A regular podcast with features, interviews and conversations about radio and audio with a special focus on public benefit. Host Dom Chambers is a well-known advocate of community media. Currently, he runs Somer Valley FM, The local Radio Alliance and is CEO of the Somer Valley Education Trust. He is a trustee of the Radio Academy.’ Dom has worked in most radio sectors and has visited over 70 local radio stations in the UK. He bridges grass-roots knowledge with national strategic vision.
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Dom Chambers Podcasts
You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.
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Jane Simpson speaks with Richard Rawnsley about his recent MND diagnosis. Richard has decided to fight back and is currently walking the Santiago De Compostela trail, this time in France. Real stories, research, and lived experience from the MND community. A podcast for connection, awareness, and hope. You can follow Richard's journey here https://…
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Let's Talk MND - 'Finally, in Hands I Can Trust'
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42:02Dr. Karen Hutchinson, is an Honorary Research Fellow at Macquarie University and Anthea Smith whose partner, Jason, lives MND are two authors of a recently published research paper, "'Finally, in Hands I Can Trust': Perspectives on Trust in Motor Neurone Disease Care." It explores how individuals with Motor Neurone Disease (MND) build trust with he…
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Janet Hough was diagnosed with MND in June 2023. Janet and her husband Peter are a true team and focus on what brings them joy on their MND journey. They have started a monthly MND Mornington Peninsula group They are organising a MND Victoria - Event - Walk for a Cause - Mornington Peninsula - on October 5th at Mornington Park. You can find out mor…
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Peter Chambers was diagnosed with MND in 2019. Whilst Peter does not deny the challenges MND have given him, he is living his life with intention, joy and a seriously wicked sense of humour which he delivers to us via videos He has an alter ego, "Cranky Pete", who points out the ridiculous and things he just doesnt like. He has also recently writte…
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Let's Talk MND - Neil Dyson and Maree Stanley
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43:22In 2023, Neil Dyson and his wife, Maree Stanley, had just retired after running a successful business. Neil was then diagnosed with MND Nei and Maree take us through the story to date and how they are living as best they can with MND.By Jane Simpson
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Let's Talk MND - Firies Climb for MND, Prof Dom Rowe, Gavin Clifton, Phil Camden
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32:27The Firies Climb for MND was created in 2015 by firefighter Matt Pridham after his best friend, Adam Regal, was diagnosed with MND. After learning that there was no known treatment or cure, they became determined to join the fight to find one. Together, they pledged to raise as much money and awareness for MND as possible. All funds raised go to Pr…
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On June 22, 2023, Ron "Hobbo" Hobden's life changed in a single sentence: You have motor neurone disease. No cure. No treatment. Just a brutal countdown he never saw coming. A week earlier, the 40-year-old rugby player, devoted husband, and proud dad to Lizzie, 5, and Henry, 3, had been training for a marathon. Fit, strong, and full of plans, he ha…
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Damian Andrews was 42 years old when he was diagnosed with MND. Damian says he is going to "ride until he dies" He and his wife Jane & their 3 boys live in Hervey Bay in QLD. They are a dynamic family. Living every day the best they possibly can with MND. They are also absolute champions, raising awareness of MND through their Facebook page which y…
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Dr. Christen Chisholm is a post-doctoral research fellow at the University of Wollongong in Australia where she trained in the lab of the late Professor Justin Yerbury. She recently completed her PhD which focused on the development of an antibody based BioPROTAC therapeutic to specifically reduce levels of misfolded SOD1, a toxic protein species a…
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Victoria University are conducting a trial called "The neuroprotective potential of exercise in individuals with Motor Neuron Disease – the ProtEx-MND project". It is in collaboration with Calvary Health Care Bethlehem and received funding from the National Health and Medical Research Council (NHMRC). They would like to understand if exercise can h…
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Professor Bradley Turner is Head of the Motor Neuron Disease Group and Research Lead of the Brain Health and Repair Mission at The Florey Institute. His group has a broad research interest in neurodegenerative diseases affecting the voluntary motor system in the brain and spinal cord. His team focuses on MND. This is a very brief summary but if I s…
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In 2022, Peter's life took an unexpected turn when he was diagnosed with MND. While initially confronting, this diagnosis became a catalyst for transformation. Rising above feelings of helplessness, Peter stands as a testament to the strength of the human spirit, embracing a renewed sense of purpose: to turn his personal journey into a platform for…
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Dr Rowan Hearn is the Clinical Director Palliative Medicine at Calvary Health care. Rowan supports the improvement of quality and safety in palliative care, having served as a member of the Governance Committee for the Palliative Care Clinical Network for the Department of Health, and Co-Chair of the Network's Expert Working Group for Care of the D…
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Let's Talk MND - Mike Schneider and Andrew Danson
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33:11Michael Schnieder is the Managing Director of Bunnings Group, Mike is also the Chair of Fight MND. Andrew Danson is a Director of The Leasing Collective. He is a board member of the South Melbourne Market. Andrew is also President of Motor Neuron Disease Australia He has lived experience with the disease, with his father having passed away at the s…
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Tim Baker is the best-selling author of The Rip Curl Story, Occy, High Surf, Bustin' Down The Door, Surf For Your Life, Century of Surf and Surfari. He is a former editor of Tracks, Surfing Life and Slow Living magazines, and a three-time winner of the Surfing Australia Hall of Fame Culture Award. On July 7, 2015, Tim was diagnosed, out of the blue…
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Let's Talk MND - Andrew Denton & Jane Morris
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55:07Andrew Denton is an Australian Gold Logie nominated television presenter and former radio host amongst the many, many, things that Andrew has done. He was the host of the ABC's brilliant interview program and my favorite show ever, Enough Rope. Andrew founded Go Gentle Australia in 2016. Go Gentle is a charity which promotes end of life choices. in…
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Emma Vulin is a Member of the Victorian Parliament. She is the Member for Pakenham. Emma was diagnosed with MND in April of 2024. Emma is so open and honest about her diagnosis with MND and the changes that are happening to her and her family. Emma is smart, funny, loving and loyal. Enjoy her Podcast. https://www.parliament.vic.gov.au/members/emma-…
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Welcome to the 2025 "Let's Talk MND" Podcast. Mark Puls was diagnosed with MND in 2022. Like many people living with MND, he is doing for others. He is raising funds for Prof Domonic Rowe at Macquarie University. Last year, they raised $13k. They are planning another event this October. This year, members of his family and some friends will climb M…
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Barry Werth is a pharmacist. His wife Trean died of MND. Barry has so much experience and is bringing his wealth of knowledge to many MND research projects. He has also written a fabulous article on MND for Pharmacists so they can better care for their clients. https://www.australianpharmacist.com.au/role-of-the-pharmacist-in-motor-neurone-disease/…
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Prof. Paul Tallman is a Neurologist who specialises in MND. Paul also is one of the leaders of the MiNDAUS Registry, he explains it to us, how it can help and how we can help. https://www.mindaus.orgBy Jane Simpson
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Let's celebrate the first year of our PodcastBy Jane Simpson
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Troy Sachs is one of the world's most recognised and awarded Paralympians. He led the Australian Wheelchair Basketball team, the Rollers, to win two gold and one silver medal in five Paralympic Games from 1992 to 2008. In 1997 he was awarded an Order of Australia Medal and Australian Sports Medal in 2000. He is also inducted into the Sport Australi…
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Matt Stickland has been LIVING with MND for 9.5 years. He is a husband and dad, he has had to stop working, but is lucky to live on a rural property. Matt has a beautiful attitude to life, is an amazing support to others with MND and is a demon at fundraising too. I loved chatting to Matt.By Jane Simpson
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Finn Cadman is 10 years old. He is an MND champion, he is MND Vic's youngest ambassador. Finn is unhappy about the discrepancy between NDIS and Aged Care. Finn is "schmoozing" Politicians to make a change for his Glampa and others.By Jane Simpson
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Julie Labra is a Project Manager with MNDA. Julie has worked with people with MND for the past 19 years. Julie was the project manager on the new Lived Experience Network (LEN) which brings together people with Lived Experience and people who wish to research different aspect of MND. Working on projects with people who have Lived Experience is teac…
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Let's Talk MND - Firies Climb for MND, Matt Pridham, Prof. Dominic Rowe, Jane Simpson, Gavin Clifton
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1:22:40I was delighted to be included in the Firies for MND climb in the blue mountains and invited to be on the Dirt Church Radio podcast with Matt Pridham, Prof Dom Rowe and Gavin Clifton. Dirt Church radio have kindly allowed me to share their podcast with you all. Prof. Dominic Rowe shares very interesting information about the possible link between t…
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Dr Rachel Yerbury (Phd) is a registered psychologist as well as a lecturer and researcher in the School of Psychology and Public Health, La Trobe University Australia. Her research area focusses on the connection between humans with Nature / animate worlds and how this impacts mutual well-being. In particular. Rachel is also an author, a mother and…
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Kathie Barker Many of us don't know that once we've been diagnosed with a terminal illness we have access to our Superannuation. Kathie is the CEO of "Release My Super" and she tells us how you can access your Superannuation You also may be eligible to make a TPD super claim for compensation if you've suffered an injury or illness that permanently …
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Let's Talk MND - Michael Thurn CEO PharmAust
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38:07Our guest this week is Michael Thurn the CEO and Managing Director of PharmAust, a clinical-stage biotechnology company. He tells us about Monepantel which is a well-known veterinary drug. It has been shown to have an effect on the abnormal accumulation of protein in cells. This accumulation is associated with motor neurone disease. Monepantel work…
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Jason and Anthea Smith are MND Warriors. Jason was diagonsed in 2017 at the age of 39. Together they are battling this disease and raising awareness at the highest levels. They ROCK.By Jane Simpson
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Let's Talk MND - Case study involving MND Lived Experience in research
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41:06The episode of Let's Talk MND is about the best practice of research collaboration between Dr Marnie Graco and people with MND which is crucial for advancing understanding and care. This approach not only improves the relevance of research programs but also fosters a sense of empowerment and involvement among those directly affected by MND. It's a …
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Maxine Gee was diagnosed in August of 2023 with Bulbar Onset MND which means she is unable to talk. Maxine is living her life with MND to the MAX Here she and one of her tribe Snez tell us her storyBy Jane Simpson
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Pat Cunningham Pat is one of the 3 Amegos' of Neale Daniher, Dr Ian Davis and himself who started Fight MND. Pat's wife Ange had MND and lost her battle with the beast in 2016, leaving behind Pat & their two small daughters Pat has spearheaded the project management of the Fight MNDs largest public fundraiser – Big Freeze at the G, and also leads t…
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Matt Nable is famous, he is an Australian film and television actor, writer, director and acclaimed author. He works non stop in Australia and overseas alongside the likes of Robert DiNero and Clive Owens and Vindisel. In his latest film Infusion, on Stan, he wrote directed and starred with Sam Worthington. He is former professional rugby league pl…
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Phil Smith was diagnosed with MND over 6 years ago. Phil has the most wonderful outlook on life and he is living it to the fullest - including playing golf.......how does he do this?By Jane Simpson
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Let's Talk MND - Jane Simpson interviewed Clare Sullivan CEO of MNDA
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38:35Clare Sullivan is the CEO of Motor Neurone Disease Australia. Clare asked if she could interview me - thats a twist!. I said yes, and this is my story with MNDBy Jane Simpson
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Dr Bec Sheean is the Director, Cure Research and Programs at Fight MND Bec has been with Fight MND for 8 years Bec discusses her career, he beloved dog Ruth and the amazing impact Fight MND has on the life of people with MND. Bec is an especially gorgeous human.By Jane Simpson
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David Neitz or Neita, was the longest-serving captain in the history of the Melbourne Football Club and the first Melbourne player to achieve the 300-game milestone. Which basically means in Melbourne he is a hero. However, David is a co-founder of Brewmanity which is more than just a brewery; it's a Melbourne beer brand committed to doing good. Si…
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Let's Talk MND Emeritus Professor Surindar Cheema PHD
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26:52Emeritus Professor Surindar Cheema PhD Honours and PhD degrees. Since 1978, Professor Cheema has held research and teaching appointments at Monash University, The University of North Carolina at Chapel Hill USA, The University of Melbourne, The Walter and Eliza Hall Institute of Medical Research and The Howard Florey Institute. He spent approximate…
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Bec Daniher was living her best life. Bec represented Victoria in both junior and senior level rowing, winning two Queen's Cups during her time. She had the honour of being selected to represent Australia culminating in the World Championships in 2013 in South Korea. Bec studied business and pursued a career in accountancy, working in the field of …
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Sophia Levin has been a freelance food and travel journalist for more than a decade. You will have read her in Lonely Planet, The Age and Sydney Morning Herald's Good Food, SBS Food, Domain Review, National Geographic, The Guardian, delicious, in-flight magazines, Broadsheet, Time Out and more. She has co-authored travel guidebooks and reviewed for…
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Carla France lost her husband Neale to MND after a battle they all fought. She wants to share thier story. This one may be a little hard to listen to.By Jane Simpson
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Let's Talk MND - Woz and his mower got to Canberra
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40:13Within one month Woz and his daughter Belinda, and thier supporters made the arrangements and drove 800kms from country Victoria to Canberra to meet the PM. In this epidode they give us an update. You can also watch on the "Let's Talk MND" You Tube chanelBy Jane Simpson
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Let's Talk MND - Hayley and Cameron McNeill
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48:57Hayley and Cameron McNeill are brother ans sister, they lost thier dad to MND recently. Earlier they lost thier aunt. They are both from Warnabool. Hayley is lving in Ballarat where she is studying biomedical science and goal is to become a bio technician to aid in MND research. Her brother Cameron is a town planner married with 2 little children a…
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Maxine Gee was diagnosed in July of 2023 - she has some extremely powerful words to share with usBy Jane Simpson
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Warren wants to MAKE A DIFFERENCE. If there is anyway you can help contact him on 0428378395By Jane Simpson
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Professor Dominic Rowe is the Foundation Professor of Neurology in the Faculty of Medicine and Health Sciences at Macquarie University; Chairman of Macquarie Neurology, and Consultant Neurologist at Macquarie University Hospital. Dom was my husband Robert's Dr. For ten years he was Chairman of the MND Research Institute of Australia, taking this fu…
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Mim Simpson lost her dad to MND, she is also my daughter. It is really interesting to hear her perspective on MND and losing her loved dad. We should all interview our kids, it was illuminating,By Jane Simpson
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Prof Bedlack is a Professor of Neurology at Duke University in Northern Carolina He is the Stewart, Hughes and Wendt Distinguished Professor.Faculty Network Member of the Duke Institute for Brain Sciences.Associate of the Duke Initiative for Science & Society Rick is going to discuss the phenomenon he has witnessed and studied of MND reversals. He …
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John Hanley was diagnosed with MND about 10 years ago. John's attitude to life is inspiring, always giving first. As he says "When God closes a door he opens a window" John has always loved music, now he is following his passion, writing and recording songs......that make you sing and dance around the house, John gifts joy. You can listen to his so…
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