Best Rdd Podcasts (2025)

1
270 - RDD 2025 with Jett Foundation: "Disability Doesn’t Define Us!" 1:12:28

25d ago1:12:28

1:12:28

In partnership with Jett Foundation, we roll into an inspiring conversation with a powerhouse panel of guests who prove that nothing—not even a ridiculously expensive adaptive wheelchair—can keep them from chasing their dreams. From power soccer to adaptive paragliding (yes, that’s a thing!), our guests share how nonprofits, grants, and a little cr…

1
273 - Letting Go of One Dream to Discover a Thousand More 42:44

4d ago42:44

42:44

In this episode, Kyle and Sean get real about what it means when a circumstance such as rare disease forces you to let go of old dreams, grieve unexpected losses, and slowly uncover new paths forward. It’s an honest conversation about redefining fulfillment and learning to live fully — even when life looks different than you imagined.…

1
272 - Bridging Worlds: Empowering Patients and Transforming Trials 45:45

11d ago45:45

45:45

In classic Two Disabled Dudes fashion, the episode opens with a hilariously painful recounting of bloodwork gone wrong. Kyle survives a multi-day ordeal involving broken systems, pre-dawn wake-ups, and a forgotten ID, while Sean’s appointment gets derailed by a national holiday his lab forgot existed. Moral of the story: get your labs done early—or…

1
271 - Rae of Hope: The Power of Inclusion 36:53

18d ago36:53

36:53

In this powerful and heartfelt episode, we sit down with Erin, founder of the Rae of Hope Foundation, to talk about caregiving, community, and what it means to find joy even when life is hard. Erin shares her family’s journey following her daughter Reagan’s epilepsy and cerebral palsy diagnoses, how caregiving shaped her 30s, and how she’s now carv…

1
269 - Red Pandas, Wheelchairs, and the Courage to Say “This Sucks” 46:15

1M ago46:15

46:15

What happens when a teenager asks, “Why are you in a wheelchair?” at the bar... and it’s not weird at all? In this episode, Sean and Kyle reflect on what it means to be curious, considerate, and occasionally oblivious when it comes to disability—and why teens might just be winning in the empathy department. From cruise ship conversations to elevato…

1
268 - Energy Management: How Not to Become a Pile of Poop by 6 PM 44:20

1M ago44:20

44:20

Ever feel like your energy levels are on a shoestring budget? In this episode, Sean and Kyle tackle the daily balancing act of managing energy, especially with a rare disease. From the science of sleep hygiene (which, by the way, Kyle has mastered like a bedtime ninja) to the mystery of why spoon theory uses, well, spoons as its currency, they dive…

1
267 - Life After Diagnosis: The Power of Humor, Resilience, and Letting Go 40:51

2M ago40:51

40:51

When it comes to wheelchair repairs, navigating the system shouldn’t be harder than the fix itself—but for Sean, that’s exactly what happened. In this episode, he shares the frustrating saga of dealing with a major medical equipment provider, exposing the inefficiencies, miscommunications, and outright absurdities of the process. From lost time to …

1
266 - Spreading the Word, Saving Lives: Key Insights from ACD 42:57

2M ago42:57

42:57

This episode features an interview with Heidi Wallis, Executive Director of the Association for Creatine Deficiencies (ACD). Heidi discusses ACD’s efforts in advancing research, treatments, and newborn screening for creatine deficiency disorders. Heidi shares her personal journey as a mother of two children with creatine deficiencies, emphasizing t…

1
265 - Holding Onto Hope Without Letting Go of Today 26:29

2M ago26:29

26:29

In this episode, we dive into a topic that hits close to home: the tension between hoping for a cure and fully embracing life as it is today. We explore how dreaming about a different future—whether through medical breakthroughs, financial success, or other changes—can be both motivating and, at times, limiting. Kyle shares a frustrating parking lo…

1
264 - A Mother's Journey with CTNNB1 Syndrome and her Family's Path to Inclusivity 44:36

2M ago44:36

44:36

This episode features a heartfelt conversation with Rivki, a mother of six, including her youngest son, Eli, who was diagnosed with CTNNB1 syndrome, a rare genetic disorder. She shares her journey of recognizing early developmental concerns, overcoming medical dismissals, and advocating for a proper diagnosis. She discusses the impact of Eli's cond…

1
263 - The Surprising Truth About Independence 38:21

2M ago38:21

38:21

In this episode, Sean and Kyle dive into the evolving nature of independence, especially in the context of disability and life transitions. Kyle shares his journey toward hiring a personal care attendant (PCA) and how his perception of needing help has changed over time. The discussion explores the fine line between dependence and empowerment, emph…

1
262 - Do Our Resolutions Reveal Our Age? 33:46

3M ago33:46

33:46

This episode focuses on setting and maintaining goals beyond the traditional New Year's resolutions. The Dudes discuss the importance of checking in on progress, making adjustments, and recommitting to goals even after January. Kyle Hiring a personal care attendant for assistance with daily tasks Staying engaged with rideATAXIA fundraising efforts …

1
261 - Season 13 Begins: Travel, Community, & Vacation Prep 38:39

3M ago38:39

38:39

Season 13 kicks off with us catching up after a well-earned break, sharing our reflections on how time away can spark creativity and renew energy. Sean talks about surprising himself with a change to his daily Starbucks routine, leading to a conversation about the small adjustments we make for a healthier, more balanced life. The dudes reflect on t…

1
260 - Our Perceptions of Disability Were Wrong 40:07

5M ago40:07

40:07

In this final episode of 2024, Sean and Kyle reflect on their evolving perceptions of living with Friedreich’s Ataxia (FA) and how their expectations and outlooks have shifted since their diagnoses. They dive into topics like adaptive technologies, changing friendships, and how urgency influences their goals and priorities. Wrapping up with heartfe…

1
259 - If Sean & Kyle Won The Election 39:50

6M ago39:50

39:50

In this thought-provoking episode, Sean and Kyle discuss what laws they would institute if given ultimate power. They each introduce three laws that would benefit individuals with disabilities and promote greater understanding among all citizens. These ideas spark a powerful reflection on the need for empathy, inclusivity, and social responsibility…

1
258 - Navigating Setbacks: 4 Tips for Gaining Momentum 36:13

7M ago36:13

36:13

In this candid and deeply personal episode, Sean and Kyle tackle the emotional and mental struggles that come with setbacks—whether from injury, burnout, or life's unexpected challenges. Sean opens up about his difficult recovery journey after a recent injury, where even though surgery wasn't required, the road to getting back on track has been muc…

1
257 - Journey to the World's Highest Road, Part 2 36:05

8M ago36:05

36:05

In this episode, we recount a challenging experience during our cycling trip in the Himalayas. Sean shares the story of his accident, where he was forced to brake hard on the trike, causing it to flip and throwing him to the ground. The impact left him with severe pain in his shoulder and hip, making it difficult to breathe initially and leaving hi…

1
256 - Journey to the World’s Highest Road, Part 1 51:43

9M ago51:43

51:43

This episode kicks off Season 12: An abbreviated season. After eight years of consistent publishing, the Dudes are scaling back for the rest of 2024 in order to fine tune the show, focus energy elsewhere, and just catch up on life. This season will consist of five episodes, one for each month through December. Regular, weekly episodes will resume i…

1
Ran my first game of Knave 2E 13:08

10M ago13:08

13:08

Welcome to Last Roll of the Week with Red Dice Diaries, where we talk about RPGs, offer hints, review books and other stuff to use in your own games. In this episode I’m discussing my recent experience running a one-shot (loosely) based on the Isle of Dread classic module, but using the streamlined Knave 2E by Ben Milton from Questing Beast. Knave …

1
NPC Spell-casting in Shadowdark 35:33

10M ago35:33

35:33

Welcome to Last Roll of the Week with Red Dice Diaries, where we talk about RPGs, offer hints, review books and other stuff to use in your own games. In this episode I’m discussing a recent idea I had—inspired by The Monster Overhaul: A Practical Bestiary by Skerples—on how I might streamline spellcasting for NPCs/monsters in my Shadowdark games an…

1
Dinosaurs in D&D 37:28

10M ago37:28

37:28

Welcome to Last Roll of the Week with Red Dice Diaries, where we talk about RPGs, offer hints, review books and other stuff to use in your own games. In this episode Hannah and myself are discussing why we have both dinosaurs and dragons in popular RPGs. I’d really love you to get involved in the conversation so we can get some back-and-forth going…

1
Running a Shadowdark OT Game 15:28

11M ago15:28

15:28

Welcome to Last Roll of the Week with Red Dice Diaries, where we talk about RPGs, offer hints, review books and other stuff to use in your own games. In this episode I’m discussing my thoughts on SHADOWDARK after running an open-table game set in Greg Gillespie’s BARROWMAZE using the system. I’d really love you to get involved in the conversation s…

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255 - Season Finale - We’re Riding the World’s Highest Road 44:56

11M ago44:56

44:56

In the final episode of season 11, The Dudes discuss their major upcoming event: a challenging 200-mile bike ride in the Himalayas - to the top of the world’s highest paved road - over 19,000’. They talk about the logistics, the elevation challenges, and their preparation, including the use of altitude training masks. They also address concerns abo…

1
254 - From Dad to Advocate to CEO: John Crowley's Continued Commitment 50:02

12M ago50:02

50:02

This episode (254) features an interview with John Crowley, who shares his journey into the rare disease space. John's involvement started in 1998 when his daughter Megan was diagnosed with Pompe disease, a rare form of muscular dystrophy. Determined to find a cure, John and his family embarked on a journey of research and entrepreneurship, ultimat…

1
253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases 34:05

12M ago34:05

34:05

Rob Long shares his journey with Uplifting Athletes, an organization dedicated to leveraging the influence of athletes to support those impacted by rare diseases. Rob and Brett Brackett took over leadership in 2018, revitalizing the organization's mission. They have several powerful initiatives including The Young Investigator Draft, Lift for Life,…

1
252 - NFL Plans Crushed, His Response Changes Lives 47:02

12M ago47:02

47:02

In episode 252, Rob Long, executive director of Uplifting Athletes, revisits his rare disease journey. He recounts his college football days at Syracuse University and the abrupt onset of symptoms during his senior year. Rob shares the initial confusion and fear surrounding his diagnosis of a brain tumor, leading to surgery and a challenging recove…

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251 - From Canes to Canines: Linda's Path to Mobility 54:08

1y ago54:08

54:08

In episode 251 we welcome our dear friend Linda Snyder! Linda shares her personal journey living with a rare genetic type of ataxia and discusses how she discovered the benefits of having a mobility service dog named Cedric. She talks about the rigorous process of applying for a service dog, the extensive training Cedric underwent, and the various …

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250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation 1:01:14

1y ago1:01:14

1:01:14

Our friends at Jett Foundation invited us into their community once again for a conversation with 5 panelists on Rare Disease Day. We were honored to moderate the discussion with these friends: Race Martinez - Architecture Student, living with Duchenne Kris Napper - Graphic Designer/Illustrator, Business Owner, living with SMA Chris Schlechty - Sof…

1
249 - 20 Years in the Making: REATA's Story of Skyclarys 51:14

1y ago51:14

51:14

This episode delves into the journey of Skyclarys, the first FDA-approved treatment for Friedreich's ataxia (FA), a rare genetic disorder. The discussion features Dr. Colin Meyer, former executive at Reata Pharmaceuticals, who shares his experiences from the inception of Reata to the acquisition by Biogen. The conversation offers a compelling narra…

1
248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer 43:42

1y ago43:42

43:42

In this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA), we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, emphasizing the importance of community involvement and…

1
WHEN SEA IS CALLING 11:17

1y ago11:17

11:17

Welcome to Last Roll of the Week with Red Dice Diaries, where we talk about RPGs, offer hints, review books and other stuff to use in your own games. The good folk at ATELIER CLANDESTINE have kindly provided me with a review PDF of their book WHEN SEA IS CALLING, a guide for nautical adventures, in this video I give my opinion on it. I’d really lov…

1
247 - Tenacity and the Power of Persistence 34:57

1y ago34:57

34:57

In this episode, Sean and Kyle discuss the importance of maintaining discipline and focus, particularly in the face of distractions and competing priorities. The conversation delves into the concept of knowing what one wants and being clear about goals to stay motivated and driven. They reflect on the significance of surrounding oneself with suppor…

1
246 - Empowering Accessibility, One Review at a Time 42:49

1y ago42:49

42:49

In this episode, we discuss the groundbreaking work of Roll Mobility, a platform revolutionizing accessibility for people with disabilities. Roll Mobility functions as a Yelp-like app, providing users with vital information on the accessibility of restaurants, destinations, and sightseeing locations. By ranking establishments based on their accessi…

1
245 - Settle or Soar? Embracing Uncertainty 35:39

1y ago35:39

35:39

The Dudes talk about life changes and the significance of pursuing growth and opportunities, even in the face of uncertainty. Reflecting on personal anecdotes and advice, they underscore the value of acceptance, adaptation, and gratitude in embracing life's journey. Also in his episode: Kyle's most recent challenging experience with airline travel …

1
244 - Change & Consistency with Progressive Disease 21:21

1y ago21:21

21:21

In Episode 244, the Dudes delve into the topic of change and consistency, particularly in the context of living with progressive diseases like Friedreich's ataxia (FA). They discuss the challenges of navigating constant change, setting expectations, and managing the desire for both fast and slow change. Also in this episode: Emergency haircuts and …

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243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum 50:35

1y ago50:35

50:35

In this episode, Dr. David Fajgenbaum shares his journey of discovering a drug that saved his own life. He emphasizes the importance of repurposing existing drugs for new uses and highlights the potential of artificial intelligence in identifying such opportunities. Dr. Fajgenbaum discusses his nonprofit organization, EveryCure, which aims to unloc…

1
242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment 43:56

1y ago43:56

43:56

Dave (Dr. Lynch), a seasoned clinician and researcher specializing in Friedreich's ataxia (FA), sheds light on his nearly three-decade journey at the forefront of FA care. Throughout the conversation, Dave emphasizes the indispensable role of patient participation in research, underscoring the collaborative spirit driving advancements in FA drug de…

1
241 - Feeling Helpless? Here Are 4 Ways To Help 29:36

1y ago29:36

29:36

For Rare Disease Patients, the drug development process can feel huge and overwhelming. It seems like everyone has a role to play; Doctors, researchers, advocacy organizations, pharma industry...we can see how they all fit in the process. What about the patient's role? Listen as The Dudes discuss 4 of the many ways patients can have an impact. Also…

1
240 - Adapting to Life's Curveballs 25:23

1y ago25:23

25:23

Adapting to changes is a big part of life for everyone. Listen as The Dudes discuss their approach to adapting. In this episode: Kyle uses a voided ID to get past TSA on his way to North Carolina and back. Newsworthy from Instagram: Young man paralyzed from the shoulders down after a spinal cord injury in 2020 The Dudes get into a discussion about …

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239 - Season Premier - Are You a Doer or a Talker? 35:36

1y ago35:36

35:36

Listener Brian lets the Dudes know that Kyle has in fact been driving illegally for 10 years. Does Kyle have a plan to address this dilema? In the Season 11 premiere, Kyle and Sean dive into the challenges and triumphs of pursuing dreams, overcoming fears, and embracing new opportunities. The Dudes also discuss the power of setting goals, the fear …

1
Strange Fruit Part 2 1:21:25

1y ago1:21:25

1:21:25

Part one available here. Three visitors to the isolated, rotting corpse-town of Ebon Eaves find themselves trapped in a church, forced to fight for their leaves against both the dead and a horrible blasphemous form of life. - Music from https://freepd.com/horror.php - Tremulus available from https://www.drivethrurpg.com/product/120260/tremulus #red…

1
Strange Fruit Part 1 31:47

1y ago31:47

31:47

Three visitors arrive in the isolated American town of Ebon Eaves, two eager to claim their inheritance and another seeking a spiritual project to distract him from the trauma of his past, but little do they know that the tree blocking the way into town is the least of their troubles... - Music from https://freepd.com/horror.php - Tremulus availabl…

1
Creating a cheatsheet for WFRP 13:26

1+ y ago13:26

13:26

Welcome to Last Roll of the Week with Red Dice Diaries, where we talk about RPGs, offer hints, review books and other stuff to use in your own games. I’m currently prepping to run The Enemy Within campaign for WFRP 4E, we’ve done a bit of character gen and I’m enthused to get started, but need to get myself up to speed on the current iteration of t…

1
So you want to be a Game Master 13:55

1+ y ago13:55

13:55

Welcome to Last Roll of the Week with Red Dice Diaries, where we talk about RPGs, offer hints, review books and other stuff to use in your own games. In this episode I’m talking about the book "So You Want to be a Game Master" by Justin Alexander that I picked up for Christmas. I’d really love you to get involved in the conversation so we can get s…

1
2024 Year of the Hammer 10:47

1+ y ago10:47

10:47

Welcome to the Red Dice Diaries, where we talk about RPGs, offering hints, reviews and stuff to use in your own games. In this episode I’m talking about some of my plans for podcasting and content in 2024 and why I’m unofficially referring to this as “the Year of the Hammer.” I’d really love you to get involved in the conversation so we can get som…

1
238 - Season Finale - The Dynamics of Friendship 33:14

1+ y ago33:14

33:14

In episode 238, The Dudes delve into the theme of friendship, highlighting the significance of chosen family and exploring the dynamics of their own unique bond. They draw inspiration from questions curated by MindPath Health, leading to an unscripted and genuine conversation. From childhood influences like movies to bucket list aspirations, The Du…

1
237 - The Vital Role of Caregivers in Rare Disease Advocacy 1:02:52

1+ y ago1:02:52

1:02:52

We are thrilled to have Effie Parks and Daniel DeFabio in this powerful episode! Together, we discuss the pivotal role of the caregiver’s voice in the realm of healthcare, particularly in the context of rare disease. Our dialogue revolves around the essential role of caregivers, whether they are parents, aunts, uncles, or other family members, in a…

1
236 - A Mom's Perspective on Devastation and Gratitude 42:48

1+ y ago42:48

42:48

Sean and Kyle engage in a heartfelt conversation with Caley Caroll, a mother, caregiver, and fierce advocate for her son Whitten John and his health challenges. Whitten John was diagnosed with Diabetes Insipidus and Langerhans Cell Histiocytosis, two rare diseases. Caley shares the emotional journey of receiving the diagnoses, the difficulties of c…

1
235 - Addressing the Epidemic of Wheelchair Damage by Airlines 43:00

1+ y ago43:00

43:00

Zach Wichter joins us to discuss the massive, yet not-so-commonly known incidents of damage to mobility devices caused by airlines. Zach is a consumer travel reporter for USA Today and focuses much of his writing on air travel specifically. Zach discusses his project where he has been tracking incidents of airlines damaging mobility devices through…

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234 - World Duchenne Awareness Day - Jett Foundation 1:19:59

1+ y ago1:19:59

1:19:59

The Dudes recently had the privilege to host a virtual panel for Jett Foundation's celebration of World Duchenne Awareness Day 2023. This panel includes Patients, Caregivers, and Medical Professionals. Some of the topics discussed include: Understanding Manifesting Carriers Common Misconceptions About Female Carriers Challenges of Transitioning fro…

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