This podcast can help anyone dealing with serious illness. Over the years, we have cared for and interviewed thousands of patients and families who tell us they felt overwhelmed and ‘in the dark’ during their illness journey. Yet we sometimes heard stories where individuals felt prepared, in control and ‘in the know.’ What was the difference between these experiences? The answer is the 7 keys. Join your hosts Dr. Samantha Winemaker, palliative care doctor, and Dr. Hsien Seow, health care res ...
…
continue reading

1
S10: Episode 113: The Future of the Revolution
25:01
25:01
Play later
Play later
Lists
Like
Liked
25:01In the final episode of Season 10, we reflect on the journey and the success of the Waiting Room Revolution. We discuss the global resonance, the importance of self-advocacy, and the creation of our community. We also introduce the Applying the 7 Keys Workbook designed to help individuals navigate the healthcare system. We also introduce the "Works…
…
continue reading
In this episode we explore the final key, “Invite Yourself,” which encourages patients and families to become respectfully assertive in their healthcare journey. Rather than waiting to be asked, individuals are empowered to speak up, ask questions, and take an active role in their care. We discuss how this mindset shift can lead to better communica…
…
continue reading
In this episode we talk about the key "Connect the Dots" - a crucial strategy for patients and families navigating complex healthcare systems. We explore how being the "illness manager" can transform healthcare experiences, the importance of having someone who can coordinate care, track medical information, and serve as the "glue" between different…
…
continue reading

1
S10: Episode 110: Anticipate Ripple Effects
27:31
27:31
Play later
Play later
Lists
Like
Liked
27:31In this episode, we dive deep into the fifth key: Anticipate Ripple Effects. We discuss how serious illness impacts not just patients, but their entire support network. We share personal stories and insights about building strong support systems, caring for caregivers, and understanding the emotional journey of those surrounding a patient. We also …
…
continue reading
In this episode we discuss the fourth key: Customize Your Order. We chat about how you can transform your illness experience from a one-size-fits-all approach to a personalized journey that truly reflects your values, preferences and unique self. We also talk about communicating what matters most to you, and why being treated as an individual-not j…
…
continue reading
In this episode of the Waiting Room Revolution, we explore the powerful third key: "Know Your Style." We discuss how understanding your unique personality can transform your healthcare experience, how learning practical strategies for navigating illness can reduce family conflict, and how knowing your style gives insight on approaching challenges. …
…
continue reading
In this episode we discuss the second key: Zoom Out. We discuss how information is a superpower, ways to get it, how to use it and how it can maintain hope all throughout an illness journey. We also discuss how everyone - patients, families, and healthcare providers - has a role in creating a more transparent, supportive healthcare experience. Our …
…
continue reading
In this episode, we discuss the first of seven keys to navigating serious illness: Walk Two Roads. We chat about breaking through toxic positivity, communicating openly about illness, reducing uncertainty and maintaining personal agency during challenging times. We share stories and experiences that people have shared with us about why constant pos…
…
continue reading

1
S10: Episode 105: When Time is Running Out
49:50
49:50
Play later
Play later
Lists
Like
Liked
49:50This episode we are talking about When Time is Running Out. We chat about demystifying dying, challenging healthcare norms, misconceptions about hospice and medical assistance in dying (MAID), how patients and families can reclaim power in their healthcare experience & much more. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diag…
…
continue reading

1
S10: Episode 104: Recap of the Waiting Room Revolution
37:01
37:01
Play later
Play later
Lists
Like
Liked
37:01Welcome to Season 10 of the Waiting Room Revolultion Podcast where we will be looking back (and forward!) to the start of it all: the Seven Keys! This episode we will be recapping the journey so far. Some topics we cover in this episode are: how the podcast has spread the movement around the globe, how our book Hope for the Best, Plan for the Rest …
…
continue reading
In this episode we chat with Ruth Richardson, a seasoned hospice palliative care nurse educator who has dedicated her career to empowering patients, families, and healthcare providers through her compassionate and holistic approach. She shares her strategies for breaking down misconceptions about palliative care, equipping patients to advocate for …
…
continue reading
This episode features our conversation with Tilly Stevens, a health and well-being coach from New Zealand. We chat about her work with Coping with Loss and her training as an end-of-life doula. She tells us about the challenges in New Zealand's palliative care system, including funding and variability in services, her experiences with resilient gri…
…
continue reading
This episode features our conversation with Catherine Cummings, CEO of the International Alliance of ALS and Motor Neuron Disease Associations. We chat all about ALS- the challenges of diagnosis, the economic impact on patients and caregivers and the variability in care quality globally. Catherine shares her personal experience as a caregiver. To l…
…
continue reading

1
S9: Episode 100: Bill Harder, Theresa Radwell & Penney Gaul
40:59
40:59
Play later
Play later
Lists
Like
Liked
40:59This episode features our conversation with Bill Harder, Theresa Radwell and Penney Gaul from the Palliative Care Society of the Bow Valley in Alberta. We discuss the society's mission to provide quality-of-life support through holistic care, emphasizing community partnerships and volunteer-driven initiatives. They highlight innovative programs lik…
…
continue reading

1
S9: Episode 99: Dr. Barbara (Bunni) Bresver, Dr. Roz Doctorow & Peter Macaulay
37:13
37:13
Play later
Play later
Lists
Like
Liked
37:13This episode features our conversation with Dr. Barbara (Bunni) Bresver, Dr. Roz Doctorow & Peter Macaulay from Dying with Dignity Canada- Toronto Chapter. We chat about the mission and work of Dying with Dignity Canada, which focuses on protecting end-of-life rights, advocacy, support, and education for Canadians. We also chat about how the genera…
…
continue reading
This episode features our conversation with Laura Cleminson, a community organizer and founder of the Pre Dead Social Club. We discuss her journey from working in a medical device company to becoming a death doula, and the importance of preparing for death through community engagement and education by hosting events to foster open discussions. To l…
…
continue reading
This episode features our conversation with Dr. Zachary White, Professor of Communication in the Department of Communication Studies at Furman University in South Carolina. We discuss his journey into caregiving research and advocacy, challenges and insights into caregiving communication and how healthcare providers can navigate uncertainty to be p…
…
continue reading
This episode features our conversation with Sheli O'Connor, Director of Community Engagement and Partnership at Hospice Waterloo Region. We discuss her passion for community development, the importance of continuous community engagement in healthcare and in advance care planning to empower individuals in healthcare decisions, and innovative communi…
…
continue reading
This episode features our conversation with Clare Fuller & Dani Ayre, Advance Care Planning Experts and advocates from the UK. We discuss how they organized a conference for Advance Care Planning in the UK earlier this year, public awareness and empowerment. Learn more about Clare's work on her website: https://speakforme.co.uk/ Our theme song is M…
…
continue reading
This episode features our conversation with Dr. Karen Wyatt, Medical Director, Author and Founder of End-Of-Life University. We chat about Karen's clinical practice and personal tragedy, her transition into hospice care and reflections on healing, writing and community building. Learn more about the EOL University here: https://www.eoluniversity.co…
…
continue reading
This episode we chat with Dr. Julien Abel, retired palliative care physician, Director of Compassionate Communities UK, author and podcaster. In this episode we talk about what compassionate communities are, what a public health palliative approach looks like and what community support of serious illness should look like. To learn more about Compas…
…
continue reading
This episode we chat with Dr. Diah Martina, an internal medicine doctor in Indonesia. Diah also has per PhD focusing on culturally sensitive advance care planning in Asia. In this episode we talk about what culturally sensitive palliative care looks like in Indonesia, what her research has shown about adapting conversations about dying and planning…
…
continue reading
This episode features Dipti Purbhoo, Executive Director of the Dorothy Ley Hospice, one of Ontarios oldest Hospices. We chat about the synergy between hospice services and the Waiting Room Revolution, innovative ways hospices partner with community agencies and how Dororthy Ley Hospice is working to be truly integrated upstream in an illness journe…
…
continue reading
This episode features our conversation wtih Lisa Levin, CEO of Advantage Ontario. We chat about how Advantage advocates for seniors quality of life, housing policy that promotes aging in place and what other countries are doing to innovate aging. Learn more about Advantage Ontario here: https://www.advantageontario.ca/ For more information visit: w…
…
continue reading
Happy Caregivers Month! This episode features our conversation with Amy Coupal, the CEO of the Ontario Caregiver Organization. We chat about the services and resources OCO offers, Amy's own caregiving experience and the essential role caregivers have within the healthcare system. Learn more about the Ontario Caregiver Organization here: https://ont…
…
continue reading

1
S8: Episode 88: Kelly Clark & Eliza Munro
49:09
49:09
Play later
Play later
Lists
Like
Liked
49:09This episode features our conversation with Eliza Munro and Kelly Clark, who are palliative care educators and consultants on IPEPA. IPEPA stands for Indigenous Program of Experience in the Palliative Approach, which is a grass roots approach to breaking down barriers to palliative care for Aboriginal and Torres Strait Islander peoples across Austr…
…
continue reading
This episode features our conversation with Daniel Nowoselski, Advocacy Manager for Hospice Palliative Care at the Canadian Cancer Society. We discuss being a lobbyist for the palliative care community, policy issues and challenges in the health care system that the Canadian Cancer Society are trying to address, where his passion for palliative car…
…
continue reading
This episode features our conversation with Dr. Kerrie Noonan, clinician psychologist, social researcher, founder and innovator. We talk about death and grief literacy in Australia and around the world, what it is and why it is important and how it really is a community endeavor. Learn more about Kerries work here: https://www.deathliteracy.institu…
…
continue reading
This episode features Dr. Red Hoffman, a trauma surgeon who is board certified in hospice and palliative medicine from Asheville, North Carolina. We talk about her upcoming TEDTalk, her life experiences and how she got to where she is now and experiencing emotions as a surgeon alongside caring for your patients. Learn more about Reds work here: htt…
…
continue reading
This episode features the Hon. Lisa Raitt, former Cabinet Minister and Member of Parliament from 2008 to 2019 and caregiver to her husband Bruce. Bruce was diagnosed with young onset Alzheimer's disease during the pandemic. We talk about their experience with diagnosis, how the seven keys can be used for caregivers and what policies can help caregi…
…
continue reading
This episode features our conversation with Dr. Kimberly Acquaviva, a professor at the University of Virginias School of Nursing. Kimberly is the author of The Handbook of LGBTQIA-Inclusive Hospice & Palliative Care. We discuss her very personal story of losing her wife Kathy to ovarian cancer and how that shaped her advocacy and how we can provide…
…
continue reading
In this episode, we chat with Laura Watts: Founder and CEO of CanAge, author, laywer and advocate. She is also an Assistant Professor at University of Toronto where she teaches Law and Aging. In this episode, we discuss CanAge, advocacy in senior patients and families at the policy and individual level, motivation behind her book and aging well aro…
…
continue reading
This episode features our conversation with Clare Fuller, a Registered Nurse with a passion for advance care planning. Clare owns Speak for Me a Lasting Power of Attorney consultant service in the UK. She is also the host of the Conversations about Advance Care podcast. We talk about what shes learned from hosting her podcast and some of the tools …
…
continue reading
This episode features our conversation with Dr. Christian Ntzimira. Christian is a palliative care physician, Founder and Executive Director of African Centre for Research on End of Life care. He also published a book called The Safari Concept: An African Framework for End of Life Care that uses animal metaphors to characterize patterns of a family…
…
continue reading
This episode features our conversation with Dr. Susan Cadell. Susan is a professor at the University of Waterloo in the Department of Social Work. She is a researcher who focuses on positive aspects of stress and coping including post traumatic growth. Today we chat about her research, memorial tattoos and grief including grief after Medical Assist…
…
continue reading
In this episode, we chat with Jia Ying Tay. Jia Ying is an end of life doula based out of Singapore and the founder of Happy ever after, a service that connects with and support individuals directly in end of life planning. She also served as a co-creative producer of an arts based community engagement project called Both Sides Now. We talk about h…
…
continue reading
This episode features our conversation with Dr. Jared Rubenstein. He is a pediatric palliative care doctor and medical educator from Houston, Texas who creates animated videos to provoke discussion around challenging topics in healthcare, especially palliative care. We chat about how his videos connect with the upstaream messages of the Waiting Roo…
…
continue reading
This episode features our conversation with Kristin Flanary a.k.a. Lady Glaucomflecken on Social Media. She is a co-host on the podcast Knock Knock Hi with her husband Dr. Glaucomflecken. Kristin advocates for caregivers and co-survivors of medical trauma, and patient caregiver centered care. We chat about the origin story of the Glaucomflecken nam…
…
continue reading
This episode features our conversation with Laurel Wittman, president of the Well Spouse Association. Laurel focuses on supports for younger, well spouses. We chat about her experience as a caregiver for her husband Eduardo, who has Multiple Sclerosis, what their journey has been like and what has saved her life. To learn more about the Well Spouse…
…
continue reading
This episode features photographer Stephen Starkman. This episide is a combination of two different conversations had a few months apart as we speak with Stephen about his journey with small cell lung cancer. We explore what its like to live with a life- limiting illness that will progress and the importance of being in the know. For more informati…
…
continue reading
This episode features social worker Joanna Vautour. Joanna is Anishinaabe and a band member of Serpent River First Nation. She is passionate about trauma informed care and transforming the healthcare system to provide culturally safe care for everyone. We discuss this in this episode alongside strengthening palliative care in Indigenous communities…
…
continue reading
This episode features Jeremie Saunders, speaker and co-host of the popular CBC podcast: Sickboy. Jeremie lives with Cystic Fibrosis and is committed to educating and changing the conversation about what its like to live with a serious illness. We discuss his podcast, Cystic Fibrosis and the new medications available that have changed his life. We a…
…
continue reading

1
S6: Episode 71: Sara Fung & Amie Archibald-Varley
38:21
38:21
Play later
Play later
Lists
Like
Liked
38:21This episode features our conversation with Amie Archibald-Varley and Sara Fung, co-hosts of The Gritty Nurse podcast! Amie and Sara are nurses, speakers and advocates for the nursing profession, anti-racism and health system change. We chat all about nurses and the nursing profession, the reasons for the nursing crisis and the critical role of nur…
…
continue reading
This episode features our conversation with Dr. Heather Richardson, policy lead at St Christophers Hospice in South London, UK. We talk about the current and future state of hospice care and how hospices can follow a public health approach and become connectors in the community. Pre orders are available now for our book Hope for the Best, Plan for …
…
continue reading

1
S6: Episode 69:Jennifer Klassen, Shannon Reimer & Dr. Cornelius J Woelk
45:15
45:15
Play later
Play later
Lists
Like
Liked
45:15This episode features our conversation with Jennifer Klassen, Shannon Reimer and Dr. Cornelius J Woelk, all providers working with Southern Health- Sante Sud in Winnipeg, Manitoba. We chat about how they have used the seven keys in their work in the community. Pre orders are available now for our book Hope for the Best, Plan for the Rest: 7 Keys to…
…
continue reading
This episode features our interview with Dr. Leeroy Williams, a palliative care physician practicing in Melbourne, Australia. We chat about the differences between Australia and Canada, how people are cared for in Australia and how anyone can turn a consultation into a conversation. We have some exciting news to share! The wait is (almost) over! Pr…
…
continue reading

1
S6: Episode 67: Erin Galyean & Jennifer O’Brien
45:26
45:26
Play later
Play later
Lists
Like
Liked
45:26This is our last double header innovation episode of the season! Our first guest is Erin Galyean, author of Badass Advocate. She's a pharmaceutical sales trainer by day and a caregiver advocate by night. She shares some amazing tips on how to be persistent and respectful. Our second guest is Jennifer O'Brien, author of The Hospice Doctors Widow. We…
…
continue reading
This episode features our interview with Tracey Human and Bob Parke. Tracey is a pain and symptom management consultant who provides education and palliative care in the community. Bob is a bioethicist consultant. We chat about how the 7 keys can apply to individuals with an intellectual or developmental disability and their families and how to ach…
…
continue reading
This episode features our interview with Dr. Kathy Kortes-Miller, Associate Professor in the Department of Social Work at Lakehead University. We chat about her book, 'Talking About Death Won't Kill You' and about her latest project, a podcast called Disrupting Death, which focuses on Canadians sharing their experiences with Medical Assistance in D…
…
continue reading

1
S6: Episode 64: Bev Foster & Sheli O’Connor and Julie McIntyre
45:22
45:22
Play later
Play later
Lists
Like
Liked
45:22This is another double header innovation special! Our first guest is Bev Foster, co-founder of The Room 217 Foundation. We chat about the healing power of music across cultures and how each of us can bring music into our work. Our second guests are Dr. Julie McIntyre and Sheli O'Connor, who are teaching an education course called Last Aid, designed…
…
continue reading