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U2FP CureCast

Matthew Rodreick & Jason Stoffer

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Unite 2 Fight Paralysis exists to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education, and support for research. Get Educated and Get Involved.
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Blink of an Eye, a new podcast with Louise Phipps Senft, explores stories of trauma, loss, awakening, and epiphanies. Ms. Senft recounts her experience navigating a life-changing accident that rendered her son, Archer, paralyzed from the neck on down, and expands the story with interviews of those behind the scene. Told through real journal entries and inspiring guests, Blink of an Eye will inspire you to explore the true nature of our relationships and interconnectedness in the face of an e ...
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Today’s guest is Dr. Chet Moritz. Chet is the CJ and Elizabeth Hwang endowed professor in the departments Electrical and Computer Engineering, Rehabilitation Medicine and Neurobiology & Biophysics at the University of Washington (UW) in Seattle. He also serves as the Co-director for the Center for Neurotechnology. Chet’s work in Transcutaneous Spin…
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#264 Walking with Anthony: A Journey of Hope and Strength In this powerful and deeply personal episode, Micki Purcell shares the journey that led to the founding of Walking With Anthony, a nonprofit inspired by her son Anthony’s catastrophic spinal cord injury. From the moment of the accident, Micki was thrust into a world of trauma, complex medica…
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#263 Air Travel Tips for Spinal Cord Injury with Kim Hoog Kim Hoog brings a unique dual perspective as both a former flight attendant and mom and caregiver of Tyler, who lives with C5 incomplete SCI. She offers practical advice and heartfelt insight into air travel for individuals with spinal cord injuries. She outlines key challenges travelers who…
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#262 Reinventing Yourself Post-Injury with Andrew Skinner of The Triumph Foundation Andrew Skinner shares his powerful journey of resilience and purpose following a spinal cord injury in 2004. In this heartfelt conversation, he opens up about the critical role his wife Kirsten played in his recovery, the emotional toll of navigating anger and grief…
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#261 The Healing Power of Movement in Grief with Hana Kamea Kemble In this profound conversation, Hana Kamea Kemble joins Louise Phipps Senft to explore the layered experience of grief, trauma recovery, and the healing power of movement. Together, they examine how early attachment styles and childhood experiences shape our emotional responses to lo…
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On today’s episode, we are re-airing an episode of The Unexpected Journey podcast. This one is an interview of yours truly. It focuses on my journey to SCI advocacy after my accident in 2017. We talk about my life before and immediately after my wreck, and why I became active in this effort for more and better research outcomes. I also talk about t…
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#260 Science Breakthroughs & Legislative Advocacy Now for Spinal Cord Injury Research with Matthew Rodreick Matthew Rodreick, Executive Director of Unite 2 Fight Paralysis (U2FP), joins us to explore the current landscape of spinal cord injury (SCI) research and advocacy. As the father of Gabriel, who lives with a C5 complete SCI, Matthew brings a …
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#259 "He Walked Again" With Guy Romain In this episode, we sit down with Dr. Guy Romain, founder of NeuroFit360, a cutting-edge neuro physical therapy clinic that’s pushing the boundaries of outpatient spinal cord injury recovery. With locations in Florida and Atlanta, NeuroFit360 is dedicated to helping clients reclaim independence and mobility th…
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Welcome back to our final episode in this three-part series about the barriers to progress and the treatment of spinal cord injuries. We’re once again joined by neurosurgeon, researcher and lived experience advocate, Dr. Kent New. In this episode, we finish up our discussion of the many barriers to developing treatments, focusing primarily on regul…
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#258 Pushing the Boundaries in SCI Rehab with Maurice-Andre Iseli PT 2 In Part 2 of our conversation with Maurice Andre, we continue exploring his extraordinary recovery journey after a spinal cord injury—this time with a focus on the power of teamwork, long-term commitment, and the support systems that fuel progress. Maurice shares personal storie…
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#257 Pushing the Boundaries in SCI Rehab with Maurice-Andre Iseli PT 1 In this powerful kickoff to our new series on Alternative Outpatient Rehab, we sit down with Maurice Andre, who shares his courageous journey following a paragliding accident that left him paraplegic. Maurice recounts the moment everything changed—his confidence in the air, the …
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#256 Healing Grief through Movement: with Hana Kamea Kemble Today’s guest, Hana Kamea Kemble, is a Registered Clinical Counsellor and Board-Certified Dance/Movement Therapist specializing in trauma recovery through body-mind integration. With over 22 years of experience, Hana founded a movement-based healing program, The Movement Arc, to help indiv…
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This is our version of a special bulletin. And we are interrupting our regularly scheduled programming with this update on a major setback for SCI research. On March 15th, Congress passed a bill which eliminated arguably the most effective Spinal Cord Injury Research program in the world...More info: https://u2fp.org/get-educated/curecast/episode-1…
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#255 Transformative Rehabilitation at QLI In this episode, we dive into the world of SCI outpatient rehabilitation with QLI, a step down outpatient SCI rehab facility in Omaha, Nebraska, nationally recognized for their leadership in neurological recovery. Nash Mahupete and Sara Waid share their journeys to QLI, discuss the facility’s role in the SC…
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#254 How SCI Life Experience Shapes a Researcher’s Focus with Dr. Trevor Dyson-Hudson, Kessler Foundation Dr. Trevor Dyson-Hudson's journey from a small-town upbringing to a leader in spinal cord injury rehabilitation is a testament to resilience, adaptation, innovation, and the transformative power of mentorship. A rugby accident in medical school…
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Welcome back to our second episode in this three-part series about the barriers to progress in the treatment of spinal cord injuries. We’re once again joined by neurosurgeon, researcher and lived-experience advocate, Dr. Kent New. In this episode, we discuss the problems associated with preclinical, as well as early- and late-stage clinical trials.…
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#253 The Body Awareness - Happiness Connection for SCI Rehabilitation with Dr. Ann Van de Winckel In this episode, Dr. Ann Van de Winckel of the University of Minnesota School of Medicine shares cutting edge research on the role of mind-body interventions in spinal cord injury outpatient rehabilitation, emphasizing body-mapping, retrieval of body s…
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Today’s conversation is the first in a three part series with Dr. Kent New on the barriers to progress for SCI treatments. Kent is a neurosurgeon and researcher who was educated at Georgetown and Duke Universities. His career led him to brain tumor research and clinical practice at the Mayo Clinic in Jacksonville, Florida and then to overseeing cli…
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#252 New Research Underscores How Moment, Simulated Movement, and Sailing Unleash SCI Wellbeing With Dr. Albert Recio, The International Center For Spinal Cord Injury In this episode, Dr. Albert Recio shares his expertise in spinal cord injury rehabilitation research, exploring cutting-edge therapies like Activity-Based Restorative Therapy (ABRT). …
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#251 Innovations in Assistive Technology for Spinal Cord Injury with John Morris, Shepherd Center John Morris, a senior clinical research scientist at Shepherd Center, shares his journey into assistive technology and spinal cord injury rehabilitation. Don't miss how a background in political science and multicultural studies shapes a unique perspec…
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#250 What are Model Standards of Care for Outpatient Rehab? with Hannah Redd, SRALab In this episode, we sit down with Hannah Redd, a physical therapist specializing in neuromuscular disorders at the Shirley Ryan AbilityLab in Chicago, one of the Model SCI Facilities in the US. Hannah offers insight into what makes a Model SCI Facility and the sign…
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Today I’m talking with Jason Biundo. Jason is a lived-experience graduate student at Harvard Medical School. He earned a dual degree in Neuroscience and Biology from the University of Massachusetts, Amherst. It's worth noting that some of that degree was earned from a hospital bed while recovering from his spinal cord injury at Spaulding Rehabilita…
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#249 Personalized Ongoing Out Patient Therapy: The Push to Walk Story In this episode, we talk with Cynthia Templeton, mother of Darren Templeton, who sustained a C5 incomplete spinal cord injury in July 2004 at the age of 18 after diving into shallow water at the Jersey Shore. Upon returning home, after attending outpatient therapy at a renowned S…
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Today we’re talking with Dr. Jacob Goldsmith. Jacob is a research scientist at the James J. Peters Veterans Affairs Medical Center and an Assistant Professor in the Department of Neurology at the Icahn School of Medicine at Mount Sinai. Our conversation will explore the interesting relationship between Testosterone and Spinal Cord Injury. More info…
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#248 The Impact of Spinal Cord Injury Trauma on a Trauma Therapist Mom with Wendy Gilchrist In this episode, we sit down with Wendy Gilchrist, a trauma therapist, mother, and advocate, to discuss the life-altering journey she and her family embarked on after her son Pato suffered a severe spinal cord injury, C4-5 incomplete, during his senior year …
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#247 Which Out-Patient Rehab to Choose? Drug Trial, Model Facility, or Immersive Group Living with Pato Gilchrist Today’s episode delves into the extraordinary journey of Patricio "Pato" Gilchrist, who became a C4-5 incomplete quadriplegic following a life-changing diving accident in 2023. Pato shares his experiences, from the immediate aftermath o…
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#246 Taming the Anxious Mind: Insights from Dr. Heidi Schreiber-Pan On today’s episode, Dr. Heidi Schreiber-Pan, a renowned mental health expert, takes us on a journey through her unique approach to therapy, blending mindfulness, nature, and existential theory. Growing up amidst the stunning Alps, Dr. Schreiber-Pan developed a profound understandin…
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In Chapter 8 of Kate Willette’s advocacy bible, “Don’t Call it a Miracle,” she tells us the story of a human cell with special, regenerative characteristics. A cell that, although not a stem cell, perpetually repairs and replaces neural tissue throughout our life. It's called an olfactory ensheathing cell (OEC) or glia (OEG). Parts of the story see…
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#245 Dr. Cristina Sadowsky on the Power of Activity-Based exercise for those living with Spinal Cord Injury In this episode, we’re joined by Dr. Cristina Sadowsky, an international expert in rehabilitative medicine and spinal cord injury care at the International Center for Spinal Cord Injury at Kennedy Krieger Institute and Johns Hopkins Universit…
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We’re back with round two of stem cells and their application to Spinal Cord Injury, with our tour guide, Alina Garbuzov. In this episode, we wrap up our overview of stem cell types, sources and potential uses in spinal cord injury. We also field some listener questions from part 1 and talk about the work that Alina is doing at the Mark Tuszynski L…
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#244 The Evolution of Patient Lifts and Mobility Systems with Brian Trewella In this episode, we’re joined by Brian Trewella, an expert in patient mobilization and mobility solutions for individuals with limited mobility, including those with quadriplegia. With years of experience installing and customizing ceiling lifts, Brian ensures that both pa…
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#243 The Powerchair Mobilized Wheelchair Revolution with Pat George In this episode, we dive into the inspiring journey of Pat George, founder of Mobility Outdoors. After witnessing the challenges faced by powerchair users—such as inadequate service support for high-cost equipment and limited mobility options—Pat took matters into his own hands. He…
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This is the first in a two-part series covering the role of stem cells in spinal cord injury with Dr. Alina Garbuzov. Along with the experience she brings as a person living with an SCI, Alina is a researcher, working in the Mark Tuszynski Lab at the Center for Neural Repair at the University of California, San Diego. Today's conversation is part o…
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#242 Navigating Life After Spinal Cord Injury Through Nature and Healing With Jared Potter In this episode, we hear from Jared Potter, a software engineer navigating life with paraplegia after a 2023 paragliding accident in Salt Lake City. Jared shares his journey from emergency medical care to rehabilitation at the Craig H. Neilsen Rehab Hospital …
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Today we’re talking with Dr. Jen Dulin from Texas A&M University. Dr. Dulin is a spinal cord injury researcher, but this discussion is a little different as it's not about the active research she’s doing in her lab. Instead, we discuss a project that U2FP pitched to Jen a couple years ago: could we do an analysis on the last 15 years of spinal cord…
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#241 Spinal Cord Injury Home Care Best Practices with Rebecca McWalters Transitioning home from inpatient rehab is a pivotal and often overwhelming moment for spinal cord injured people and their families. It marks a first chapter of the new normal filled with optimism as well as significant challenges, especially when home modifications are incomp…
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#240 When SCI and Aging and Being Discharged from Inpatient SCI Rehab: Options to Consider with Care Manager Ellen Platt In this episode, we welcome Ellen Platt, founder of The Option Group and a seasoned expert in care management with over 30 years of experience. Ellen specializes in providing personalized guidance to families navigating care opti…
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#239 The SCI New Normal: Transitioning From Rehab to Home, School, Work and Life with College Athlete Turned Mom: Kelly Brush In this episode, we dive into Kelly’s inspiring journey as she takes us step by step into the transition home and the beginning of the "New Normal" for herself and her family after a spinal cord injury (SCI). Kelly’s story i…
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Today we are talking to Arash Bayatmakou and Dale Hull, the organizational heads of NorCal SCI and Neuroworx, respectively. NorCal SCI is a resource non-profit serving the SCI community of northern California. Neroworx is an outpatient rehabilitation center in Salt Lake City, Utah. The main focus of our discussion is the lack of access to outpatien…
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#238 An Extraordinary Story of a Spinal Cord Injury Clinical Trial, a Humanitarian Exception, and Extended InPatient Rehab with Gustavo Gilchrist In this episode, we hear from Gustavo Gilchrist as he recounts the powerful journey of his son Patricio's spinal cord injury following a diving accident. We explore the details of a clinical trial and ste…
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#237 The Critical Role of Bed Sore/Pressure Wound Management with Dr. Quyen Catania In today's episode, Dr. Quyen Catania, a physical therapist and clinical education coordinator at the International Center for Spinal Cord Injury, dives deep into the critical aspects of wound care for individuals living with paralysis, with a particular focus on sk…
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#236 Frequent Flyer Miles: Flying Family & Friends to InPatient Rehab and Managing Home Renovations with Ned Insley Today we explore a common challenge many SCI families face: choosing an out-of-state inpatient rehab facility for their loved one, often far from friends and familiar surroundings. While these Model SCI Rehabilitation centers offer sp…
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#235 Navigating the Chaos of Insurance Coverage for Rehab with Edie Perkins In today’s episode we talk with Edie Perkins, a former elite marathoner and cyclist, who shares her journey of being paralyzed from the chest down in a bike accident and navigating the inpatient rehab experience related to insurance coverage. She discusses the challenges of…
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#234 The Power of Family Support in Recovery with Mike Nieder In this conversation, Mike Nieder shares the profound journey of his son Jared following a spinal cord injury. He recounts the day of the accident, the challenges faced in navigating the medical system, and the emotional toll on the family. Mike emphasizes the importance of advocacy, fam…
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Today we are talking about Brain-Computer Interfaces (or BCI) with Luke Bashford and Daniel Kramer. Daniel is a neurosurgeon and faculty member at the University of Colorado, Anschutz. He is also the co-founder of the Neural Engineering Research and Design of Colorado (or NERDco). Luke is a researcher in neuroscience and neurotechnology. He is co-a…
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#233 Occupational Therapy and Going the Max with Ryan Bird In this episode, we shift our focus to Ryan Bird, an occupational therapist at Pioneer Ridge in Lawrence, Kansas, and a close friend of Jarod Nieder. Jarod, our featured guest in this chapter of Season 5, became a C5 complete quadriplegic following a diving accident at a Mexican resort at a…
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#232 Love and Persistence In In-Patient Rehab and Into a Nursing Home with Jerod Nieder Our next guest is a true hero who transformed a life-altering moment into a decade of resilience and achievement. After facing total devastation, Jerod found love, hope, and excellence, guiding us through his incredible journey from trauma to recovery. His story…
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#231 Understanding Trauma: Why Can’t I think my way out of this? In this episode, trauma specialist Mary Sue McCarthy delves into the emotional and psychological impact of spinal cord injury on families, debunking myths about trauma. She explains how the amygdala triggers responses like fight, flight, freeze, or fawn and emphasizes the need for som…
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#230 In The Eyes of a Surgeon with Dr. Hasan Zaidi In today’s episode, we have the privilege of talking with Dr. Zaidi. Dr. Zaidi is an Associate Professor of Neurosurgery at Harvard Medical School and Co-Director of the Adult Deformity/Scoliosis Center at Brigham and Women's Hospital. He specializes in treating complex spine diseases with minimall…
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