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Help! I'm Hypermobile

Alexandra Orfanides

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Forget the misconceptions—being hypermobile doesn't mean you're stuck without options. Join hypermobility expert Alex as she reveals exciting breakthroughs and practical tips for managing hypermobility, HSD, and hEDS, as well as sharing insight from her own personal journey. Get ready for engaging discussions, relatable anecdotes, and a few laughs along the way. Prepare to feel inspired, informed, and connected. Because incurable does not mean untreatable!
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Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand. Each week, join Dr. Linda Blues ...
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hsDNA

HS Design, INC

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The hsDNA Podcast is a conversation style discussion focused on human-centered product design. Justin Starbird hosts the hsDNA Podcast to touch on topics like combining researchers, human factors engineers, designers, engineers, marketing and manufacturing experts to create a team specifically tailored to client’s needs. At HS Design, the team works in the medical life science, surgical and consumer healthcare space to create patient-centric solutions. Conversations with the HSD Team, Client ...
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Welcome to the Hillsboro School District's weekly Hot News podcast. We are the fourth-largest public school district in the state of Oregon with 35 schools serving more than 20,000 students from preschool through twelfth grade. Now you can listen to the District’s top news on your phone, in your car, or wherever is convenient for you.
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Empowered EDS

Lauren Prince and Jason Cole

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Empowered EDS: Your Path to Living Well with Ehlers-Danlos Syndrome and Chronic Illness For those of you living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD), and other chronic health conditions or supporting someone who does, you know it's more than just a diagnosis—it's a journey. Hosted by Lauren Prince, MSW, FDN-P, and Jason Cole, DPT, founders of Connective Wellness, Empowered EDS is here to provide compassionate, expert guidance for managing EDS symptoms and ...
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¡Enero es el Mes de Agradecimiento a la Mesa Directiva! Nos gustaría aprovechar esta oportunidad para agradecer sinceramente a nuestros siete miembros electos de la Mesa Directiva por su servicio voluntario al distrito y a la gran comunidad de Hillsboro: la presidenta Ivette Pantoja, la vicepresidenta See Eun Kim y los directores Yessica Hardin Mer…
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In this Office Hours episode, Dr. Linda Bluestein tackles some of the most challenging questions from our listeners and dive deep into the overlooked intersections of hypermobility, surgical complications, and neurodiversity. What happens when five rectal prolapse surgeries fail? Dr. Bluestein breaks down why so many surgical interventions fall sho…
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January is School Board Appreciation Month! We’d like to take this opportunity to sincerely thank our seven elected School Board members for their voluntary service to the District and to the greater Hillsboro community: Chair Ivette Pantoja, Vice Chair See Eun Kim, and Directors Yessica Hardin Mercado, Patrick Maguire, Katie Rhyne, Nancy Thomas, a…
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In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders)? Why ha…
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We are bringing you an episode this month that is sure to fill you up with joy as we feature the accomplishments of our Nutrition Services Department! These teams may be more behind the scenes, but they play a huge role in the success and learning environment for our students. With every dish served is a story of logistics, care, and commitment to …
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In this info-packed episode, Dr. Linda Bluestein sits down with cardiologist Dr. Alexis Cutchins, an expert in pelvic venous disease (PVD) and POTS (postural orthostatic tachycardia syndrome), to tackle one of the most misunderstood vascular conditions in complex patients. From treatment options and expected outcomes to what really happens after em…
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Coach Sean and I discuss why strength training alone often isn’t enough for hypermobile bodies. Drawing on my personal experience training with hEDS, we explore why learning to generate tension matters even for experienced, seemingly strong hypermobile athletes, and why cardiovascular work can support strength rather than compete with it. We dig de…
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En este episodio: * ¡Agradecemos el apoyo de nuestra comunidad HSD! * Liberación de alevines de salmón * No se emitirá el boletín Noticias de la Semana durante el receso de invierno * Encuesta sobre el Plan Estratégico * El formulario FAFSA 2026-27 ya está disponible * Reunión del Comité Consultivo de Padres Indígenas Estadounidenses y Nativos de A…
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So many people in our community have stepped up and showed up for our students, staff, and families this fall! Individuals, local businesses, and community-based organizations have donated money, school supplies, food, backpacks, boxes, refrigerators, clothing, holiday gifts and more; provided services and resources; and invested time, information,…
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Think EDS and pregnancy is a straightforward conversation? Think again. In this jam-packed Office Hours episode, I dig into everything I wish someone had told me and everything I’ve since learned from patients, research, and my own pregnancies. From racing heart rates and failed epidurals to postpartum complications and misunderstood mental health …
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En este episodio: * Resúmenes de los perfiles escolares y del distrito * Reunión de otoño del Comité Directivo del Programa Caminos a la Profesión y a la Universidad * Reunión del Comité Consultivo de Involucramiento Familiar Black Village: Hora de cuentos de invierno * Concursos académicos * El formulario FAFSA 2026-27 ya está disponible * Reunión…
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On Thursday, November 20, the Oregon Department of Education released At-A-Glance School and District Profiles for the 2024-25 school year. The Profiles are designed to provide a consistent set of school and district level information to local communities. They contain previously released assessment data for last school year, previously released gr…
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In this episode, Dr. Linda Bluestein is joined by Professor Tara Renton, a globally recognized expert in orofacial pain, to explore the nuanced world of facial pain, temporomandibular joint (TMJ) dysfunction, and migraine disorders. Together, they unpack why so many patients suffer from persistent facial, jaw, or head pain despite “normal” scans an…
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Pregnant with hEDS or HSD (or thinking about it for future)? In this episode, I’m joined by midwife and professor Dr. Sally Pezaro to talk through what hypermobile people REALLY need to know about pregnancy and birth. We break down👇 Sally’s 3 key recommendations for anyone pregnant with hEDS/HSD how to share the guidelines with your doctor or midwi…
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Noticias de Última Hora se publica y se envía por correo electrónico a las familias y al personal del HSD cada semana de clases. Por favor, añada la dirección a su lista de remitentes seguros para asegurarse de recibir siempre la edición más reciente. También guarde en sus favoritos el sitio web de nuestro distrito: www.hsd.k12.or.us…
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On Wednesday, November 19, Oregon’s Legislative Revenue Office released the state’s December Economic and Revenue Forecast. The good news is that Net General Fund and Lottery resources are up $318.8 million from the September Forecast. The bad news is that they are still down $635.9 million since the Close of Session Forecast in June of this year. …
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In this raw and uncompromising conversation, Dr. Linda Bluestein and co-host Jennifer Milner sit down with Skylar Brandt, principal dancer with American Ballet Theatre, for a gripping look at what it truly takes to perform at the highest level. Skylar pulls back the curtain on the physical and psychological demands of elite ballet—the toll it takes…
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Es la semana de Acción de Gracias, lo que significa que tenemos una nueva edición anual sobre el clima en nuestro boletín de Noticias de la Semana. En esta sección, nos gusta recordarle a las familias cómo tomamos las decisiones relacionadas con las inclemencias meteorológicas y cómo se comunican dichas decisiones. Nuestro distrito es muy extenso, …
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It’s Thanksgiving week, which means it’s time for our annual ‘weather issue’ of Hot News! This is where we like to remind families about how we make inclement weather decisions and how those decisions are communicated. Our district is very large - spanning 204 miles - and within our boundaries are elevations ranging from 140 feet to more than 1500 …
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This month we are embracing the concept of “No Waste November” and learning more about environmental resource management at HSD! We are excited to shine an energy-efficient light on the behind the scenes efforts that are happening around the district to prioritize sustainability, conservation, and creative resourcefulness. Maybe you will hear some …
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In this solo episode, Dr. Linda Bluestein brings on her producers to help unpack the hidden complications that can follow seemingly routine medical procedures. From the lingering effects of breast surgery to the controversial use of nitrous oxide, Dr. Bluestein explores how standard treatments can backfire, especially for patients with EDS, MCAS, o…
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We're back (again!). And this time Hannah is sharing her experience navigating hEDS, POTS, histamine issues, and PCOS as a patient. We dig deep into👇 •⁠ ⁠our shared experience of feeling abandoned by the medical system at certain points in our healthcare journey (and what we did next) •⁠ ⁠why there is no such thing as a hypermobile "look" when it c…
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¡Del 17 al 21 de noviembre se celebra la Semana de la Educación Estadounidense! ¡Este es un momento en el que destacamos y celebramos el rol fundamental que desempeñan todos los miembros del personal de HSD al brindar una experiencia educativa en la que cada estudiante sea conocido, valorado y empoderado para que logren alcanzar sus sueños! Para re…
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November 17 through 21 is American Education Week! This is a time where we highlight and celebrate the critical role all HSD staff members play in providing an educational experience in which every student is known, valued, and empowered to achieve their dreams! To truly capture the spirit of gratitude for our educators, we asked students and famil…
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Host Paul Cimins interviews Gil Martin, writer and podcaster for 25 years. Locked On Islander host, Gil Martin is also the host of the flagship Locked On NHL podcast. He is the author of the book “Ice Wars” which documents the history of New York’s most intense sports rivalry, the rivalry between the Islanders and Rangers. He has covered the NHL, M…
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In this solo episode, Dr. Linda Bluestein brings on her producers to ask your most pressing questions about what it’s really like to live with and treat Ehlers-Danlos Syndromes (EDS) and Mast Cell Activation Syndrome (MCAS). From the pitfalls of internet misinformation to the hidden ways MCAS impacts medication tolerance, Dr. Bluestein shares her u…
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Debido a que los beneficios del Programa de Asistencia Nutricional Suplementaria (SNAP, por sus siglas en inglés) están demorados y las solicitudes de asistencia alimentaria de emergencia están aumentando, queremos recordarles a las familias que las escuelas de HSD ofrecen desayuno y almuerzo gratuitos para todos los estudiantes. Esto es posible gr…
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As SNAP benefits lag and the demand for emergency food assistance increases, we want to remind families that HSD schools offer free breakfast and lunch to all students. This is possible because of our district’s participation in the Community Eligibility Provision (CEP) of the National School Lunch and Breakfast Program. District-level qualificatio…
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In this eye-opening conversation, Dr. Linda Bluestein sits down with psychiatrist Dr. Janet Settle to unpack the medical mystery that is mast cell activation syndrome (MCAS) and why it may be hiding in plain sight as depression, anxiety, panic attacks, or even psychosis. Together, they explore how immune system dysregulation can masquerade as psych…
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WE'RE BACK — with guests!🤩 And for this very special first episode, the tables have turned… and I’m the one being interviewed😅 Joining me is my dear friend Hannah (who shares her own experiences online living with hEDS, POTS, and a histamine condition). Today, she’s asking me about: my personal journey to getting an hEDS diagnosis (finally!) last s…
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¡Se levanta el telón para nuestras obras teatrales de otoño de las escuelas preparatorias! No se pierda estas divertidas y fabulosas producciones de nuestros jóvenes actores. El grupo teatral de Hilhi lo invita a ver la obra Frankenstein o el moderno Prometeo los días 14, 15, 21 y 22 de noviembre a las 7:00 p.m., y los días 15 y 22 de noviembre a l…
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The curtains are rising for our high school fall plays! Don’t miss these fun and fabulous productions by our teenage thespians. Hilhi Theatre invites you to Frankenstein, or, The Modern Prometheus on November 14, 15, 21, and 22 at 7 p.m., and November 15 and 22 at 2 p.m. Liberty Theatre presents Almost, Maine on November 14, 15, 21, and 22 at 7 p.m…
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In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is …
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Durante el mes de noviembre, celebramos el Mes de la Herencia Indígena Estadounidense, reconociendo la belleza, resiliencia e impacto positivo de las culturas indígenas estadounidenses y nativas de Alaska. Este compromiso va más allá de la celebración. También es un momento para confrontar las injusticias históricas y la lucha constante por el reco…
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In November, we celebrate Native American Heritage Month, recognizing the tremendous beauty, resilience, and positive impact of Native American, Alaska Native, and Indigenous cultures. This commitment extends beyond celebration. It is also a moment to confront the historical injustices and ongoing struggles for recognition, equality, and peace that…
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In this eye-opening episode, Dr. Linda Bluestein speaks with Dr. Alexis Cutchins, a cardiologist passionate about uncovering missed and misunderstood diagnoses. One of those? Pelvic Venous Disease, a condition affecting countless patients but rarely identified. They explore how PVD can mimic or exacerbate conditions like dysautonomia, MCAS, and chr…
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Del 20 al 26 de octubre de 2025 se celebra la Semana de Escuelas Seguras en Estados Unidos. Durante este tiempo, reconocemos el compromiso continuo de nuestros estudiantes, miembros del personal y socios comunitarios para mantener entornos de aprendizaje seguros y de apoyo en todo el Distrito Escolar de Hillsboro. La base de nuestros esfuerzos por …
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