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Iss rare disease journeImagine waking up every day knowing even a light touch could cause your skin to tear or blister. That’s the reality for children and adults living with Recessive Dystrophic Epidermolysis Bullosa (RDEB) — a severe rare genetic condition where skin and mucous membranes are extremely fragile. In this episode of Rare Connection, host Joanna speaks with Professor Mark Lowdell — Chief Scientific Officer & Co-Founder of INmune Bio and Professor of Cell & Tissue Therapy at University College London — about a promising cell therapy called CORDStrom™, developed for RDEB and currently progressing through clinical development.
GOSH Hospital site
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We discuss
🔹 What RDEB is and how it affects daily life and long-term health
MedlinePlus
🔹 The science behind CORDStrom™ and its clinical trial results in pediatric RDEB patients
inmunebio.com
🔹 What it means to prepare a Biologics License Application (BLA) submission to the FDA and future regulatory milestones
Patsnap Synapse
🔹 The human stories behind the research and why this work matters for families living with rare disease
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