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SCD Stories

South Central PA Sickle Cell Council, Dwayne Golden

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"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities. Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities. Through these stories, we aim to shed light on the ...
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John and I talk about some movies we just don't think are happy endings. From mommas boys, wrong love interests and lots more. I had lots of fun. Many of the movies we talk about you should be able to find on YouTube. Of course there are spoilers, if you have seen these flicks I wonder if you agree.. Thanks so much to John. He's the best. Thanks to…
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Joel was such a great guest. He has great stories about his dad, who was the only agent to receive an Emmy award, and Normans gallery of star clients, Natalie Wood, Kim Novak, and many more. Joel talks about his own interactions with so many old Hollywood greats. Joel truly was and is mega FAB!! There is so much we didn't get to talk about so Joel …
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Host: Dwayne Golden Guest: Marilyn Jackson, grandmother, vegan chef, and sickle cell disease advocate Discussion on the prevalence of sickle cell disease globally and its limited awareness in the United States Marilyn’s experience after her grandson's sickle cell diagnosis, and the medical journey that followed The need for increased education and …
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John's latest book is a lot of fun. He chose some great performances that got no love from The Academy. We discuss some of my faves, including one of my autumn Halloween faves, Rosemary's Baby. Why he thinks Mia should have gotten a nod for her Rosemary..As a PS. She got served divorce papers from Frank Sinatra while on the set..OUCH! I had a great…
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Caroline and I discuss her informative and fun read Crazy Old Ladies: The Story Of Hag Horror. We talk Joan, Bette, the fascinating genre, and all our other beloved babes doing their best to horrify and entertain us. I had lots of fun. Thanks so much to Caroline. She was great and loves my girl Joan! Mostly thanks to you, the listeners. I so apprec…
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I talk to Dwayne Epstein about his book Killin' Generals..It's all great info on al, things behind the scenes. We talk about the actors like Lee Marvin, Charles Bronson, Jim Brown and the whole gang, and so much more.. Thanks so much to Dwayne for coming on the show and mostly to all of you that listen. You are the best!! Grace xo You can get the b…
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Today's guest is award-winning author Anthony J. Mohr who talks about his book, Every Other Weekend, Coming of Age with Two Different Dads. We talk about the contrasting lifestyles of Anthony's two fathers. One a movie/tv star, the other a successful business man.He tells of his families relationships against the backdrop of glamorous Hollywood and…
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Boze is wonderful as usual and we talk about his 29th (wowsa)book.. Game Show Confidential... We talk the early scandals, up to today. Thanks so much to Boze for coming on the show..You are a doll.. Mostly Thanks To You All For Listening, Grace xoxo Boze author page https://www.amazon.com/stores/Boze-Hadleigh/author/B000APSH3M?ref=ap_rdr&store_ref=…
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Stone Wallace is back for our year 3 Spooktacular. We talk about great old classic TV scary shows like Thriller, Alfred Hitchcock hour and much more. We also talk about some scary old TV movies. A lot are cheesy deluxe but fun..no blood no gore..My kind of stuff.. Stone also has a new book out called Playground Of The Dead..It's spooktacular!! Than…
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Stone Wallace is back for our year 3 Spooktacular. We talk about great old classic TV scary shows like Thriller, Alfred Hitchcock hour and much more. We also talk about some scary old TV movies. A lot are cheesy deluxe but fun..no blood no gore..My kind of stuff.. Stone also has a new book out called Playground Of The Dead..It's spooktacular!! Than…
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I fell in love with Eve at first chat. She is fun and boy does she know classic Hollywood. We talk about her fab new book and all about Lupe. Forgive if I say Lup AAAAA if its Lup EEEEE. You say tomato I say tomahhtoo (actually I say tomato). Eve has written a bunch of old Hollywood bios. You can check out Lupe, and others on Eve's amazon page. htt…
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Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children. Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT. Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs. Lack …
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Allan Pratt is the author of "Hope and Destiny," a book about sickle cell disease that aims to educate patients, families, and clinicians about the disease. The book was inspired by a lack of services for sickle cell patients in 1985 and was started by a mother who wanted to get a clinic started at Grady Hospital. The lack of education about sickle…
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Hope and Destiny is available at: https://www.amazon.com/ https://hpcinternationalinc.com/bookstore Lewis Hsu co-authored "Hope & Destiny" with Allan Platt Jr. and James Eckman. The book aims to provide comprehensive education about sickle cell disease and accurate information about treatment regimens, medications, and medical insights to help pati…
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Destiny Van Sciver is the author of "Sickle Cell Superheroes" and a mother of a child with Sickle Cell Disease. She wants her book to empower people with the disease to live a good quality life and be the superhero of their own story. After her child had a negative experience at school, she donated books to the school. Her book is available on Amaz…
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Hilton Publishing Co. specializes in health-related content. They collaborated with doctors to publish their first book on Sickle Cell Disease called "Hope & Destiny." The company has since published several other books on Sickle Cell Disease. Their mission is to make these books available to patients through medical providers and hospitals. Intere…
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Synopsis: In this episode, host Dwayne Golden speaks with sickle cell warrior and advocate Shyala Pelmon about what it means to live well with sickle cell disease. Charlotte shares her perspective on the importance of taking care of oneself through regular doctor visits, medication, and self-care practices, while also accepting and being at peace w…
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Dwayne Golden interviews Sickle Cell Disease advocate and patient, Michelle Par Michelle shares her experiences growing up with Sickle Cell Disease and feeling different from her peers The difficulty of getting others to understand the severity of her pain and the importance of having a support system in place Michelle emphasizes the need to mainta…
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Erica Whitherspoon talks about her experience living with Sickle Cell on the SCD Stories podcast. Her parents didn't know much about the illness She was not able to do things like swimming in a cold pool and was always labeled as "the sick one." With the help of three supportive friends, she got through her teenage years. Erica feared being misjudg…
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I speak to the fabulous Julian David Stone about his best selling book in film industry genre, It's Alive! It's a historical novel on the drama it took to finally get Frankenstein to the silver screen. Yes, it's a novel, but all people are real, and tons of great true info on all the peeps. The dialogue was added in to make it a great read. It's a …
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HAPPY THANKSGIVING EVERYONE!!!! This is the forget the football Thanksgiving show. I have the ultra fab, fun, adorable, and classic film expert Steve Hayes from the wonderful YouTube channel Tired Old Queen At The Movies. We discuss fun films with such wonderful sultry, noir vixens.. We had so much fun and have a yak a thon. These are such fun film…
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This is the forget the football Thanksgiving show. I have the ultra fab, fun, adorable, and classic film expert Steve Hayes from the wonderful YouTube channel Tired Old Queen At The Movies. We discuss fun films with such wonderful sultry, noir vixens.. We had so much fun and have a yak a thon. These are such fun films and the women are SO BAD.. I w…
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I had a wonderful time talking to Burt about the Reel AND Real life tough guy Lawrence Tierney. Lawrence was a fascinating man, who could recite poetry, knew all the classics, and was a brawler with multiple arrests. Was he bad to the bone, just b b bad, or misunderstood? His career spanned decades, with lots of droughts in between. Grab a cup of j…
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Stone and I continue our discussion on a couple horror films from each decade 1920's til today..Not much on today's films because in my opinion they aren't that great. We get our Siskel and Ebert on.. HA!! We planned on an hour, but we can yak! Thanks so much to Stone for being my spooktacular guest. He does his Bela Lugosi and Peter Lorre imatatio…
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Stone and I discuss a couple horror films from each decade 1920's til today..Not much on today's films because in my opinion they aren't that great. We get our Siskel and Ebert on.. HA!! We planned on an hour, but we can yak! Thanks so much to Stone for being my spooktacular guest. He does his Bela Lugosi, Peter Lorre, and he sings us out with Mons…
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Here we go again!! Fingers crossed this posts everywhere. Its supposed to finally fixed. I have sent this show out so many times. The fabulous Rachel emailed me that none of my shows had been loaded to other podcast hosting sites. If this goes through I will fill you in later. Thanks so much RACHEL!!! show description I found the delightful Brian w…
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This is my fifth time trying to post. The fabulous Rachel emailed me that none of my shows had been loaded to other podcast hosting sites. If this goes through I will fill you in later. show description I found the delightful Brian while I was searching for info on a really creepy B flick, Stark Fear. When I found the blog I spent a couple hours re…
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I found the delightful Brian while I was searching for info on a really creepy B flick, Stark Fear. When I found the blog I spent a couple hours reading Brian's reviews and behind the scenes info. I had watched the Misfits when I was much younger and did not like it. Now that I'm older, know more about the actors, and life I was deeply moved. Clark…
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My friend Alexis Hunter is back. Did I ever tell you we were really friends?? HA!!!! Alex's book has been reissued with a new chapter and great pics of her and Joi. WE discuss the silicone injections that helped kill Joi, and the horrible face and body trends that have people running to unsavory "Doctors" and sometimes paying the ultimate price. Bi…
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I talk to Jerome Charyn, about his Book Big Red. Its fiction, but so much in non fiction. Our narrator is Rusty, a lesbian that just loves her some corduroy pants. Harry Cohn Asks Rusty to become Rita's private secretary, but really to spy on Orson and Rita. True talk about their marriage, the making of The Lady From Shanghai, renting Errol Flynn's…
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I missed you all!!! My bud John and I did a 75th anniversary tribute to movies from 1947. They vary from Santa, an angel and a ghost, turning back the clock, plus some noirs.. I had so much fun being back and being with John. John's author page https://www.amazon.com/John-DiLeo/e/B001HMLJB4?ref=sr_ntt_srch_lnk_1&qid=1662054501&sr=8-1 John is making…
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Sloan and I talk about a mutual deceased dreamboat Tom Conway. Tom is indeed George Sanders brother, and people behind their backs called him the nice George Sanders. George was fab in all his films. No one played a better cad. There is barely any info on Tom, but we got some. He was always good in his films, even stinkers like The Bride Of The Gor…
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Yes, It's really Rico..Took a bit but it's worth it.. This is a great tale of a guy from Brooklyn, that wanted to be a DR. He moved to L.A. and became a cardiologist and ended up starring in Frank And Ava. You will love Rico...I love that name. He is adorable. We also talked about how playing an icon that everybody knows, and loves is not easy. I b…
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April and I finish our stage mothers podcast with Natalie Woods pushy and sometimes incredibly cruel, mother Maria. She pushed Natalie all the way. We also countdown from the not so bad to the really bad. Will you agree with our choices?? Thanks so much to Deborah for giving me the idea. We loved doing it. Also thanks to my podcast series partner i…
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April and I talk Mother Rose. She was a pushy broad and they truly lived a gypsy lifestyle. Baby June who later became Dainty June ran away with a boy from the troupe at 13, we are not sure of real age. Mama June may have been involved in two murders, and definitely one attempted murder on Junes boy husband..Luckily the gun jammed..and there were n…
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April was the bees knees taking us through Judy's horrible childhood, from the family being run out of TOWNS, because of her fathers indiscretions with teen boys. Ethel's unrelenting push to make Judy a star. I was kind of low key. I had no idea why. I took Advil before show because I wiped out. After podcast I discovered I took Advil PM by mistake…
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On our stage mom series we get to Mrs Temple. She again wore the pants in the family. Mr Temple was besieged by women wishing he would plant his seed (so to speak) in their garden, so they could have their very own Shirley Temple to make a star. Gertrude was not too keen on the idea. Gertrude pushed her little trooper all the way. Shirley was preco…
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April and I talk Betty Grable Stage mother Lillian. Lillian had Betty enrolled in dance school at three. She was in talent shows, and God forbid she came in second. Lillian was one pushy broad that wanted stardom for herself (as most stage moms do) but pushed Betty to be a star. Thanks so much to April for doing this series with me. www.classicblon…
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First of all Happy Late Mom's day! I was at family reunion so no computer. Was supposed to post this Sunday.. April and I do part 2 of Stage Moms. Today we talk about Ginger Rogers mom Lela. She would do anything to make her daughter a star, and she did. Ginger as we all know was amazingly talented, she trusted her Lela and Lela was not only her mo…
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April and I are doing series on stage moms. Today we talk Jean Harlows Mother Jean. M Jean loved The Baby, but also wanted to be a star in her own right. It just didn't happen so the baby became a huge star and paid for all her moms bills and for her sleazoid stepfathers as well. Shouldn't a mooching step dad of a star look like a million in his fa…
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I wanted to do this before this years Academy Awards, but timing was off. Me waiting gets us to talk about Will Smith, smacking Chris Rock in the kisser. There are a lot of interesting tidbits through the years. Hear who John Wayne wanted to drag off the stage Fun listen.. Thanks so much to John for doing this discussion with me. Please check out h…
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I talked to dear David Selby. WE talked playing the meanie Scrooge with all the wonderful Dark Shadow's cast..Even Who Is Victoria Winters?? Was on too. Lots of fun. We talked so much more and as always David Was FABU!! Much thanks and love to David. A Christmas Carol https://www.youtube.com/watch?v=AWUmihz0F6M The Share, with David And Susan Sulli…
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Lance was fab, and I am so intrigued to see how this musical captures the life that was Frances. I heard a couple songs and they were amazing. Lance was kind enough to offer my listeners a 25% discount. This is Off Broadway so the cost of tickets are not through the roof. If you are in the try state area, or visiting I'd check it out. All you have …
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Joseph was fabulous and fun. We discussed his friendship with Marlon Brando, whom I found to be very sweet. He Met Gregory Through Greg's son Anthony Peck. He has wonderful about the both of them. Their curiosity towards each other, and so much more. His dinner party with Marlon, Warren Beatty, Anthony's first time meeting Marlon and so much more. …
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I talk to the warm, wonderful showbiz gal, Ruta Lee. Ruta wrote a book called Consider Your Ass Kissed..Love that title. Ruta and I taped this just after New Years But As you hear in the beginning we could not salvage the first 6 minutes. Three different people tried but nope, so I am going to go ahead, they did what they could...Thanks guys.. with…
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I talk to my pal John DiLeo. His new book is wonderful. It's amazing how little time these performers had on screen, but they make HUGE contributions to films. WE did about ten...starting with Elsa Lanchester in her appearance (and it wasn't even close to ten minutes and five seconds) in The Bride Of Frankenstein. It's an iconic role and that film …
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Hey, I have a lot of older podcasts that I'm push forward to make it easier for you to get to some of my oldies but goodies. This was done with my partner in Classic Hollywood Series is the fabulous April VeVea.. I love me some Frank and Ava Got some great stuff coming out!! Much Love, Grace Catch on iTunes, Spotify and anywhere podcasts are played…
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I had a great time talking Linda Darnell with Janet from her fab blog, Sister Celluloid. I love Linda, as does Janet and am is glad we did a podcast on her. Find out about her life, her very oddly timed premonition and so much more. Thanks so much to Janet, she was a lot of fun. https://sistercelluloid.com Mostly thanks to the listeners. I love you…
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