CReATe Connect podcasts are short recorded interviews on topics we hope will be of interest to patients with ALS and other motor neuron diseases.
…
continue reading
Create Consortium Podcasts
Feeding Does Matter is a podcast dedicated to shedding light on pediatric feeding disorder (PFD) and avoidant/restrictive food intake disorder (ARFID). Join us as we explore the complexities of these conditions, share the latest research, and provide valuable resources for parents and caregivers. Through expert interviews, personal stories, and actionable advice, we aim to create a supportive community where every child with feeding and eating differences can thrive. A PFD and ARFID guide fo ...
…
continue reading
Equity is about eliminating difference-based (race, gender, etc.) outcome gaps so that these differences do not predict one's success. Join Tennessee Diversity Consortium Executive Director, Robert Wilson, as we elevate model practices for improving equity within Middle TN.
…
continue reading
The official podcast of the American Dream Employment Network, or ADEN. ADEN is an administrative EN – a consortium of service providers and employers working together to create a path for individuals with disabilities, who are currently receiving Social Security disability benefits, and want to return to, or begin working for the first time. ADEN is an approved Employment Network operating under Social Security’s Ticket to Work program.
…
continue reading
The Spin is a weekly one hour podcast featuring women of color talking policy, social justice, race, sex, gender, power, love. It's a pioneering podcast led by award winning international journalist ESTHER ARMAH. We air in the US, Ghana, London. The Spin rostrum mixes the brilliance of activists, organizers, academics, journalists and artists to create engaging, dynamic, powerful podcasts. This is a global production team led by Esther Armah. It combines and includes Starr FM radio in Ghana, ...
…
continue reading
Join The PILS Project’s team for To Be Fair NI - the first-ever PILS podcast series about the life-changing legal cases that create positive impact, not just for one person, but for communities across Northern Ireland.
…
continue reading
Revenue By Design Revenue by Design, led by Dionne Mejer, is more than just a consulting, coaching, and advisory firm—it’s a movement dedicated to helping sales professionals and leaders achieve lasting success. With over 25 years of experience in sales, tech, professional services, and coaching, Dionne has built a reputation for bringing people, processes, and technology together in a way that drives unapologetic success. In addition to leading RbD, she spearheads a prestigious consortium o ...
…
continue reading
Education is at the heart of making the world a better place. Education has always needed technology, but the technology landscape is getting more and more complex. Imagine if you had to license pencils or paper to use in schools, or be forced to use specific paper from one company so that they could see everything you wrote. Education technology is too important to rely on profit-driven market dynamics. This podcast shines a light on key people and projects working around the growing field ...
…
continue reading
In depth podcast and photo blog sharing birth stories, transformative journeys, people and information to better our understanding of the wise traditional wisdom of pregnancy and birth. Australia & worldwide this podcast shows the intimate and ancient patterns of our stories and how birth ultimately transforms us and those around. Dive in to our journeys and seek the rich wisdom of how birth can shape you. Teamed up with resources, photos and links to keep you informed and surrounded by a su ...
…
continue reading

1
From Prematurity to Adulthood: Supporting a Young Adult with Feeding Challenges
34:24
34:24
Play later
Play later
Lists
Like
Liked
34:24In this episode of Feeding Does Matter, host Jaclyn Pederson speaks with Denise Hoffman, a mother and occupational therapist, about her personal journey with feeding challenges faced by her son, who was born premature and is now 24 years old. They discuss the impact of personal experience on professional practice, supporting a young adult navigatin…
…
continue reading

1
From Consortium to Podcast: Feeding Does Matter One Year Anniversary
1:08:55
1:08:55
Play later
Play later
Lists
Like
Liked
1:08:55In this special one-year anniversary episode of Feeding Matters, hosts Jaclyn Pederson and Hayley Estrem celebrate one year of impactful conversations centered around patient and family-centered care in the context of feeding differences and disorders. They are joined by leaders from the Family-Centered PFD Research Consortium to discuss the consor…
…
continue reading

1
CReATe Author Series Ep. 16 - Dr. Johnathan Cooper-Knock on Exercise and ALS
19:21
19:21
Play later
Play later
Lists
Like
Liked
19:21Dr. Johnathan Cooper-Knock is a neurologist and clinical lecturer at the University of Sheffield. His research focuses on genetic causes of ALS. Here he discusses his recent publication “Extreme exercise in males is linked to mTOR signalling and onset of amyotrophic lateral sclerosis”.By CReATe Consortium
…
continue reading

1
Pediatric Dentistry for Medically Complex Children
35:42
35:42
Play later
Play later
Lists
Like
Liked
35:42Host Jaclyn Pederson speaks with Dr. Lisa Bienstock, a pediatric dentist and event chair for Feeding Matters' upcoming Feed the Cause signature event and fundraiser. They discuss the importance of positive dental experiences for children, especially those with feeding differences. Dr. Bienstock shares her journey into pediatric dentistry, emphasizi…
…
continue reading

1
Navigating Feeding Challenges with Down Syndrome
50:13
50:13
Play later
Play later
Lists
Like
Liked
50:13In this episode, guest Talia Laughter has a heartfelt conversation about her family's journey with feeding challenges, particularly focusing on her daughter who was born with Down syndrome. Talia recounts the struggles they faced, including hospitalizations, feeding therapy, and the importance of advocacy and community support.…
…
continue reading
Here we review Zinc supplements as a treatment for ALS. These are inexpensive, reasonably safe at certain doses, and are easy to acquire. They have plausible mechanisms by which they could slow ALS progression. However, the data from people living with ALS is not very convincing yet.By CReATe Consortium
…
continue reading

1
Standardizing Feeding Assessment Practices
48:22
48:22
Play later
Play later
Lists
Like
Liked
48:22Guest Dr. Amy Delaney shares insights on texture analysis and the development of a texture framework to standardize feeding assessment practices. Dr. Delaney also discusses the importance of research in understanding feeding development, the need for normative data in the field, and the significance of guidelines for caregivers and pediatricians.…
…
continue reading

1
Advancing Preventative Care in Pediatric Feeding Disorders
38:08
38:08
Play later
Play later
Lists
Like
Liked
38:08Dr. Jeanne Marshall, a speech pathologist and researcher specializing in pediatric feeding disorders, discusses her journey into the field, her work at the Tucker Box Feeding Research Lab, and the various research projects aimed at improving preventative care and diagnostics in pediatric feeding disorders. The discussion also highlights the importa…
…
continue reading

1
Reflections & Takeaways from the Live Feeding + Eating Psychology Summit Event
24:39
24:39
Play later
Play later
Lists
Like
Liked
24:39Hosts Jaclyn Pederson and Hayley Estrem reflect on the live event for the Feeding & Eating Psychology Summit, discussing key takeaways such as, the need for individualized care, and the significance of language in treatment. They emphasize breaking down silos between different fields and fostering community engagement to improve research and suppor…
…
continue reading

1
Reduction in Feeding Problems Following a 12-Week Interdisciplinary Group Feeding Intervention - Psych Summit Session Sneak Peek
38:04
38:04
Play later
Play later
Lists
Like
Liked
38:042025 Psych Summit Session: Reduction in Feeding Problems Following a 12-Week Interdisciplinary Group Feeding Intervention presented by Olivia Hsin, PhD; Ayala Ben-Tall, PhD. During this Psych Summit Session Sneak Peek episode of Feeding Does Matter, Olivia Hsin and Ayala Ben-Tall discuss feeding psychology and the importance of interdisciplinary ap…
…
continue reading

1
Food Allergy and ARFID: An underrecognized clinical complication and conceptual treatment framework - Psych Summit Session Sneak Peek
27:21
27:21
Play later
Play later
Lists
Like
Liked
27:212025 Psych Summit Session: Food Allergy and ARFID: An underrecognized clinical complication and conceptual treatment framework presented by Kaitlin B. Proctor, PhD, ABPP. During this Psych Summit Session Sneak Peek episode of Feeding Does Matter, Kaitlin Proctor discusses the complexities of feeding issues, particularly in relation to ARFID and foo…
…
continue reading

1
Preparing for NICU Discharge & Prioritizing Curiosity and Safety in Feeding Therapy - Psych Summit Session Sneak Peek
38:59
38:59
Play later
Play later
Lists
Like
Liked
38:592025 Psych Summit Micro Keynotes: Preparing for NICU Discharge presented by Vincent C. Smith, MD, MPH, and First Things First in Feeding Therapy: Prioritizing Curiosity and Safety presented by Marsha Dunn Klein, OTR/L, MEd FAOTA. During this Psych Summit Session Sneak Peak episode of Feeding Does Matter, Vincent C. Smith and Marsh Dunn Klein discus…
…
continue reading

1
Responsive Feeding Therapy for Children with Paediatric Feeding Disorder: Research Insights and Clinical Applications - Psych Summit Session Sneak Peek
44:07
44:07
Play later
Play later
Lists
Like
Liked
44:072025 Psych Summit Session: Responsive Feeding Therapy for Children with Paediatric Feeding Disorder: Research Insights and Clinical Applications presented by Valerie Gent, BSpPath, MMedRes, PhD candidate and Dr. Jeanne Marshall, BSpPath, PhD During this Psych Summit Session Sneak Peek episode of Feeding Does Matter, Valerie Gent and Jeanne Marshall…
…
continue reading

1
Formulation-Driven Treatment Planning for ARFID, A Collaborative Individualized Framework - Psych Summit Session Sneak Peek
38:09
38:09
Play later
Play later
Lists
Like
Liked
38:092025 Psych Summit Session Sneak Peek: Formulation-Driven Treatment Planning for ARFID: A Collaborative, Individualized Framework presented by Amy Talbot, DClinPsy, MSc. During this Psych Summit Session Sneak Peek episode of Feeding Does Matter, Amy Talbot discusses the need for a formulation-driven approach that respects individual differences and …
…
continue reading

1
Building the Foundation: A Holistic Interdisciplinary Approach to Infant Feeding - Psych Summit Session Sneak Peek
46:13
46:13
Play later
Play later
Lists
Like
Liked
46:132025 Psych Summit Session: Building the Foundation: A Holistic, Interdisciplinary Approach to Infant Feeding presented by Natalie Berriz PhD, BCBA and Melissa Andersen, PhD. During this Psych Summit Session Sneak Peak episode of Feeding Does Matter, Natalie Berriz and Melissa Andersen discuss the critical role of interdisciplinary collaboration in …
…
continue reading

1
Occupational Therapy Supports and Interventions for ARFID - Psych Summit Session Sneak Peek
37:13
37:13
Play later
Play later
Lists
Like
Liked
37:132025 Psych Summit Session: Occupational Therapy Supports and Interventions for ARFID presented by Krystin Turner, OTR/L, DHS, SCEFS and Madelyn Duzyk, OTR/L, OTD During this Psych Summit Session Sneak Peak episode of Feeding Does Matter, Krystin Turner and Madelyn Duzyk explore how lived experience informs clinical practice, why multidisciplinary c…
…
continue reading

1
ICYMI: PFD & ARFID - A Historical Perspective
48:28
48:28
Play later
Play later
Lists
Like
Liked
48:28ICYMI: In this episode of Feeding Does Matter, hosts Jaclyn Pederson and Dr. Hayley Estrem provide a deep dive into the histories of Pediatric Feeding Disorder (PFD) and Avoidant Restrictive Food Intake Disorder (ARFID), highlighting the challenges and breakthroughs in diagnosis and treatment. From the impact of terminology on family experiences to…
…
continue reading

1
Raising a Child with Multiple Medical and Feeding Complexities
34:44
34:44
Play later
Play later
Lists
Like
Liked
34:44Our guest this episode, Emnet Assefa, discusses her journey raising a child with multiple medical and feeding complexities. She speaks candidly about the emotional toll, delayed diagnoses, and how the G-tube became a turning point for her family.By Feeding Matters
…
continue reading

1
A Lifesaver, Not a Failure: A Parent’s Journey with Tube Feeding
40:38
40:38
Play later
Play later
Lists
Like
Liked
40:38In this episode, Garrett Barnes shares his family's journey with his daughter Lucy's challenges with eating. He discusses the emotional toll of navigating feeding tubes, the importance of support from organizations like Feeding Matters, and the transition from tube feeding to oral eating.By Feeding Matters
…
continue reading
Dr. Kathleen Knafl, a pioneering researcher and educator, shares her journey into family-centered research and what she’s learned from listening to families. Along with Hayley and Jaclyn, she talks about why the words we use like “burden” or “impact” can make a big difference, how families often see things more hopefully than doctors expect, why th…
…
continue reading

1
When feeding challenges intersect with food allergies
51:58
51:58
Play later
Play later
Lists
Like
Liked
51:58In this episode of Feeding Does Matter we talk with David Schnitzler, a father of two children with feeding difficulties. We explore the emotional, medical, and day-to-day realities families face when feeding challenges intersect with food allergies. David shares how each child’s feeding experience is unique, why reducing mealtime pressure can supp…
…
continue reading

1
CReATe Author Series Ep. 15 - Drs. Terry Heiman-Patterson and Michael Benatar on Clinical Guidance for ALS/FTD at-risk carriers
32:52
32:52
Play later
Play later
Lists
Like
Liked
32:52Dr. Terry Heiman-Patterson is a neurologist and professor at Temple University and the director of the Center for Neurodegenerative Disorders and the MDA/ALS Center of Hope. Dr. Michael Benatar is a Professor of Neurology and Chief of the Neuromuscular Division and Executive Director of the ALS Center at the University of Miami. In this podcast the…
…
continue reading

1
Fueling Change Through Community Councils
50:05
50:05
Play later
Play later
Lists
Like
Liked
50:05In this episode we explore how grassroots efforts can make a big impact. Feeding Matters Community Council leaders, Emily Adams (Ohio), and Stacy Payne (California) discuss how engaging families, healthcare providers, and local leaders can break down stigma, promote early identification, and create real change, one relationship at a time.…
…
continue reading
Hosts Jaclyn and Hayley are joined by Praveen Goday, MD and Richard Noel, MD discussing the urgent need for awareness, education, and advocacy in Pediatric Feeding Disorder and ARFID. From lack of education across the medical field to community-driven solutions, this episode is a call to action. Change happens when we get loud together.…
…
continue reading

1
The Lived Experience & Transitioning from Patient to Professional
44:22
44:22
Play later
Play later
Lists
Like
Liked
44:22Rachel Conrad, M.A. CCC-SLP and Feeding Matters Consortium Chair, shares her personal journey with pediatric feeding disorder, transitioning from a patient to a professional in the field with lived experience with both PFD and ARFID. She discusses the importance of vulnerability in therapy, trauma-informed care, and the need for patient-centered ap…
…
continue reading
In this episode, pediatrician Ron Serbin, MD shares his expertise on the early identification of pediatric feeding disorders. Dr. Serbin explores the critical role of effective screening as well as barriers; advocacy in early identification, highlighting how diagnostic codes can improve access to care; and the need for educating both pediatricians …
…
continue reading

1
CReATe Author Series Ep. 14 - Drs. Ruben van Eijk and Michael Benatar on Phase 2 Trials and ALS
36:59
36:59
Play later
Play later
Lists
Like
Liked
36:59Dr. Ruben van Eijk is an associate professor in the Department of Neurology at the University Medical Center Utrecht in the Netherlands as well as a statistical consultant and medical statistician for the clinical trial methodology group at the Julius Center also in Utrecht. Dr. Michael Benatar is a Professor of Neurology and Chief of the Neuromusc…
…
continue reading
Jaclyn and Hayley welcome ARFID to PFD awareness month with an engaging conversation with Dr. Jenny Thomas, a leading expert in ARFID, discussing its definition, impact, and the evolution of understanding around it. They address common myths and the differences between picky eating and ARFID. The conversation emphasizes the need for collaboration b…
…
continue reading
In this conversation, Jaclyn and Hayley welcome William Sharp PhD, Associate Professor at Emory University School of Medicine, Department of Pediatrics. They discuss the provider landscape, the formation of a research initiatives task force, and the importance of family-centered care. They explore the challenges in identifying qualified providers, …
…
continue reading
This episode explores the intersection of pediatric feeding disorders and avoidant restrictive food intake disorder, featuring insights from guest Dr. Nancy Zucker, a clinical psychologist and expert in the field.By Feeding Matters
…
continue reading
In this conversation, hosts Jaclyn and Hayley discuss the various family support programs offered by Feeding Matters, with guest Heidi Van Der Molen, Senior Program Manager for Feeding Matters. They explore Heidi's personal journey with feeding challenges, the Power of Two program, and the importance of community support for families dealing with f…
…
continue reading
Cheyenne Watts Fagan shares her journey with her daughter, who faced significant feeding struggles after being discharged from the NICU. The discussion covers the transition to feeding tubes, intensive feeding programs, and the impact of community support and mentorship while navigating these challenges.…
…
continue reading
Revenue By Design Unshakable: Leading with Resilience Through Adversity, Change & Challenge In today’s world, change is relentless (if not, the norm!), adversity is inevitable, and challenges are bigger than ever. As a leader, your ability to navigate uncertainty and foster resilience in your team isn’t just a nice-to-have—it’s the key to sustained…
…
continue reading
Revenue By Design Are you ready to rise above guesswork and dominate your market by focusing on the customers who truly matter? In this session, Dr. Desiree-Jessica Pely reveals how AI-powered customer targeting transforms both inbound and outbound efforts into strategic, high-impact engagements. You’ll learn how advanced intelligence uncovers the …
…
continue reading
Revenue By Design Creating humanized content for answer engines is a critical skill in today’s AI-driven digital landscape. Answer engines, such as ChatGPT, Siri, and Alexa, are AI-powered tools designed to provide direct, concise answers to user queries by leveraging natural language processing (NLP) and machine learning technologies. Unlike tradi…
…
continue reading
Revenue By Design In this session, learn about the intersection of academic theory and practical application to understand how to develop and deploy technology that your users will actually USE. Understanding the theories of Adult Learner Theory, Diffusion of Innovations, and Change Management and how they can couple with Stanford's Design Thinking…
…
continue reading
Revenue By Design In today’s fast-paced business world, success isn’t just about strategy—it’s about connection. The way we engage with colleagues, customers, and teams determines our influence, impact, and bottom-line results. Emotional Intelligence (EQ) isn’t a soft skill—it’s the foundation of every meaningful interaction, and when applied strat…
…
continue reading
Revenue By Design Effective communication is more than just exchanging words—it's about ensuring those words are understood and acted upon. In our fast-paced world, the ability to communicate for comprehension is a crucial skill that fosters clarity and connection. This talk will explore the art and science of impactful communication, offering prac…
…
continue reading
Revenue By Design Great conversations drive connections, influence, and success. In this engaging presentation, you'll discover six powerful questions that spark deeper dialogue, build trust, and unlock extraordinary results in business and life. Whether you're leading a team, closing a deal, or strengthening relationships, these questions will tra…
…
continue reading
Revenue By Design Transform your entire revenue ecosystem into a powerhouse of efficiency and growth by aligning your go-to-market leaders with a data-driven strategy. Revenue Architecture is a continuous process to align and integrate marketing, sales, and customer service to achieve more accelerated, predictable, and sustainable revenue performan…
…
continue reading
Revenue By Design The world is changing faster than most of us can keep up with. The rise of disconnected systems, custom setups, and endless integrations has made it harder for people to connect and collaborate. In this episode, we’ll explore how to bring different business systems together, making them accessible to everyone, especially the blind…
…
continue reading
Revenue By Design Align Sales, Marketing, and Finance teams with a focus on fostering deeper internal and external relationships while harmonizing technologies for efficiency and profitable, human-centered growth. With over 30 years in the industry, Daren Lauda is a highly accomplished and versatile professional with a rich background in the techno…
…
continue reading
Revenue By Design In “Transforming Tech for Growth,” attendees discover how a well-structured technology ecosystem can supercharge their go-to-market teams. This talk highlights real metrics—like user adoption, data hygiene, pipeline velocity, and revenue attribution—that reveal how effectively a tech stack supports business objectives. Drawing on …
…
continue reading
Revenue By Design The old rules of customer intel no longer apply. Growth leaders are no longer in the business of reacting—they’re in the business of predicting. Outdated, messy, and reactive customer intel isn’t just frustrating; it’s draining revenue, eroding retention, and stalling growth. In this session, you’ll discover how top-performing com…
…
continue reading
Revenue By Design Reaching our potential isn’t something we accomplish alone—it requires intentional, development-focused connection. In this keynote, Haley Hansel introduces the concept of the Elevater: a team member with the skills and intention to elevate themselves, their peers, and their organization. Elevaters thrive because they embrace the …
…
continue reading
Revenue By Design Most businesses hire employees to fit their immediate and near-future needs. Most employees pursue jobs and accept offers for those same reasons. But, while the employer/employee relationship is legally defined as a transactional relationship, employee engagement, loyalty, and effectiveness as well as company revenue growth and pr…
…
continue reading
Revenue By Design Sales messaging and connecting with audiences is inherently human. Surprise, that’s where I was when I turned to ChatGPT—not just as a tool, but as a creative partner. In this presentation, I’ll show you exactly how I used AI to build a ICP and persona based messaging summary that hit the mark so well it got compliments like, “Kel…
…
continue reading
Revenue By Design As high-achievers, we constantly strive to be our best and make great things happen! With our success, comes challenges and never-ending expectations. It’s easy to run on autopilot and react to situations. We can get sucked into energy-draining stress, low vibe thinking, and unnecessary drama—at work and in life. When this happens…
…
continue reading
Revenue By Design In today’s rapidly evolving business landscape, leadership is being redefined. Success is no longer just about strategy, execution, and results—it’s about people. In The New Leadership Imperative, Matt Stoyka explores why empathy is no longer optional—it’s essential for leaders who want to drive performance, build resilient teams,…
…
continue reading

1
Celiac Disease and Pediatric Feeding Disorder
49:11
49:11
Play later
Play later
Lists
Like
Liked
49:11Guest, Heidi Luhmann shares her family’s journey navigating the challenges of Pediatric Feeding Disorder and Celiac Disease. The discussion emphasizes the importance of caregiver mental health, redefining success in feeding therapy, and the role of community and research in supporting families.By Feeding Matters
…
continue reading