Chai, MD, to discuss the pros and cons of two approaches to thyroidectomy as outlined in the paper “Long-term Quality of Life After Thyroidectomy: Transoral Endoscopic Thyroidectomy Vestibular Approach Versus Transcerv…

1
OTO: The Use of Deep Learning Software in the Detection of Voice Disorders: A Systematic Review 25:01

10M ago25:01

25:01

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author Diana N. Kirke, MD, MPhil, and Associate Editor Lee M. Akst, MD, to discuss the potential for deep learning models to detect voice disorders as outlined in the paper “The Use of Deep Learning Software in the Detection of Voice Disorders: A Systematic Review” which published …

1
OTO: Clinical Practice Guideline: Age-Related Hearing Loss Part 2 23:25

10M ago23:25

23:25

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by lead authors Heather M. Weinreich, MD, MPH and Carrie L. Nieman, MD, MPH to provide a patient and primary care provider-focused overview of the “Clinical Practice Guideline: Age-Related Hearing Loss” which published in the May 2024 issue of Otolaryngology–Head and Neck Surgery. They discu…

1
OTO: Clinical Practice Guideline: Age-Related Hearing Loss Part 1 28:59

10M ago28:59

28:59

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by lead authors Betty S. Tsai Do, MD, and Matthew L. Bush MD, PhD, MBA, for a discussion of some key points of the “Clinical Practice Guideline: Age-Related Hearing Loss” which published in the May 2024 issue of Otolaryngology–Head and Neck Surgery. They discuss the recommendations for scree…

1
OTO: Otolaryngology Applicant Perspectives on In-person and Virtual Residency Interviews 28:39

10M ago28:39

28:39

Editor in Chief Cecelia E. Schmalbach, MD, MSc, is joined by senior author Anne C. Kane, MD, and Associate Editor Michael J. Brenner, MD for a discussion of the article “Otolaryngology Applicant Perspectives on In-person and Virtual Residency Interviews", which published in the April 2024 issue of Otolaryngology–Head and Neck Surgery. They discuss …

1
Diary of a Dying Girl, Diane (Mallory) Shader Smith 27:26

10M ago27:26

27:26

Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave insight into how Mallory was feeling during her CF fight. Her deepest thoughts, and life lessons. Diane Shader Smith is now releasing a second book on b…

1
Special Insurance for CF families (and others) in MI 33:29

11M ago33:29

33:29

Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The program has a lot of benefits. CSHCS covers transportation that can include airfare a…

1
Remembering Matt McCloskey of Take a Breather 37:29

11M ago37:29

37:29

Shortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing this podcast to shine a light about what a great man Matt was. He speaks in this podcast about concern for his health. Thanks to Jenn, his family and to M…

1
The Fearless Vagina: Ellen Dolgen 1:00:06

12M ago1:00:06

1:00:06

As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause. They agreed. It's time. There is so little discussion and education about women and …

1
Dr. Caleb Bupp, Rare Genius (in our opinion) 43:39

12M ago43:39

43:39

Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about rare disease, his family and how he discovered and helped families who had no rare disease answers, until they met him! An absolute scientific rock star. …

1
Cambrey Vasconez White - rare mutations 38:33

12M ago38:33

38:33

Cambrey Vasconez White is the mother of toddler Rowland, who has Cystic Fibrosis. If you listened to our podcast with Vicky Maldonado, they have similar struggles. Cambrey is also working to find an equitable approach to rare mutations in the U.S. and Canada. These two women connected, as you’ll hear, because their sons share the same mutation. Row…

1
Brandi Berry, Chidlren's Special Health Care Services Prgrm 39:34

1y ago39:34

39:34

Did you know most states have programs for CF families, and they don’t have to do with your income? Michigan has one of the best programs in the Country. It’s called Children’s Special Healthcare and acts as a secondary insurance to pediatric and adult patients. Brandi Berry tells us all about it. Brandi Berry, LLMSW is the Program Coordinator of t…

1
Dr. Bhanu Jena, another CF modulator on the horizon? 35:36

1y ago35:36

35:36

A new CF modulator could be on the horizon. Professor Dr. Bhanu Jena is exciting to tell us all about it. Dr. Jena was born in a small town in Odisha, India. He got his love for science and medicine from his father and grandfather. He majored in Chemistry, Zoology, and Botany at BJB College in Bhubaneswar, Odisha, India, He got his masters in zoolo…

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