Best Lori Saux Podcasts (2025)

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196. Buddy Up For Life with Beth Gibson 1:01:19

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9d ago1:01:19

1:01:19

Beth Gibson, Founder & Executive Director of Buddy Up for Life/Buddy Up Tennis, founded Buddy Up for Life in 2008 when her then 3 ½-year-old son, Will, who has Down syndrome, wanted to play tennis with his older brother. Beth realized there was a void in fitness programs for people with Down syndrome. And took the initiative to make her son’s dream…

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195. Yellow Flower Gills Me Whole - Poetry By Sid Ghosh 1:01:55

24d ago1:01:55

1:01:55

Here is another beautiful conversation we had with Dr. Vaish Sarathy and her son, poet Sid Ghosh who has published a book of poetry titled Yellow Flower Fills Me Whole. Sid has a duel diagnosis of Autism and Down syndrome and previously appeared on the podcast, with Vaish, to discuss non-linear education and how he communicates using a letter board…

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194. That’s Not How It Happened: A Novel By Craig Thomas 59:59

1M ago59:59

59:59

In this episode, we sit down with How I Met Your Mother co-creator Craig Thomas to talk about his new novel, That’s Not How It Happened. The novel is about a family whose lives are thrown into turmoil when a Hollywood producer turns their story into a movie, forcing them to confront their differing perspectives on their past and the challenges of r…

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193. Accommodations In An IEP Are A Right Not A Favor 34:52

2M ago34:52

34:52

When schools treat accommodations like a gift instead of a legal right, students with disabilities are the ones who pay the price. In this episode, we share our firsthand experiences navigating our son's high school IEP. From unimplemented accommodations to misplaced assessments and the constant reminder that equity isn’t optional. We unpack what i…

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192. Choosing A Pediatrician with Dr. Ilona Kleiner 57:44

3M ago57:44

57:44

In this episode we revisit a conversation with our longtime pediatrician, Dr. Ilona Kleiner, who has been with our family since the day Sophia was born and has guided us through Liam’s journey with wisdom, honesty and compassion. Dr. Kleiner shares her perspective on treating children as whole individuals far beyond a diagnoses or statistics and th…

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191. Play Dumb and Sabotage - Speech Pathologist Jeaneen Tang 1:18:01

3M ago1:18:01

1:18:01

Today we sit down with speech-language pathologist and author Janine Tang to talk about her new book "Play Dumb and Sabotage: Mindfully Under-Anticipating the Child’s Needs and Creating Opportunities to Practice Language". Drawing from more than two decades as a therapist and her personal journey as a parent of a child with a brain injury, Jeaneen …

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190. Advocating Through The Challenges Of A New School Year 47:41

3M ago47:41

47:41

In this episode, we discuss the challenges of a new school year and how we advocate to create a foundation of support for Liam, with the intentions of creating a narrative of inclusion. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/08/30/190-advocating-through-the-challenges-of-a-new-school-year/2/ Please follow us on X @ifwe…

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189. Let’s Talk About Transitions - Middle School to High School 52:31

4M ago52:31

52:31

In this episode Stephen and Lori sit down on a quiet summer morning to reflect on the season of transitions, both for their family and for their son Liam, who just graduated middle school. From the stillness of summer mornings to the in-between spaces of growth, they talk about what it means to be present during times of change, the challenges and …

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188. Preparing for Annual Appointments 1:09:46

7M ago1:09:46

1:09:46

Every year we face the stresses of annual appointments and assessments. Today we talk about game plans and strategies to help prepare for them. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/05/26/188-preparing-for-annual-appointments/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @…

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187. Happy Mother's Day! 20:33

7M ago20:33

20:33

Happy Mother’s Day to all the mothers in this beautiful Down syndrome community. You are a force and we thank and celebrate you. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/05/11/187-happy-mothers-day/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our we…

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186. Life and Birth on Amazon Prime with Melissa Kynoch 40:42

7M ago40:42

40:42

This week we are revisiting our interview with Melissa Kynoch, known by many for being featured on the BBC documentary LIFE AND BIRTH. Millions of people have had a chance to watch her positive attitude in the face of her son Bertie's Down syndrome diagnosis. Now, five years later, the docu-series is available in the United States on Amazon Prime. …

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185. Disability Pride and Self-Worth with Vaish Sarathy 48:47

7M ago48:47

48:47

In this episode we discuss the need and power for us to cultivate self pride and worth within the disability community. In doing so, we nullify the damaging words and opinions of those who wish to label and minimize individuals with disabilities or anyone for that matter. Episode Transcript: Please follow us on Twitter @ifweknewthenPOD you can drop…

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184. The Adolescent Brain with Christina Aries - Part 2 49:43

8M ago49:43

49:43

Today we are joined again by Mrs. Christina Aries, the Director of Adult Development at Citizens of the World Charter Schools for the second part of our discussion about brain development in the adolescent years. Episode Transcript: Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit ou…

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183. The Adolescent Brain with Christina Aries - Part 1 51:03

8M ago51:03

51:03

Today we are joined by Mrs. Christina Aries, the Director of Adult Development at Citizens of the World Charter Schools for a two-part discussion about brain development in the adolescent years. Episode Transcript: Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://…

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182. World Down Syndrome Day - March 21, 2025 40:13

9M ago40:13

40:13

It’s World Down Syndrome Day 2025 and we did it! We released an episode on March 21st. Many in our community do so well at preparing for this day every year and we greatly appreciate them but also, here’s to all those that feel like they are always behind or that their ‘to do” list is getting bigger, not smaller. We celebrate you and your loved one…

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181. Olivier and Hilda Bernier and Their IEP Experience 38:11

9M ago38:11

38:11

This week we have another conversation with filmmakers Olivier and Hilda to discuss their IEP experience featured in their film FORGET ME NOT: INCLUSION IN THE CLASSROOM. These talks not only shows us that we are not alone in this fight, but also gives us some powerful information that we can use in our own IEP meetings. Documentary Website: https:…

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180. Liam Turns 15: What Have We Learned In This Journey? 56:20

10M ago56:20

56:20

Happy Birthday Liam! In this week’s episode we discuss the lessons we have learned over the last 15 years in both education, behavior and societal changes. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/02/24/180-liam-turns-15-what-have-we-learned-in-this-journey/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us …

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179. Forget Me Not: Inclusion in the Classroom Documentary - Hilda & Olivier Bernier 58:06

10M ago58:06

58:06

Today we are joined by Hilda and Olivier, who are documentarians of a fantastic film “Forget Me Not”. This film tells the story of our children’s fight for an equal education and raises the question of inclusion versus segregation. It’s a documentary that is so important to making changes in the lives of individuals with Down syndrome. Website: htt…

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178. The 2025 DSDN Rockin' Dad Retreat with Ben Hughes 51:31

10M ago51:31

51:31

In July 2025, DSDN will host their annual Rockin' Dad Retreat for fathers of children with Down Syndrome to gather from across the country. We are joined again by Ben Hughes to give us all the details of this year’s event and also an update on his own journey. Retreat Details - WHEN: July 11-12, 2025, WHERE: Hilton San Diego Gaslamp Quarter, San Di…

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177. Showing Up For The Challenges - Karen Maezen Miller 1:09:06

11M ago1:09:06

1:09:06

Lori recorded this episode in October but what is very apparent is how challenges and the unknown are an everyday thing that helps tell our stories, In this episode Maezen talks about finding our space and our 'me' time. Karen Maezen Miller’s Website: https://karenmaezenmiller.com Maezen’s books on Amazon: https://www.amazon.com/Karen-Maezen-Miller…

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176. Revisiting 10,000 Maniacs Founding Member Steven Gustafson 58:23

1+ y ago58:23

58:23

Steven Gustafson is a founding member and bassist of the band 10,000 Maniacs. His sister, Cathy, had Down syndrome and we got a chance to discuss with him the impact she had on his life and the lives around her. Today we revisit that interview to share this sibling love story. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/01/…

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175. Communicating Our Stories with Sid and Vaish Sarathy 1:16:28

1+ y ago1:16:28

1:16:28

This week we revisit our conversation with Sid and Vaish Sarathy. Sid, who has the duel diagnoses of autism and Down syndrome. Although he is non-Speaking, Sid is a poet with two published books. Dr. Vaish Sarathy is a functional nutrition practitioner and science educator. She is the founder of Functional Nutrition for Kids and Plum Pudding Chemis…

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174. Advocating For Speech Therapy - Julie Picot 48:28

1+ y ago48:28

48:28

This week we once again sit down with Julie Picot but this time we are briefly joined by her daughter Elyse. We take a deep dive on the speech and reading journey in our community and discuss different ways to advocate for our children. Teach Your Child To Read in 100 Easy Lessons: https://a.co/d/3CEtpLY Episode Transcript: https://ifweknewthen7018…

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173. The Endless Possibilities of People with Down Syndrome: Revisiting Jake Pratt 1:03:30

1+ y ago1:03:30

1:03:30

This week we revisit our interview with Jake Pratt, an inspiring young man from Vestavia Hills, Alabama who has never let expectations define him. From scoring a touchdown on his high school football team, to graduating from the Clemson LIFE program, to working two jobs (including his dream role at UPS), Jake continues to show the world what true i…

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172. Happy Mothers Day: We Celebrate You 25:05

1+ y ago25:05

25:05

Today we celebrate all the powerful mothers who give so much to their children day in and day out. Remember how strong you are. The world runs on that power and we thank you. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/05/11/172-happy-mothers-day-we-celebrate-you/2/ Please follow us on Twitter @ifweknewthenPOD you can drop …

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171. Alzheimer’s Disease In People with Down Syndrome - Dr. Elizabeth Head 45:22

1+ y ago45:22

45:22

This week we had the privilege to talk to Dr. Elizabeth Head, Professor and Vice Chair for research at the University of California, Irvine in the department of Pathology. Dr. Head has published more than 150 peer reviewed papers and has dedicated over 20 years to the study of aging and Alzheimer’s disease with a focus on people with Down syndrome.…

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170. Celebrating The Life of Carl Erskine with Ted Green 1:02:25

1+ y ago1:02:25

1:02:25

The world lost pioneering Down syndrome advocate Carl Erskine on April 16, 2024, at the age of 97. Carl and his wife Betty, were involved deeply with the Special Olympics and charities which aimed at helping people with developmental disabilities such as his son Jimmy. Carl Erskine was a MLB All-Star, World Series Champion, ally of Jackie Robinson …

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169. The Annual DSDN Retreats with Ben Hughes 59:06

1+ y ago59:06

59:06

This week we are fortunate to have Ben Hughes back on the podcast to discuss the Down Syndrome Diagnosis Network’s (DSDN) annual “Rockin’ Retreats” that offer our community the connection and respite caregivers truly need. Retreat information page: https://www.dsdiagnosisnetwork.org/dsdn-retreats Dad's retreat registration page: https://form.jotfor…

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168. Liam's 14th Birthday: Sharing Some Insight 1:05:45

2y ago1:05:45

1:05:45

Our son turned 14 last weekend and in this episode we reflect on the joys, challenges and growth we've experienced together on this journey with Liam. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/03/09/168-liams-14th-birthday-sharing-some-insight/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our F…

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167. A Discussion About Using The R-Word with Lynette Louise 59:26

2y ago59:26

59:26

This week we revisit our interview with Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Neurofeedback but early on in the conversation we moved to a serious discussion about the use of the r-word and the reasons why Lynette uses it. This episode may feel a bit intense for many of you and we understa…

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166. Finding The Right Supports Without Shame - Julie Picot 1:03:42

2y ago1:03:42

1:03:42

This week we have the wonderful Julie Picot back on the show to discuss her experience transitioning her daughter, Elyse from TK to Kindergarten. We also touch upon how very often parents feel shame when guiding their school aged children out of diapers. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/02/17/166-finding-the-righ…

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165. Picking The Right Pediatrician with Dr. Ilona Kleiner 58:13

2y ago58:13

58:13

Dr. Ilona Kleiner has been both our children's pediatrician since birth. Today we discuss with her the importance of always seeing the whole child and how her care for Liam really isn't any different than that of a typical child. Dr. Kleiner's Bio: https://www.pamgdocs.com/copy-of-about-our-doctors-1 Recommend books: What’s Going on Down There? by …

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164. Charlotte and Riley: Not Taking No For An Answer 48:42

2y ago48:42

48:42

In this episode, we discuss Charlotte Fien’s path to advocacy, breaking down the barriers of education, the love story between her and her husband Riley, and how her infectious can-do attitude has influenced him to break down barriers in his own life. It is the story of two humans creating the life they want to live and never taking no for an answe…

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163. Revisiting Patience In The New Year with Maezen Miller 55:50

2y ago55:50

55:50

Happy Martin Luther King Day! We start this new year by revisiting with our friend, Zen Buddhist Priest, Maezen Miller. We discuss having patience and letting go in order for it to all unfold. Believing and having patience can enable our children to be who they are, go where they go and do what they do, to become exactly who they are. Karen Maezen …

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162. Living In The Moment and Taking the Time to Reflect On Life 8:20

2y ago8:20

8:20

Follow Stephen while he unexpectedly flies back to Louisiana due to his mother’s illness. He reflects on the importance of experiencing all of life’s moments and truly being present. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/22/162-living-in-the-moment/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a l…

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161. Down Syndrome Awareness Month 2023: Bringing Awareness to Our Community’s Potential 30:43

2y ago30:43

30:43

October is Down Syndrome Awareness Month and in this episode, Stephen and Lori discuss another angle in your next Awareness Campaign. Some of the most important people to make aware of our community's potential are educational professionals. We as parents can advocate but it just might be our children who change the minds of those in charge of thei…

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160. The Inclusive Hub: A Gym For People of All Abilities with Liam Starkey 55:17

2y ago55:17

55:17

Joining us today is Liam Starkey from The Inclusive Hub. The Hub was started in 2016 helping small groups of Autistic children around Liverpool, England take part in non-contact boxing and fitness sessions. It has now expanded and continues to empower people of all ages and abilities through exercise. Website: www.theinclusivehub.co.uk Order a tee …

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159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community 46:03

2y ago46:03

46:03

Today we are joined by Sandra Baker from the Down Syndrome Association of Los Angeles (DSALA) and Dr. Brian Skotko from the Down Syndrome Clinic To You (DSC2U) to discuss their collaboration in supporting Spanish-Speaking families that have a member with Down syndrome. DSC2U: www.DSC2U.org DSALA: www.DSALA.org DSALA Contact: (818) 786-0001 info@DSA…

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158. Best Buddies with Katelyn Quintero 1:05:38

2y ago1:05:38

1:05:38

This week we were joined by Katelyn Quintero from Best Buddies International, which is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental…

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157. Ruby’s Rainbow with Liz Plachta 1:02:14

2y ago1:02:14

1:02:14

We had such fun talking to Liz Plachta, the founder of Ruby’s Rainbow! Ruby’s Rainbow grants scholarships to students with Down syndrome who are seeking post-secondary education, including enrichment or vocational classes, and helping them achieve their dreams of higher education while spreading awareness of their capabilities and general awesomene…

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156. GiGi’s Playhouse with Nancy Gianni 1:15:43

2y ago1:15:43

1:15:43

Today, we are joined by Nancy Gianni to talk about her foundation, GiGi’s Playhouse, which provides FREE, life-changing therapeutic, educational, and career training programs for 30,000+ individuals of all ages, everyday. GiGi’s Playhouse empowers families by maximizing opportunities for daily achievement and lasting acceptance and in turn, showing…

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155. Using Your IEP to Make the Most of Middle School 58:59

2+ y ago58:59

58:59

In this episode we give an update on our son Liam, a 13-year old in middle school, and discuss how far he has come, what supports have helped us navigate his transitions into middle school and how we are helping him find the independence every teen wants to cultivate. Citizen's Of The World Middle School: https://www.cwcsilverlake.org Episode Trans…

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154. Revisiting Our Interview with Megyn Price 1:11:45

2+ y ago1:11:45

1:11:45

This is our conversation with actress Megyn Price to discuss inclusion, the importance of encouraging others to express their uniqueness and how her Uncle, who had Down syndrome, affected her family in a positive way. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/27/154-revisiting-our-interview-with-megyn-price/2/ Please f…

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153. Revisiting Jad Issa’s Story: A Man with Down Syndrome Raises a Family - An Interview with Sader Issa 45:22

2+ y ago45:22

45:22

This week we revisit the story of Jad Issa, a man with Down Syndrome who is a husband, father and respected citizen. At diagnosis, parents of children with Down syndrome are immediately told all the things their child won’t do. Jad’s life shows us that these preconceptions aren’t only untrue but the very belief in them often cause limitations. As w…

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152. Revisiting The Canadian Down Syndrome Society’s Project Understood - Training Speech Recognition Technology 57:53

2+ y ago57:53

57:53

This episode is the entire conversation we had with Matt MacNeil and Ed Casagrande from the Canadian Down Syndrome Society concerning their collaboration with Google AI to create a database that can help train Google’s speech recognition technology to better understand people with Down syndrome. Donate your voice at: https://projectunderstood.ca Le…

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151. The New York City Buddy Walk and Times Square Video with Abby Brandon-Livits and Misty Adams 54:44

2+ y ago54:44

54:44

This week we are joined by Abby Brandon-Livits and Misty Adams from the National Down Syndrome Society to talk about the 2023 NYC Buddy Walk and it’s wonderful Times Square Video presentation that redefines the image of the Down syndrome community. NYC Buddy Walk website: https://give.ndss.org/event/2023-new-york-city-buddy-walk-r/e478474 National …

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150. Down Syndrome Research, Ableism and The Right To Just Be with Dr. Eric Rubenstein 1:34:05

2+ y ago1:34:05

1:34:05

Today we're joined again by Dr. Eric Rubenstein, an Assistant Professor of Epidemiology at Boston University School of Public Health. Eric is a researcher, a volunteer for the Special Olympics and a lifelong advocate of individuals with Down syndrome. This conversation is a round table discussion of change and evolution, progress and insights that …

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149. Down Syndrome and Alzheimer’s Research with Dr. Tom Mahan 1:27:03

2+ y ago1:27:03

1:27:03

Today we're joined by Dr. Tom Mahan, who specializes in Alzheimer’s research with a focus on individuals with Down syndrome. Tom is a father of three boys and his oldest son, Teddy, has down syndrome which is what sparked him into taking his already existing research of Alzheimer’s and guiding it to a focus on individuals with Down syndrome. ABC-DS…

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148. RODS Heroes - Our Interview with Brady Murray 1:15:56

2+ y ago1:15:56

1:15:56

This week we visit with Brady Murray of RODS Heroes, an organization meant to inspire families to answer the call to adopt children born with Down syndrome and other special abilities. Brady and his wife Andrea have seven children and it was their adopted son Cooper who brought our attention to the Murray’s advocacy though his appearances throwing …

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147. T21 Coffee - Giving Back to the Down Syndrome Community - Johan Lindborg 56:09

2+ y ago56:09

56:09

In this episode, we speak with Johan Lindborg, founder of t21 Coffee. We had a beautiful conversation discussing his journey with his 12 year old son Cooper and how he has transformed from the doubts he had and the darkness he felt when receiving the Down syndrome diagnosis. It is an open and honest discussion that touches on fears to which any par…