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The Simply CMT Podcast is presented by the Charcot-Marie-Tooth Association. This monthly podcast will highlight the CMT community and the work of CMTA. To learn more about Charcot-Marie-Tooth disease and CMTA, visit cmtausa.org.
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Whether you or a loved one are newly diagnosed with Charcot Marie Tooth disease, or you are a seasoned CMT pro, The Cryptid Sloth Show is the podcast for you. Charcot Marie Tooth disease, or CMT for short, is an inheritable peripheral nervous system disease. Also known by names such as Hereditary Motor and Sensory Neuropathy (HMSN), Hereditary Sensory and Autonomic Neuropathy (HSAN), distal Hereditary Motor and Sensory Neuropathy (dHMSN), and many others, CMT is the most common inheritable n ...
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Simply CMT Podcast Ep. 5: Jeana Sweeney on the power of fundraising, the CMT Community, and more!
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19:38
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CMTA's Chief Engagement & Gift Officer, Jeana Sweeney, joined Episode #5 of the Simply CMT Podcast presented by the Charcot-Marie-Tooth Association (CMTA). In this episode, Jeana shares her personal connection to CMT, and all the different ways you can support CMTA. From donating directly to support CMTA-STAR research programs and matching gifts to…
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Simply CMT Podcast Ep. 4: Laurel Richardson on life with CMT, support programs, and more!
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28:38
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Living fully with CMT is both a personal journey and a professional mission for Laurel Richardson, CMTA’s Director of Community Outreach. In this episode of Simply CMT, Laurel shares how Charcot-Marie-Tooth disease (CMT) has shaped her life and how bracing helped her reclaim her quality of life. She also reflects on what drives her work at CMTA and…
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Simply CMT Podcast Ep. 3: Dr. Katherine Forsey on CMT Research, CMTA-STAR, & More!
39:45
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Welcome to Episode 3 of the Simply CMT Podcast! Join us as we talk with Dr. Katherine Forsey, CMTA's Chief Research Officer. Dr. Forsey shares her journey living with CMT, the impact of CMTA’s Strategy To Accelerate Research (CMTA-STAR), CMTA's Patients as Partners in Research platform, CMTA's Patient & Research Summit, and more! Don't forget to li…
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Simply CMT Podcast Ep. 2: Jonah Berger on CMTA Youth Programs, Camp Footprint & Living with CMT
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Welcome to Episode 2 of the Simply CMT Podcast! Join us as we talk with Jonah Berger, CMTA National Youth Programs Manager and Director of Camp Footprint. Jonah shares his journey living with CMTX, the impact of CMTA’s Youth and Young Adults Programs, and how CMTA's Camp Footprint empowers kids with Charcot-Marie-Tooth disease (CMT). Don't forget t…
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CMTA's Chief Executive Officer, Dr. Sue Bruhn, discusses the work of the Charcot-Marie-Tooth Association (CMTA) and the impact the organization has on the global CMT community.By Charcot-Marie-Tooth Association (CMTA)
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This episode finishes the story of show host Kenneth Raymond’s personal road trip journey that led to his CMT diagnosis. This is the second installment of a two-part episode. The first episode, Road Trip 1, starts with the story of a 12-year-old climbing a giant oak tree in the dead-of-Winter, and then everything changes all of a sudden, without wa…
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This episode tells the story of show host Kenneth Raymond’s personal road trip journey that led to his CMT diagnosis. This is the first installment of a two-part episode, and it starts with the story of a 12-year-old climbing a giant oak tree in the dead-of-Winter in suburban Detroit, and then everything changes all of a sudden, without warning, an…
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Does CMT change types from one generation to the next? Can CMT change types? Can somebody inherit a different type of CMT than what their mom or dad has? The answers are easy, but getting to the why and how behind the answer requires a little bit of digging. In this episode, we tackle the questions about CMT changing types through inheritance and e…
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With CMT being inheritable, there are four ways that CMT can be inherited. These four ways are called the inheritance patterns. The inheritance patterns are confusing. The genetic mutations that cause CMT are confusing. There are so many types, each confusingly caused by a different confusing gene mutation. CMT is as confusing as it gets. For all t…
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In this inaugural episode, I dive into the deep end, head first, and fully explain each way Charcot Marie Tooth disease can be inherited, and in great detail. Then, I remove the veil of secrecy from the mysteries of the genetic tests for CMT by explaining what the terminology is in the test reports and how the terminology is used to aid the doctors…
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The official trailer for the Cryptid Sloth Show, the new podcast dedicated to the weirdest named neuromuscular disease nobody has ever heard of: CMT. Charcot Marie Tooth disease, or CMT for short, is a rare inheritable neuromuscular disease, and it is the most common inherited neuromuscular disease. Affecting over 3 million people, almost nobody ha…
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