You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.
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Jane Maree Podcasts
Jane Pike is a coach & horsewoman from the South Island of New Zealand. Her work focuses on practices and understandings that increase vitality for both humans and horses, incorporating nervous system awareness to both mindset and movement. The methods she teaches explore physical and emotional patterns at their most foundational level- the brain and the nervous system- with the aim of creating adaptability and responsiveness, both in and out of the saddle. Jane has featured and written for ...
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You’re listening to the Kingwood Kowboy’s “History Of Country Music.” I’m Larry W Jones, from Kingwood Texas and I’ll be showcasing the roots of classic and vintage Country, Cowboy, Western and Bluegrass music, with interesting commentaries on how the songs came about.
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Wisdom to replenish and orient in a tender, tumultuous time to be alive. Spiritual inquiry, science, social healing, and poetry. Conversations to live by. With a 20-year archive featuring luminaries like Mary Oliver, Thich Nhat Hanh, and Desmond Tutu, each episode brings a new discovery about the immensity of our lives. Hosted by Krista Tippett, Learn more about the On Being Project’s work in the world at onbeing.org.
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Hazmir, 42, was diagnosed with Motor Neurone Disease (MND) in February 2025, and only three months later his family rallied to raise $30,000 for Fight MND in his honour. Guided by a deep faith, he approaches his future with joy, hope, and unwavering determination. Since his diagnosis, Hazmir has become an active and passionate member of the MND com…
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Jane Simpson speaks with Richard Rawnsley about his recent MND diagnosis. Richard has decided to fight back and is currently walking the Santiago De Compostela trail, this time in France. Real stories, research, and lived experience from the MND community. A podcast for connection, awareness, and hope. You can follow Richard's journey here https://…
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Let's Talk MND - 'Finally, in Hands I Can Trust'
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42:02Dr. Karen Hutchinson, is an Honorary Research Fellow at Macquarie University and Anthea Smith whose partner, Jason, lives MND are two authors of a recently published research paper, "'Finally, in Hands I Can Trust': Perspectives on Trust in Motor Neurone Disease Care." It explores how individuals with Motor Neurone Disease (MND) build trust with he…
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Jane Goodall, In Memoriam — What It Means to Be Human
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50:51The great primatologist and humanitarian, Jane Goodall, died on October 1, 2025, at the age of 91. It is a joy and a comfort to revisit our last broadcast of her 2020 conversation with Krista. Jane Goodall began her epic work studying chimpanzees in the Gombe forest without even a college degree. The science she proceeded to do recalled modern west…
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Janet Hough was diagnosed with MND in June 2023. Janet and her husband Peter are a true team and focus on what brings them joy on their MND journey. They have started a monthly MND Mornington Peninsula group They are organising a MND Victoria - Event - Walk for a Cause - Mornington Peninsula - on October 5th at Mornington Park. You can find out mor…
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Peter Chambers was diagnosed with MND in 2019. Whilst Peter does not deny the challenges MND have given him, he is living his life with intention, joy and a seriously wicked sense of humour which he delivers to us via videos He has an alter ego, "Cranky Pete", who points out the ridiculous and things he just doesnt like. He has also recently writte…
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Let's Talk MND - Neil Dyson and Maree Stanley
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43:22In 2023, Neil Dyson and his wife, Maree Stanley, had just retired after running a successful business. Neil was then diagnosed with MND Nei and Maree take us through the story to date and how they are living as best they can with MND.By Jane Simpson
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Let's Talk MND - Firies Climb for MND, Prof Dom Rowe, Gavin Clifton, Phil Camden
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32:27The Firies Climb for MND was created in 2015 by firefighter Matt Pridham after his best friend, Adam Regal, was diagnosed with MND. After learning that there was no known treatment or cure, they became determined to join the fight to find one. Together, they pledged to raise as much money and awareness for MND as possible. All funds raised go to Pr…
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On June 22, 2023, Ron "Hobbo" Hobden's life changed in a single sentence: You have motor neurone disease. No cure. No treatment. Just a brutal countdown he never saw coming. A week earlier, the 40-year-old rugby player, devoted husband, and proud dad to Lizzie, 5, and Henry, 3, had been training for a marathon. Fit, strong, and full of plans, he ha…
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Damian Andrews was 42 years old when he was diagnosed with MND. Damian says he is going to "ride until he dies" He and his wife Jane & their 3 boys live in Hervey Bay in QLD. They are a dynamic family. Living every day the best they possibly can with MND. They are also absolute champions, raising awareness of MND through their Facebook page which y…
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Joanna Macy, In Memoriam — Beauty and Wisdom and Courage (and Rilke) to Sustain Us
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50:57This rich, gorgeous conversation will fill your soul. The singular and beloved Joanna Macy died at home at the age of 96 on July 20, 2025. She has left an immense legacy of beauty and wisdom and courage to sustain us. A Buddhist teacher, ecological philosopher, and Rilke translator, she taught and embodied a wild love for the world. What follows is…
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Dr. Christen Chisholm is a post-doctoral research fellow at the University of Wollongong in Australia where she trained in the lab of the late Professor Justin Yerbury. She recently completed her PhD which focused on the development of an antibody based BioPROTAC therapeutic to specifically reduce levels of misfolded SOD1, a toxic protein species a…
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Ross Gay is a poet, community gardener, and teacher who brings another way of wisdom to the conviction that we have to know what we love and what delights us. And that we have to tend to that as fiercely as to what is broken and what we’re called to make better, what we’re called to make more just. Knowing what we love and knowing how to take delig…
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Our teacher this time is the extraordinary Joy Harjo. She is a musician, a visual artist, a member of the Muscogee Creek Nation, and she’s also former Poet Laureate of the United States. From the beginning of her life, from childhood and even before, she has carried and retained a sense of space and time and life that is so much vaster than present…
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Our teacher and inspiration for this session is Joanna Macy. What she embodies is a wild love for the world and a fierce hope that rises irrepressible from that. And she carries and lives an important reminder to us that when we love, we will also know pain, and we will know grief that can feel too awful to bear. When we talk about the muscle of ho…
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If hope is to be defining and forceful in the world we have to remake ahead of us, we must also speak hope into being. Ocean Vuong is a fascinating and singular person. The sweep of his work is about bearing witness to the other side of violence and the possibility of joy while taking nothing away and continuing to bear witness to the fullness of w…
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In these next few sessions, we investigate some orientations and ways of being that are companions to hope. If hope is a muscle that can be exercised to become stronger and more supple, these qualities might be thought of as fascia, or the tendons — complementary ligaments that make the whole viable and sustainable. The wonderful poet Naomi Shihab …
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Victoria University are conducting a trial called "The neuroprotective potential of exercise in individuals with Motor Neuron Disease – the ProtEx-MND project". It is in collaboration with Calvary Health Care Bethlehem and received funding from the National Health and Medical Research Council (NHMRC). They would like to understand if exercise can h…
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Walter Brueggemann, In Memoriam — When the World We Have Trusted In Is Vanishing
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1:06:25The great Christian scholar of the biblical prophets died on June 5, 2025. Yet, in the lineage of the prophets who called humanity to face its hardest realities, this profound, warm, and timeless conversation is a stunning offering straight into our present. “The amazing contemporaneity of this material," Walter Brueggemann says to Krista in this c…
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A little while back, I got to chatting with Lee McLean. At the time, I'd just released a conversation about the things I turn to when the world feels hard or tense, and we were discussing how the lessons we learn with horses often translate into everyday life. I found the conversation so engaging that I asked her to come on the podcast so we could …
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adrienne maree brown — Hope Portal, Episode 2
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13:43
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13:43adrienne maree brown shines a light on an emerging ecosystem in our world over and against the drumbeat of what is fractured and breaking. She works with the complex fullness of reality to move towards a wholeness of living. In exploring the idea of hope — the meaning of it, the practice of it — it feels important to begin with someone who works to…
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Beginning today, and for the next six weeks in the On Being podcast feed and Substack, we’re opening a reflection/course experience curated by Krista and drawing upon her conversations with several visionary humans: adrienne maree brown, Naomi Shihab Nye, Ocean Vuong, Joy Harjo, Joanna Macy, and Ross Gay. Together, they extend rich and actionable i…
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Roberta Bondi — What is Prayer and How to Begin
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33:33Buried treasure from the On Being archive! Krista writes of this conversation from the earliest pre-history of On Being: In the years in which I was on a whole new spiritual and intellectual adventure that changed the direction of my life — years which led to the creation of this show — I befriended a delightful, brilliant, straight-talking theolog…
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Yochi Fischer and Loaay Wattad–On Seeing the Trauma of the Other
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1:36:42
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1:36:42This episode emerged from a private gathering in The Hague in the fall of 2024 with a small group of people who live in Israel — both Jewish and Palestinian, Jews and Palestinians who continue to share life. We’re pleased to invite you now to overhear this particular conversation, with the permission of all involved. It centered around the matter o…
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Jason Reynolds and Kessley Janvier — On Being Young In America
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1:11:43A heavy complexity is on the shoulders of the young of our species in these years — humans growing up in this time. At the same time, from the digital revolution and AI to the ecology and society, they have wisdom and instincts in their bones that will be essential if we are all to flourish and not merely survive this century. In November 2024, the…
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David Bornstein — On Our Lives with the News
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54:53
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54:53A calming and helpful conversation for making sense of the very story of our time, and how that is coming to us and being powerfully shaped through media and journalism. The theory of change of journalism as it came out of the 20th century, David Bornstein says, is that shining a light on what is going wrong — what is dangerous and dysfunctional, c…
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Katsi Cook — "Women are the First Environment"
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55:19
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55:19Katsi Cook is a beacon in an array of quiet powerful worlds — a magnetic, joyous, loving presence. The public conversation we offer up here was part of a gathering where a fantastic group of young people had come to be nourished, to explore the depths of what community can mean, to become more grounded and whole. They've taken to sitting at the fee…
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A sweet and searching conversation between Krista and the man behind Bon Iver at this year's On Air Fest, full of wisdom and revelation. He is a person who experiences deeply, who metabolizes creatively, and who just keeps growing. He opens up with Krista about the strangeness of being loved for how he put his broken heart to music. They venture in…
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On Being is back on April 16, with a special season tethered in the persistent beauty and courage of what it can mean to be human — six conversations Krista has had out in the world in recent months, followed by an experimental, seven-week reflection/action experience— Hope, Imagination, and Remaking the World — to undertake with others in your lif…
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Professor Bradley Turner is Head of the Motor Neuron Disease Group and Research Lead of the Brain Health and Repair Mission at The Florey Institute. His group has a broad research interest in neurodegenerative diseases affecting the voluntary motor system in the brain and spinal cord. His team focuses on MND. This is a very brief summary but if I s…
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In 2022, Peter's life took an unexpected turn when he was diagnosed with MND. While initially confronting, this diagnosis became a catalyst for transformation. Rising above feelings of helplessness, Peter stands as a testament to the strength of the human spirit, embracing a renewed sense of purpose: to turn his personal journey into a platform for…
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(Some) things I think about when the world is hard or tense
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49:04A few days back, I wrote a list of things that I had mused on, read, or noted down to consider when the world feels hard or tense. I shared it first on Facebook, and then when the time came for our live Q&A in my membership program, JoyRide, I decided to share it there as well. Today's episode is a repeat of that conversation. It's neither conclusi…
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Dr Rowan Hearn is the Clinical Director Palliative Medicine at Calvary Health care. Rowan supports the improvement of quality and safety in palliative care, having served as a member of the Governance Committee for the Palliative Care Clinical Network for the Department of Health, and Co-Chair of the Network's Expert Working Group for Care of the D…
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