Rayana’s Voice: A Rett Syndrome Journey Where Care Meets Science & Stories
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Pierre Dees Podcasts
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Different Country, Same Courage: Living with Rett syndrome in Norway- Part 2
1:11:58
1:11:58
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1:11:58Send us a text From Phoenix to Norway, love and resilience speak the same language. Tashana Dees talks with the parents of a 10-year-old girl living with Rett Syndrome about diagnosis, daily life, faith, and global advocacy-reminding us that courage knows no borders Join us on skool: skool.com/rayanas-voice-pod Support the show I would like to than…
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Different Country, Same Courage: Living with Rett syndrome in Norway- Part 1
49:02
49:02
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49:02Send us a text From Phoenix to Norway, love and resilience speak the same language. Tashana Dees talks with the parents of a 10-year-old girl living with Rett Syndrome about diagnosis, daily life, faith, and global advocacy-reminding us that courage knows no borders Join us on skool: skool.com/rayanas-voice-pod Support the show I would like to than…
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"Through My Sister's Eyes" : A Sibling's Perspective on Disability and Strength
27:42
27:42
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27:42Send us a text In this special episode of Rayana’s Voice, I sit down with my younger sister — the youngest in our family — to explore what it’s really like growing up with an older sister who has a disability. We’ll talk about early memories, everyday life, how our perspectives were shaped, and what siblinghood means in this context. We’ll also wea…
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Breaking Barriers-Accessible Healthcare for Special Needs
23:17
23:17
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23:17Send us a text 🎙️ Episode 3 – Breaking Barriers: Accessible Healthcare for Special Needs In this episode, host Tashana Dees, founder of Rayana’s Voice Podcast and New Birth Diagnostics Laboratory, explores the systemic barriers that families of individuals with Rett syndrome and other developmental disabilities face in accessing healthcare. Drawing…
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Send us a text In this heartfelt and empowering episode of Rayana's Voice: A Rett Syndrome Journey, host Tashana Dees opens up about what families need to know after receiving a Rett Syndrome diagnosis. Through her personal experience as Rayana's mom, Tashana breaks down the basics of Rett in simple, compassionate language- what it means, how it im…
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Episode 1: Living with Rett Syndrome – A Mother’s Journey
23:42
23:42
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23:42Send us a text In our first official episode, we share the story of living with Rett syndrome through the eyes of a mother and advocate. We dive into what Rett syndrome is, how it connects to the MECP2 gene, and why this gene plays such a crucial role in the challenges families face. From understanding the science to experiencing the day-to-day rea…
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Rayana's Voice: Rett Syndrome Journey Trailer
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0:51Send us a text 🎙️ Rayana’s Voice: A Rett Syndrome Journey This powerful podcast shares the inspiring story of Rayana, a young girl living with Rett Syndrome, and the family who refuses to let her voice go unheard. Through heartfelt conversations, personal reflections, and expert insights, Rayana’s Voice sheds light on the daily challenges, small vi…
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