Love to listen or prefer to watch? For the first time, the video recording of this episode is available on our YouTube channel: https://www.youtube.com/watch?v=ansbXaF9B6c

Join us for the first in-person recorded episode of Not Just Patients!
We were so excited to be invited to the launch of the National PPI Festival in Dublin, organised by the PPI Ignite Network and the Royal College of Surgeons in Ireland (RCSI). Listen (or watch!) as we speak with our 3 amazing guests about their experiences of patient and public involvement (PPI) in research, from their differing perspectives of an early career researcher, a patient contributor, and a research group leader.
Guest profiles:
Dr Viveka Guzman is a Research Associate at Imperial College London. She is also part of the Patients Experience Research Centre, where she promotes participatory approaches and supports patients and the public to get involved in research. Before her current role, Viveka completed her PhD at RCSI through the SPHeRE Programme, where she collaborated closely with an advisory panel of five public contributors across several stages of the project.
Clíodhna Ní Bhroin has a degree in Botany, an MSc in Biodiversity & Conservation and also requalified in IT. In 2017 she had a stroke that changed the course of her life. Wanting to share her experience to improve the experience of those who came after her, Clíodhna took part in PPI through RCSI, and in 2020 she was invited to take part in the Improving Pathways for Acute STroke And Rehabilitation or (iPASTAR) PhD programme as a Patient Champion.
Professor Fergal O’Brien is Professor of Bioengineering & Regenerative Medicine, Deputy Vice Chancellor for Research & Innovation, and Head of the Tissue Engineering Research Group (TERG) in RCSI. In his innovative research, he combines cutting-edge bioengineering with meaningful PPI. Fergal’s team partnered with the Research Ireland Advanced Materials and Bioengineering Research (AMBER) Centre and the Irish Rugby Football Union Charitable Trust to co-design a novel spinal cord injury implant alongside a PPI advisory group of clinicians, researchers, and individuals living with spinal cord injury. This advisory group offered valuable insights into the realities of spinal cord injuries and possible treatment strategies.

On this live episode of Not Just Patients, we explore PPI in practice and the transformational impact it can have on research itself and on all the people involved.
Chapters:

0:00 - Introductions

6:17 - Dr. Viveka Guzman: perspectives of an early career researcher

17:06 - Clíodhna Ní Bhroin: perspectives of a patient contributor

28:35 - Prof. Fergal O'Brien: perspectives of a research group and institutional leader

43:48 - Panel discussion

1:03:13 - Audience Q&A

1:11:19 - Advice for stakeholders looking to practice PPI better

1:15:02 - Summing it all up

Resources:

EUPATI - European Patients Academy on Therapeutic Innovation

Have feedback or suggestions for us? We'd love to hear from you!
Website: notjustpatients.com
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