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Donor Diaries is a podcast that delves into the beauty and complexity of living organ donation. Tune in to hear extraordinary stories of people who choose to share their organs and give the gift of life. The world of kidney and organ donation is a powerful testament to kindness, love, and the human spirit. With over 90,000 individuals on the kidney transplant waitlist and about 13 people dying each day while waiting, the urgency is real. One in three Americans is at risk for chronic kidney d ...
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Follow Neuro-Developmental Delay Therapist Emily Roper as she discusses common problems she encounters working with children with developmental delays. She takes a deep dive into things like primitive reflexes, anxiety, ADHD, Autism, brain development, pregnancy, birth and more. This podcast provides information to parents and providers alike to bring understanding and help to children with developmental delays.
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Send us a text Sue Rees returns to share the revolutionary donor protections offered by the Alliance for Paired Kidney Donation (APKD) that are making kidney donation more accessible and equitable for everyone. As Chief Operating Officer with over 25 years of transplant experience, Sue walks us through the comprehensive "Donor Protect" program desi…
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Send us a text What happens when a transplant surgeon, a Nobel Prize-winning economist, and a willingness to trust strangers come together? A revolution in kidney donation that has saved 20,000 lives and counting. Meet Dr. Michael Rees and Sue Rees, the power couple behind the Alliance for Paired Kidney Donation. In this captivating first installme…
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Send us a text A spiritual calling, a kidney voucher, and two pastors reconnecting after decades apart—this is no ordinary transplant story. When Jim Pearl was diagnosed with Fabry's disease in 2004, he had no idea his journey would lead him back to Jeff Barker, a seminary friend from the '90s. After five years on dialysis, Jim clung to his mantra:…
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Send us a text What if a casual Sunday scroll through Facebook could save a life? In this heartfelt episode of Donor Diaries, Rich and Cali share the extraordinary story of how a social media post led to a life-saving kidney transplant and an unexpected lifelong connection. Rich, living with polycystic kidney disease, feared the wait for a deceased…
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Send us a text Join us on Donor Diaries as we welcome Dr. Harry Wilkins, CEO of Gift of Hope, who transitioned from a 36-year career as a trauma surgeon to leading an organ procurement organization in 2020. With his unique perspective as both a physician and an industry leader, Dr. Wilkins offers a rare behind-the-scenes look at the complex and dee…
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Send us a text Join us as we welcome the extraordinary Mike Lollo, a former NYPD detective whose journey led him to become a passionate advocate for kidney donation. Mike's life took an inspiring turn in 2018 when he donated his kidney to a stranger. He shares his remarkable story with us, reflecting on how chance encounters with people like Ned Br…
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Today's episode is all about Trichotillomania which is a mental health disorder characterized by recurrent hair pulling. I see a LOT of kids with this symptom. Not necessarily ones who have received an official trichotillomania diagnosis, but certainly many who have pervasive hair pulling. This disorder falls under the anxiety umbrella and is often…
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Send us a text Join us as we sit down with Marilyn Day, a founding member of Transplant Village and a two-time kidney recipient who has dedicated over a decade to guiding others through the transplant journey. In this episode, Marilyn shares how her personal story highlights the transformative power of sharing your journey to inspire action and fin…
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Today's episode is all about the Fear Paralysis Reflex and the theories behind it. We dive into many of the intricate ways that the body responds to stress and threat. Our stress response should mature through some very distinct stages as we age and continues to adapt to our experiences throughout our lifetime. Problems can arise with both the deve…
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Today's episode is all about delayed cord clamping. That is the practice of waiting to cut a baby's cord for several minutes after birth. This enables the blood that is circulating through their placenta to pump back to their body. This one simple practice goes a long way in setting up their future brain health. Listen to an this amazing Ted Talk o…
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Today's episode is a mini crash course on primitive reflexes. It covers what they are, why they are important, and how they connect to developmental delays like ADHD and Autism. My personal belief is that an early developmental screening should be a standard part of every developmental diagnosis. Take a listen to find out why! Relevant links: Insti…
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Send us a text In this episode, Anthony Cernera, a three-time living organ donor, opens up about his transformative journey of giving and personal healing. His story began with a simple Facebook post that sparked a deep desire to help others, leading him to donate a portion of his liver, kidney, and stem cells. These selfless acts not only changed …
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Last month I was invited to speak on a documentary about c-sections in the U.S. The film makers specifically asked me to speak on the long-term neurological impacts on baby. In 2019 a huge meta analysis was publish and found an increased risk of ADHD and Autism for babies born by cesarean. This episode explores that study and dives into the content…
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Send us a text What would compel an American living in Germany to navigate a labyrinth of legal and cultural barriers to donate a kidney to a stranger? Join us as we uncover the incredible story of Will Johnson, whose altruistic journey sheds light on the stark contrasts between organ donation practices in the US and Germany. In this episode, recor…
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Send us a text How old is too old to save a life? At the age of 74, Tom Duncan defied societal norms to become America's oldest non-directed living kidney donor, and his story will change the way you think about aging and altruism. Join us for an intimate conversation from his serene home in Ruidoso, New Mexico, where Tom recounts the journey that …
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Todays episode is all about attachment and its profound impact on human development. We are looking at how early relationships shape our understanding of the world and future relationships. We are covering some of the work of John Bowlby and Mary Ainsworth specifically their contributions to attachment theory. This theory posits that secure bonds f…
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Today episode is all about hyperactivity. This is a common complaint from the parents that walk through my doors. The term hyperactivity encompasses a variety of different symptoms and behaviors. This episode dives into some of those things and takes a look at the most common underlying physical and neurological systems that impact hyperactivity. I…
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Send us a text Imagine stepping into a world where giving the gift of life is made more accessible to all. That's the transformative journey we embark on with Ruby Rorty and Rachel Watson in the latest episode of Donor Diaries, as they share the details of a program called Project Donor. Ruby, from Stephen Levitt’s Center for RISC, shares the progr…
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Today's episode is all about adoption. I work with a lot of adopted kids and they each come with their own considerations. Many social, emotional, behavioral and learning difficulties have their roots in early neurological development; the development that happens from conception through infancy. Neglect, trauma, and other adverse childhood experie…
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Send us a text Imagine opening your heart to a complete stranger in one of the most profound ways possible. That's exactly what our guests, Josiah Wolfson and Kat Gordon, did when they each made the life-affirming decision to donate a kidney to someone they'd never met. Their compelling stories of self-discovery and transformation are sure to reson…
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Today's episode is all about my journey through NDD therapy as a teen. I'm not sure if I have mentioned it in previous episodes but before I became a therapist I went through this process myself. It is one of the things that solidified my desire to pursue this as a profession. If you are concerned about your child or teen visit my website: earlyroo…
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Send us a text LJ Dong, also known as LJ the Medium, embodies resilience and determination in her journey with Nutcracker Syndrome. Despite facing significant health challenges, LJ's refusal to discard her kidney led her on a remarkable path toward organ donation advocacy. As the American Miss National Mrs. for 2024, LJ leverages her platform to ra…
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Today's episode is all about dyslexia! This episode covers a 2001 study that evaluated the physical development of children with dyslexia and found a significant problem with their physical maturity. This study indicates that dyslexia is less of a problem with the brain and more of a problem with the connection between the brain and the body. This …
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Today's episode takes a look at some of the most common retained primitive reflexes that I see. I discuss the Moro, ATNR, STNR, Spinal Galant and Palmer reflexes. Specifically what they are, what purpose they serve in infancy and how their improper development and inhibition impacts children as they age. If you have a child who struggles with emoti…
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Send us a text Imagine a world where living kidney donors are compensated for their life-saving gift. A world where a severe shortage of kidneys doesn't result in the preventable deaths of over a million Americans. In this riveting dialogue, we're joined by four non-directed kidney donors - Ned Brooks, Elaine Perlman, Dr. Matt Harmody, and Cody May…
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Today’s episode is all about ADHD. Specifically the question of whether or not ADHD is being over diagnosed. This episode covers a brief history of the diagnosis, the different theories around the increase in ADHD diagnoses over the last few decades and a critique of our current system for helping children and adults with ADHD. In this episode I re…
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Today’s episode is all about genetics. When I talk about the connection between primitive reflexes, poor brain development and diagnoses like ADHD and Autism I often get the response: But I thought it was genetic? The quick answer is yes, there is a genetic connection between ADHD and Autism, but saying this can be very misleading. This episode exp…
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Send us a text Diane Lee Reporting Live with 1 Less Kidney Diane Lee is an Emmy nominated anchor and two-time Emmy Award winning reporter with more than 20 years of broadcast news experience. Diane is currently the 7NEWS Consumer Anchor. Her exclusive reports focus on warning them about scams as well as highlighting money saving tips and investigat…
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Today’s episode is all about the history and current research on primitive reflexes. I also cover the three main organizations that offer training on primitive reflex integration and discuss specific research findings. My goal for this episode is to help parents understand what we know, suspect, and need more information on when it comes to primiti…
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Today’s episode is going to cover one of my most frequently asked question which is: Can you help my child? This episode is going to go over the history of neuro-developmental delay more recently called neuro-motor immaturity and the research on primitive reflexes and the connection between physical and mental development. I’m also going to talk ab…
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Today’s episode is the final part of our mini series on early development. This episode looks at the immediate postpartum period, the few hours after birth, and how this time period impacts our long-term neurological development. We are talking about things like delayed cord clamping, primitive reflex function and development, attachment, resuscita…
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Send us a text There’s a wide range of reasons why kidney transplant is available to some, but not all. Imagine the lives that could be saved worldwide if we organized a globally inclusive kidney exchange. What could be possible if we could break down borders and share kidneys with other countries? Meet Dr. Satish Nadig, Chief of Transplant, and th…
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This is the second episode in our special series on early brain development. Today we are looking at labor and birth and how this process affects our brain long-term. Many people understand the importance of pregnancy on brain development but often skip over labor and birth and jump right into infancy. Even though labor and birth are relatively sho…
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This is the first episode in a special series on early development. This series is looking at the neurological development that is happening during pregnancy, birth and the early infancy period and how things that happen during these stages can impact the brain years down the road. This first episode is looking at conception and pregnancy. We are g…
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This episode is a crash course in brain development. We dive into how the brain develops and how early experiences change the trajectory of brain function. This is important to know if you are working with children with developmental delays like ADHD, dyslexia, sensory processing problems and Autism. Understanding brain development enables us to ad…
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Send us a text Exchanging kidneys is a complicated process that involves multiple collaborations between kidney patients, living donors, transplant centers, insurance companies, airlines and more. It’s truly remarkable if you stop to think about the number of people and organizations that need to come together to make 1 paired exchange possible. We…
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Today's episode is all about sensory processing problems! We are diving into the normal 5 senses: light, sound, touch, taste and smell. We are also looking at other lesser known senses such as the vestibular, propriocetive and interoceptive systems. Many children with developmental dealys struggle with one or more of these sensory systems. This epi…
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Send us a text Meet Phillip Hanks, a walking miracle! Philip had his first liver transplant in 2007 and lived an active life. Then in 2019, extreme pain sent him back to the hospital where he received horrifying news. Not only did he need a new liver, but he needed a new stomach, intestines, pancreas, and kidney. Two different transplant centers tu…
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This episode is all about treating primitive reflexes. I am very excited that awareness about primitive reflexes has exploded over the last few years. More and more parents and professionals are becoming aware of how they impact development and they are starting look at diagnoses like ADHD and dyslexia through this developmental lens. While this aw…
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This episode is all about Obsessive Compulsive Disorder (OCD) and the umbrella of anxiety related disorders. I work with a lot of kids who have OCD type symptoms. This episode talks about the underlying neurological systems at play and why these symptoms exist. Visit my website here to learn more.By Emily Roper
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This episode is all about preventing retained reflexes and developmental dealys. It builds on a previous episode about complications and risk factors and gives practical steps parents can take to prevent developmental delays in their future children. Resources for treating parental anxiety and other mental health problems: Follow Dr. Psych Mom's bl…
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This episode is all about the relationship between tough dads and sensitive kids. I work with a lot of highly sensitive and emotionally immature children. Parenting these kids can be particularly difficult for dads with more traditional, masculine personalities. This relationship can also be tough for moms who feel caught in the middle of the dad/c…
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This episode is an ADHD special! We take an in-depth look at what it is, how the ADHD brain works and the different neurological and physiological systems at play. We also look at some of the current theories about the cause of ADHD and I lay out an argument that most causes of ADHD are the direct result of negative early experiences and delays in …
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This episode is all about visual development and how kids learn how to control their eyes. Pretty much all of the kids I work with who struggle in school have some problems with the way they move thier eyes. Eye development happens early in the first year after birth and when this system doesn't work properly it can tank our ability to learn in sch…
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Send us a text Do you ever stop to think about the effectiveness of the time and attention you put towards making a difference? We all have the power to make the world a better place, but what could be possible if we all put more thought into maximizing our personal and financial resources? Welcome to the world of Effective Altruism (EA) with non-d…
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This episode is all about the vestibular system which is arguably our body's most important sensory system. Vestibular dysfunction is very common in children with developmental delays and it impacts lots of different areas that you might not expect. Listen in to learn how the vestibular system contributes to anxiety, social problems and academic un…
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In this episode we take a look at the Asymmetrical Tonic Neck Reflex and its contribution to academic delays. This reflex is very common in children with Dyslexia and ADHD and integrating it is hugely helpful for fixing academic problems specifically reading and writing. Visit the Early Roots website to learn more. Find the link for the ATNR Schild…
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In this episode we are looking at the risk factors that contribute to retained primitive reflexes and developmental delays. We are going to dive deep into the brain development that happens during pregnancy and the early infancy stages and how these stages set the foundation for long-term brain development. If you have a child you're concerned abou…
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