Two long-term IBD patients, Rachel and Nigel, share their experiences and perspectives on living with inflammatory bowel disease (Crohn's disease and ulcerative colitis).
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Rachel (@thebottomlineibd Podcasts
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#7 Having a Colonoscopy - Top Tips and Musings from Two Veteran IBD Patients
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Who can believe we've notched up 7 episodes already?! But indeed we have! If you have Crohn's disease or ulcerative colitis, you will doubtless have had (or are due to have) a colonoscopy or three. In this episode, we reflect on our past experiences of having colonoscopies. As well as the ouch! moments, there are some top tips along the way... As e…
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#6 Part 2 - More IBD patients' questions answered by Dr Mark Samaan
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In Part 2 of Episode 6 of Wrestling the Octopus IBD, we put some more IBD patient questions to consultant gastroenterologist, Dr Mark Samaan from Guy's & St Thomas' Hospital in London. This time we're asking what is the definition of an IBD flare, how frequently patients should be monitored - both in active disease and remission - and whether there…
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#6 Part 1 - IBD patients' questions answered by Dr Mark Samaan
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32:44
Nigel and I had the pleasure of recording a two-part podcast for Episode 6 of Wrestling the Octopus with consultant gastroenterologist, Dr Mark Samaan. Dr Samaan treats IBD patients at Guy's & St Thomas' Hospital in London - where the service has around 6,000 patients on its books. We are really grateful to Dr Samaan for answering some of the commo…
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#5 Good Medicine in IBD - Through the Eyes of Patients
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In Episode 5 of Wrestling the Octopus, Nigel and I discuss our definition of "good medicine". What does this term mean to us as patients - and how might it differ from how healthcare professionals define it? Should "good medicine" take in all the softer clinical skills that go beyond academic knowledge, or is the focus on getting the right drug to …
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#4 World IBD Day special - Shooting the breeze on IBD
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In our fourth episode of Wrestling the Octopus IBD, recorded to mark World IBD Day, Nigel and I busk our way through various IBD topics. Whatever comes to mind - in whichever order - that we think merits discussion. Some serious, some silly. We talk managing fatigue, the cost of living with Crohn's, the crazy things that steroids made us do, and wh…
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#3 Advocating for yourself as an IBD patient - what it means and how to do it!
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Welcome to Episode 3 in our 8-part podcast series on living with inflammatory bowel disease. In this episode we're talking about how to advocate for yourself (and others, if you're a carer) to give your health the best opportunity to thrive. Nigel and I give our opinions on what we think advocacy is and some examples of when we used to it to good e…
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#2 How Do You Like Your IBD Medication Served... Oral, IV or Injection?
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Welcome to Episode 2 in our 8-part podcast series on living with inflammatory bowel disease. We’re talking how we take medication in this episode: IV infusions, self-injectables (sub-cut) and oral tablets. What are the pros and cons of each method and how do anxiety, disease state and other factors influence patient decisions on how to receive medi…
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#1 To start or stop IBD medication? We debate this hot topic!
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Welcome to the first in our 8-part podcast series on living with inflammatory bowel disease. Two IBD patients. Both in remission. One used to be on medication, but isn't anymore. The other didn't used to be on medication, but is now. With a total of 70 years of lived IBD experience between us, Nigel (@crohnoid) and myself (@bottomlineibd) discuss o…
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