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Ep 23 Pulse 114: Celebrating 50 Years of Hope, Advocacy Class, PWSA Egypt, Journeys Project on Discord, Community Stories
Manage episode 459791025 series 3594946
Listen to the latest in PWSA events and PWS news: how to help us celebrate our 50th Birthday year in 2025 at the Journey of Hope Gala and our 50th birthday party at the International PWS conference in June, a young artist's Spotlight on Hope, call for Rare Aware Art Share submissions, Diamonds and Denim fundraiser, the upcoming PWS Advocacy master class, PWSA Egypt, Nurse Lynn's response for a late diagnosis and newborn screening, the new Journeys project on PWS Connect on Discord, call for abstracts for Clinical and Scientific Program, our Parent/Family Mentor Program, and of course, Carrie and Anne's latest mission moments.
Emails:
Dorothea Lantz, Community Engagement Director - [email protected]
Jim Sliney at Patients Rising - jsliney@patientsrising.org
Events Celebrating 50 Years of Hope: Ushering in PWSA | USA’s Anniversary Year - Prader-Willi Syndrome Association | USA PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA Home - 2025 United in Hope PWS Conference Diamonds & Denim 2025 - Campaign PWSA Fundraising Pages - Campaign Spotlight on Hope Spotlight on Hope: Lenny's Business Fair Breakthrough - Prader-Willi Syndrome Association | USA Share Your Story - Prader-Willi Syndrome Association | USA Advocacy PWS Advocacy Master Class Sign up | Patient Rising Community Family Support A Global Network of Hope: How PWSA Egypt & Middle East is Transforming Lives - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Late Diagnosis and Newborn Screening - Prader-Willi Syndrome Association | USA Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Call for Abstracts: Conference 2025 - IPWSO Intro Music: https://www.bensound.com/; License certificate #224244265 episodes
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