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I Was A Wheelchair Kid

FacingDisability.com

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True stories of “wheelchair kids”—children and teens who were suddenly paralyzed and had to figure out how to navigate their lives in a wheelchair. These podcasts tell personal stories of how paralyzed kids went about finding their own solutions. As children. They’re grown-ups now, but their childhood memories are still powerful. No boring lectures here, just real-life stories and funny moments about returning to school, finding ways to feel “normal” again, beginning to date and creating a n ...
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Hosted by Sophie Elwes, who knows a thing or two about overcoming difficulties, after sustaining a spinal cord injury in 2011. Each episode Sophie will interview an extraordinary guest who has faced and overcome enormous challenges and adversity and is achieving incredible things in spite of what they've had to deal with. She'll be finding out their story, about their greatest struggles and triumphs, and asking them what advice they would share with other people dealing with challenges of th ...
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A collection of knowledge and insights from brilliant clinicians in the field of neuromotor development and childhood disability to inspire, motivate and provide you with the tools to help the amazing kids you treat develop their potential www.wiredondevelopment.com
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Yogesh Sonar, a Pune-based digital marketing trainer and consultant, has trained many physically disabled people across India and enabled them to become independent. During this lockdown period, he wants to reach out to more people and is looking for support. Yogesh Sonar, a Pune-based digital marketing trainer and consultant, has trained many physically disabled people across India and enabled them to become independent. During this lockdown period, he wants to reach out to more people and ...
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Michael Workman (PT, Bamboo Brace designer, and neurodevelopmental geek with 30 years of floor-time wisdom) joined me for a fascinating deep dive into the hidden power of such a seemingly simple wearable device for such a seemingly simple joint. If you're a therapists who sees the elbows as gateways to whole-body potential, you're going to love wha…
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Nobody becomes a pediatric therapists to make children’s lives miserable, or worse, create pain and life limiting boney deformities and yet, there’s a very real possibility that somewhere along your career path, that’s exactly what your suggestions or recommendations might have done. Now this is a confronting thought , but one that needs some airti…
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This was such a fun interview for me to do but be warned, once you’ve listened to Jane and Susie explaining the benefits and mechanism of equine assisted therapy, you are going to want to go find yourself a stable with a few horses and get trained in hippotherapy if you’re not already. . I was genuinely blown away by how the the horse can be used t…
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From philosophy student and activist to pioneer in early childhood intervention approaches for therapists, Karen Kangas takes us on a journey of developing clinical excellence. She is an occupational therapists with over 50 years of experience, specializing in pediatrics, seating, and augmentative and alternative communication (AAC). She has partic…
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James Sultzer is an academic neurorehabilitation engineer and a father to a child with a significant brain injury. This conversation is a raw look at the real state of the evidene in pediatric neurodisability from the someone who is living through the reality of how it supports families to make incredibly difficult decisions as they seek out the be…
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When it comes to understanding how the work that we try to do every day in the clinic actually works, this interview with Dr Susan Barry may be one of the most eye-opening interviews I have done so far - excuse the pun. Dr Barry is a a Professor Emeritus of Biological Sciences, Professor Emeritus of Neuroscience and Behavior and (as she calls herse…
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This interview with the OccuPLAYtional Therapist, Kelsie Olds, is an absolute treat. We cover the realities, practicalities and benefits of child-led therapy, the integration of play in therapeutic practices, push-in vs pull out services, balancing the conflicts that arise from staying true to your core values as a therapist with meeting your servi…
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More than a decade ago, I asked a question which finally gets answered today. The question was 'Why, despite the poor evidence, do intelligent, scientifically minded, educated and experienced therapists still value it? Or do they?' Prof Margaret Mayston exemplifies the intelligent, scientifically minded, educated and experienced therapist. She trai…
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Interoception is a key sense that has been widely studied for decades but is only now making its way into clinical applications and Kelly Mahler is an amazing occupational therapists who is leading the way both clinically and academically in understanding the role of this key sense for occupational and physical therapists working in neurodevelopmen…
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A passionate and engaging conversation with Dr Julie Vaughan-Graham, PT, PhD, Advanced IBITA Instructor, Adjunct Clinical Professor at McMaster University and University of Toronto, Canada and Founder of Physio-Logic and iNeuroRehab . Julie shares insights from her research on the Bobath concept, and the importance of postural control, selective mo…
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In the evolving landscape of pediatric neurorehabilitation, the emergence of therapeutic coaching has marked a paradigm shift. This approach, which marries therapeutic principles with the empowering dynamics of coaching, is designed to effect profound, tangible changes in the lives of children and their families. Occupational Performance Coaching (…
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For this epsiode Sophie is interviewed by her good friend Sarah Orr (who appeared in series two of A Life Less Ordinary with Sophie Elwes). Sophie tells her story from when she sustained her spinal cord injury back in 2011 after falling from a roof terrace. They discuss the aftermath, from spending nearly six weeks in an induced coma with 40% chanc…
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Jambo Truong is a practitioner of integrative medicine with a specialism in complimentary medicine and therapies who has impressive credentials and a vast knowledge and repertoire of different practices. Growing up in South Wales and feeling like an outsider as being from an ethnic minority, as well as being queer, he faced a lot of bullying and ha…
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Sophie Dear is a yoga teacher and self-worth coach who struggled with insomnia and undiagnosed anxiety since the age of 15. She appeared to have a thriving career in the TV industry but it wasn't until reaching a point of burnout that she had a conversation with a doctor who encouraged her to question her self-critic by interacting with her 'inner …
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Raquel Siganporia is the Director of Business Development and Senior Solicitor at Aspire Law and she sustained a spinal cord injury following surgery to correct the curvature of her spine, or scoliosis, which went wrong when she was aged 11. She tells me about the immediate aftermath of such a life-changing event and about what it was like starting…
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Adam is the founder of Togetherness which is a social enterprise whose purpose is to make meaningful connection more accessible in our culture. Having been a people pleaser and studied it in depth, Adam has a great understanding of his own behaviour patterns and we unpick what it means and why awareness is key to working through feeling the need to…
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Whilst in her last year of law school, in her early twenties, Lauren Murrell was diagnosed with an aggressive form of blood cancer (myeloid leukaemia) with only 20% chance of survival. Whilst she was in hospital her sister Sarah developed some natural skincare formulations to restore and repair her sister's sensitive fragile skin. After a life-savi…
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Melanie Woods is a former PE teacher and GB Paralympic athlete who sustained a spinal cord injury after being hit by a car whilst riding her bike. She tells me about her experience of rehabilitation, learning how to become independent and managing to walk with crutches whilst in rehab. She shares how she found ways to cope with her new situation an…
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This was such a special conversation with Carlos Cervantes who talks about his experiences in his late teens and early 20s of suffering from severe depression, 'overdoing it' on drink and drugs, dropping out of university having had a mental breakdown, feeling suicidal and receiving a diagnosis of Bipolar Type One Disorder. He came across a teacher…
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Gerti Motavalli and Dr. Alon share their insights into the work they have been doing with non-invasive spinal stimulation that is changing the lives of many children with Spina Bifida. We dig into both the theoretical and practical application of this this protocol, as well as how it compares to other electrical stimulation approaches in pediatrics…
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There are many brilliant and passionate therapists in our world of neuromotor development, but few come close to Beverly Cusick in their ability to shape the lives of the children we see. I mean that both at the most pragmatic level where Billi’s teaching of serial casting and orthotic prescription has literally shaped thousands of feet for the bet…
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Per is a Physiotherapist from Denmark and founder of Solemaids, a custom orthotic for children with Sever’s Disease / calcaneal apophysitis. His passion for feet and running related injuries led him to develop Solemaids more than 20 years ago which he is still supplying from his in-house workshop, despite a global reach. This was a great conversati…
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In part 2 of this interview on spinal neuromodulation with Dr Susan Hastings and Dr Reggie Edgerton, we get into the questions that everyone is asking; how is it different to FES? What is the difference between the different units and parameters? Who does it work on, and more. We dig into some in depth discussions about application and precautions …
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Dr. Susan Hastings is a physical therapist who stumbled upon the hidden potential of the spinal cord in treating children with cerebral palsy. In her quest to understand what she was seeing clinically, she found Dr. Reggie Edgerton, a pioneer in the field of spinal cord injury recovery. Together they have been exploring the potential of spinal neur…
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Maybe not so much the OTs in our world or neurodevelopment, but certainly as PTs we have prioritised motor function over sensory function when we think about how the body works. The more we learn about the importance of the sensory pathways in the sensory-motor loop, the better we get at understanding how, as therapists who can only work from the o…
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There’s nothing I love more than amplifying the voices of passionate clinicians who have the kind of wisdom and insights that can only be found through years of real world real life experiences mixed in with an endlessly curious mind and an irrepressible excitement for whats possible. That’s exactly what Julie Perfect brings to this interview. Year…
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Working in the NHS for 27 years, Dr Clair Pollard is a Clinical Psychologist and Acting Director for a large psychology mental health trust in South London and a Cognitive Behavioural Therapist. She also sustained a spinal cord injury during her training at the age of 25 which left her paraplegic and a wheelchair user. Undeterred by this, it was he…
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Rosie Wilby is an award-winning comedian, author and podcaster who has appeared a number of times on BBC Radio 4 programmes including Woman's Hour, Saturday Live and Four Thought. Her first book Is Monogamy Dead? was longlisted for the Polari First Book Prize and followed a trilogy of solo shows investigating the psychology of love and relationship…
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It is possible to have been a therapists for 30+ years, worked with hundreds, if not thousands of kids and have completely missed a glaring piece of the puzzle that was hidden in plane sight. That’s how I felt dipping into Dawn Sandalcidis’ world of children's bowel and bladder issues. Guilty that I hadn’t paid enough attention to the conversation …
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Alexandra Adams was the first guest on this podcast, and the inspiration behind starting A Life Less Ordinary. She's also a medical student who is deaf-blind. In 2020 she went into hospital with symptoms of an undiagnosed chronic illness and was there for 17 months during which time she massively deteriorated and experienced some shocking mistreatm…
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This interview is packed with practical tips, brilliant insights and golden nuggets to take away. We get into the weeds of idiopathic toe-walking, CP and and orthotic devices in but just as importantly, we explore the realities of bringing clinical work and evidence based practice into alignment (excuse the pun). Because this interview has such a p…
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From Pune comes this heart-warming story of Yogesh Sonar who wants to reach out to people with disabilities across India by offering them training in digital marketing skills. As a child with a disability growing up in rural Maharashtra, Yogesh Sonar had it hard. Yogesh’s left leg was affected in a childhood polio attack and he had a hard time goin…
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Grace Spence Green is a junior doctor and a wheelchair user. Growing up, she had her heart set on becoming a doctor from the age of eight and was a keen competitive climber. In an extraordinary incident in 2018, while she studying at medical school, a man jumped from a height and fell on her, causing her to break her back and sustain a spinal cord …
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This week I had the pleasure of interviewing Mark Berry who is my friend and personal trainer. We’ve known each other for years and every time I have a session with him, we end up deep in conversation and he is a real fountain of wisdom and life advice, as well as a great trainer. Growing up on a council estate in Wandsworth, Mark has always been c…
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Gail Muller is an adventurer, educator and author. Growing up in Cornwall, she was sporty and outdoorsy, but at 14 was told she’d need to use a wheelchair by the age of 40 due to muscular-skeletal issues. She has an extraordinary story of her journey of experiencing chronic pain for 15 years, and dedicating much of that time to finding a solution, …
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Based partly in Carlsbad, CA and in Keauhou, Hawaii, Kalim Smith and I met a few years back at a ski race in New Hampshire, after which we discovered we had a mutual friend/relative and since then we’ve enjoyed some great times in both London and California, with some wonderful conversations. After becoming paralysed in 2011 he recognised the heali…
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Head of Wellbeing at leading employee wellbeing platform, Better Space, James Dashwood is a father, a husband, and a recovering alcoholic. Sober for seven years he has been on a journey of introspection where he’s learned so much about himself, about addiction and about what it means to be content. He shares his story about growing up and how he re…
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Andrew Cotton is a big wave surfer and Red Bull athlete. Growing up in North Devon, he started at 7 and it became his life. He left school and worked in a local surfboard factory until the age of 25 to fund his surf trips. At this point he figured it wasn’t going to sustain him financially so he re-trained as a plumber but this made it clear to him…
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Cathy Reay is a writer, editor, disability consultant and influencer. She is also a single mother of two and her Instagram account provides a great insight into life as a mum with dwarfism, disability justice, sex and dating, as well as some great skincare tips. Cathy tells me about what it was like for her growing up in north Norfolk and how movin…
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Gregory David Roberts is the author of best selling novel, Shantaram and sequel, Mountain Shadow. Selling over 6 million copies, it is partly based on Gregory's own life experience of escaping prison in Australia and being on the run, during which time he lived in a slum in India. After ten years as a fugitive, Gregory was re-captured in Germany an…
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This is part 2 of Anat Baniel’s 2 part interview. In part one we dived into understanding the 9 essentials and contrasting them with some of our more contemporary approaches in physical and occupational therapy. In part two we get into some hot topics and Anat answers questions sent in by curious wired on listeners. Anat is in equal measure passion…
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