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Groundhog Days, Gradual Changes, & Deep Family Ties | Marci’s Catch-Up

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Manage episode 493692516 series 3248851
Content provided by Madeline Cheney. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Madeline Cheney or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

When you’re deep in the world of disability parenting, it’s easy to feel like every day is the same. The meds. The appointments. The routine that doesn’t seem to change much, even as the years go by.

In this episode, Marci returns to share what life looks like now, two and a half years after her conversation about grieving her daughter Freya’s intellectual disability. Sheopens up about the slow pace of progress, the grief that still sneaks up on her, and how, while parts of Freya’s disabilities are difficult, her family cherishes and celebrates Freya’s joy in the day to day.

We also talk about the messy emotions of school decisions, the heartbreak of communication barriers, and why disability has pulled Marci into the world of politics—whether she likes it or not.

If you’ve ever felt caught between acceptance and grief, you’ll feel right at home in this one.

Links:

Listen to Ep 114: Grieving Our Children’s IntellectualDisabilities + Facing Our Internalized Ableism with Marci Dunning.

Follow Marci on Instagram @ freyasluckyarm!

Follow us on Instagram @the_rare_life!

Join The Rare Life newsletter and never miss an update!

Fill out our contact form to joinupcoming discussion groups!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

  continue reading

257 episodes

Artwork
iconShare
 
Manage episode 493692516 series 3248851
Content provided by Madeline Cheney. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Madeline Cheney or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://podcastplayer.com/legal.

When you’re deep in the world of disability parenting, it’s easy to feel like every day is the same. The meds. The appointments. The routine that doesn’t seem to change much, even as the years go by.

In this episode, Marci returns to share what life looks like now, two and a half years after her conversation about grieving her daughter Freya’s intellectual disability. Sheopens up about the slow pace of progress, the grief that still sneaks up on her, and how, while parts of Freya’s disabilities are difficult, her family cherishes and celebrates Freya’s joy in the day to day.

We also talk about the messy emotions of school decisions, the heartbreak of communication barriers, and why disability has pulled Marci into the world of politics—whether she likes it or not.

If you’ve ever felt caught between acceptance and grief, you’ll feel right at home in this one.

Links:

Listen to Ep 114: Grieving Our Children’s IntellectualDisabilities + Facing Our Internalized Ableism with Marci Dunning.

Follow Marci on Instagram @ freyasluckyarm!

Follow us on Instagram @the_rare_life!

Join The Rare Life newsletter and never miss an update!

Fill out our contact form to joinupcoming discussion groups!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

  continue reading

257 episodes

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