Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!
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016: Fitness Beyond Limits: Inclusive Training & Nutrition with Charlie Taylor
51:40
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51:40Meghan Weaver interviews Charlie Taylor from Foundation of Strength, discussing their partnership with gyms to provide fitness programs for individuals with autism, Down syndrome, and other different abilities. Charlie shares his journey, from his early interest in weightlifting to his initiation into training individuals with special needs. They t…
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In this episode of 'Rare Meat for Moms, host Meghan Weaver addresses the topic of sibling relationships within families with children with IDD or a rare diagnosis. Meghan shares practical family activities and one-on-one bonding ideas to help strengthen the bond with your other children by ensuring individual attention. Highlights include personali…
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014: Daily Safety Made Simple: 5 Key Safeguards for Home
21:33
21:33
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21:33Essential Safeguards and Hacks for Parents of Children with Rare Diagnoses In this episode of Rare Meat for Moms, host Meghan Weaver shares practical tips for keeping children safe at home. Meghan details five key safeguards: (1) a freezer door alarm to prevent food spoilage, (2) a secondary lock on the main entrance to control access, (3) a Ring s…
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013: Adventures in Inclusive Bicycle Travel with Bradley Fisher
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48:00Meghan Weaver interviews Bradley Fisher, a dedicated teacher, father, and lifelong Chicagoan, about his experiences in adaptive cycling with his special needs daughter, Lillia. The discussion spans Bradley's journey from early biking adaptations for Lillia, who has GAND, to participating in inclusive bike camping adventures. They explore the proces…
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012: My Top 10 Must-Have Toys Over the Last Decade
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31:15In the final episode of 2024, host Meghan Weaver shares her top 10 toy recommendations that have been loved by her daughter Rowan and the entire family over the years. From VTech GoGo Smart Wheels to the Yoto player, these toys not only entertain but also support various developmental milestones and therapeutic needs. Meghan provides detailed insig…
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011: Birthdays - Celebrations & Freak Outs (My own included)
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24:31In episode 11 of Rare Meat for Moms, host Meghan Weaver discusses the complexities and emotional challenges of celebrating birthdays for her daughter Rowan. She reflects on the highs and lows of the past 11 years, shares personal tips for managing birthday celebrations, and outlines the unique hurdles like her daughter's fear of opening presents (D…
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010: Creating Your Local Support Squad: How to Start a Social Group for Moms of Children with Various Diagnoses
13:56
13:56
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13:56In this episode of Rare Meat for Moms, host Meghan Weaver shares her experience of raising a child with a rare genetic disorder and the importance of building a community for support. Meghan discusses the creation of her group, Gals Who Get It, designed for mothers of children with various diagnoses, and provides practical steps for starting a simi…
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009: CBD for Kids: Behavior to Breakthroughs and Increased Focus - A Conversation with Charissa Lynn
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51:15We are talking about tapping into the benefits of CBD for children with special needs. We explore trials, triumphs and daily life. Join us in this insightful episode as we follow Charissa Lynn, an experienced flight nurse, and mother, through her family's 8 year journey of using CBD to manage her son Tucker's behavioral issues, seizure medication s…
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008: The Egg Episode | 13 Hacks, Recipes, Activities, Eggcetera
18:42
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18:42In this engaging episode of Rare Meat for Moms, host Meghan Weaver offers a delightful mix of stories, recipes, activities, and hacks centered around eggs. She begins with a shoutout to listeners Abi and Annabel and shares a funny anecdote about her own daughter hiding farm fresh eggs. Meghan provides practical egg recipes, including hard-boiled, s…
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007: Tackling Tantrums: Calm in the Chaos
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18:07In this episode of 'Rare Meat for Moms,' host Meghan Weaver tackles the complex issue of managing tantrums in pre-adolescent children, particularly those with rare diagnoses. She draws on personal experiences and advice from an ABA therapist to share effective strategies, such as using a designated safe area and the 'blow your candle out' technique…
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006: The (Almost) Impossible Quest for Couple Escapes
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25:47In this episode of Rare Meat for Moms, host Meghan Weaver discusses the importance of intentional breaks and quality time between spouses, especially for parents with children who have rare diagnoses. Meghan shares her personal journey of planning getaways with her husband, Chris, despite facing challenges like finding reliable sitters and dealing …
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005: Demystifying the Invisalign Process: Tammy Ruh on the Process & Benefits for Children with Special Needs
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26:14Episode 005: Demystifying the Invisalign Process: Tammy Ruh on the Process & Benefits for Children with Special Needs | Rare Meet for Moms Podcast In this episode, Meghan speaks with Tammy Ruh, a dental hygienist and special needs mom, about the challenges and strategies involved in managing her son's dental care, given his diagnosis of GAND (gatad…
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004: Gamify Mealtime: Transforming Your Kids' Picky Eating Habits!
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24:54Transforming Mealtime: Gamify Your Kids' Eating Habits! In this episode of 'Rare Meat for Moms,' host Meghan Weaver shares innovative strategies to gamify mealtime and tackle picky eating habits in children, including those with rare diagnoses and sensory issues. Meghan talks about her personal experiences with her three children, particularly her …
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In Part 2, we dive into the practical application of AAC (Augmentative and Alternative Communication) devices in the classroom. Meghan Weaver and Mindy Youngs, both mothers navigating the challenges of AAC for their children, share their extensive experiences. They discuss the importance of adequately trained staff, the role of paraeducators, and t…
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002: AAC Essentials- Choosing, Using, and Thriving with Communication Tools: A Conversation with Mindy Youngs
31:24
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31:24Mindy Youngs bio: At the age of 18 months, Mindy's daughter was diagnosed with a nonsense variant in the GATAD2B gene. Mindy helped launch the non-profit Helping Hands for GAND in September 2015 and served on the Board of Directors as Secretary for 4 years. Mindy continues to stay involved in the GAND community and is committed to helping create a …
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This is an introduction to what I hope will be a put it all out there, let’s figure it out together, laugh or vent about the current state of affairs. This is also a glimpse into what my life looks like raising a child with GAND. This will be conversations with other special needs moms and dads, sharing what’s working and what’s not. This is the re…
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