Best CIPO Podcasts (2025)

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Counter Culture Sports (The Kennel) Ep 1. w/cipo (Timestamps in Description) Big News for the Podcast! NBA Finals, News, and Free Agency, Miami Dolphins and Pittsburgh Steelers Trade, Jake Paul, UFC Fights ... 58:39

Play Pause

3M ago58:39

58:39

Send us a text intro and big news for the podcast (0:00) NBA Game 7 (7:45) NBA Draft (14:32) Miami Dolphins and Pittsburgh Steelers Trade (29:15) Jake Paul Vs. Chavez (39:09) UFC Fights (42:00)By K-9

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Trailer ep 12: Goodbye to Season 3! 1:00

9M ago1:00

1:00

Make sure to join us this week when Andrea says goodbye to another season of Slice of PI.By ImmUnity Canada

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Episode 12: Finale - Goodbye to Season 3! 9:49

9M ago9:49

9:49

Join Andrea as she says goodbye to another season of Slice of PI! In this episode Andrea will look at some key takeaways from the season, highlights and messages from and for the PI community.By ImmUnity Canada

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Ep 11: Research Nurse Coordinators, Logistically Important 40:51

10M ago40:51

40:51

This week, Andrea looks at the important role that research nurse coordinators play in clinical trials. What support can they offer? How does their work impact patients and families with PI? What role do they play in the medical field and why are they so important? Join Andrea and her guest, Jordyn Arnold as they discuss this topic and this little …

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Trailer: Ep 11 Research Nurse Coordinators 1:00

10M ago1:00

1:00

Take a listen to what is coming up in the next episode of Slice of PI when host, Andrea, looks at the importance of the research nurse coordinator role when it comes to clinical trials. Guest: Jordyn Arnold Season 3 is supported by PharmingBy ImmUnity Canada

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Ep 10: Pregnancy and Childbirth, from genetic counselling to IVF 32:17

10M ago32:17

32:17

This week on Slice of PI, Andrea looks at the challenges pregnancy and childbirth poses to the primary immunodeficiency community. Join Andrea as she tackles topics of genetic counselling and IVF, and how these are and can be supported in Canada. This week's guest is Jennifer DiRaimo, a genetic counsellor and researcher with the Platelet Disorder S…

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Trailer Ep 10: Pregnancy and Childbirth 1:00

10M ago1:00

1:00

Take a quick listen to what's coming up next on Slice of PI in episode 9: Pregancy and Childbirth, from genetic counselling to IVF Season 3 is supported by PharmingBy ImmUnity Canada

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Ep 9: Men's Mental Health 28:10

10M ago28:10

28:10

Join Andrea and special guest MP Matt Jeneroux for a Slice of PI Movember episode on Men's Mental Health. In this episode they will discuss breaking the stigma of men's mental health and the awareness that is needed to create safe spaces for men in everyday places. Season 3 is supported by PharmingBy ImmUnity Canada

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Trailer Ep9: Men's Mental Health 1:00

10M ago1:00

1:00

Take a quick listen to what's coming up next as Andrea is joined for a special Movember episode by MP Matt Jeneroux to talk about Men's Mental Health. Season 3 is supported by PharmingBy ImmUnity Canada

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Episode 8: APDS 35:40

10M ago35:40

35:40

Join Andrea and her guest clinical immunologist, Dr Julia Upton, as they discuss a rare and underdiagnosed primary immunodeficiency, APDS. Would you know the signs, symptoms and what to look for? Season 3 is supported by PharmingBy ImmUnity Canada

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Trailer Ep 8: APDS 1:00

11M ago1:00

1:00

Take a look at what is coming next week in episode 8, "APDS" Season 3 is supported by PharmingBy ImmUnity Canada

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Ep 7: Social Workers and Life Specialists; the importance of a holistic approach 33:14

11M ago33:14

33:14

This week, Andrea looks at the ins and outs of supporting patients and their families including the planning and emotional strategies. Join her as she explores why professionals such as social workers and child life specialists are so necessary in a holistic approach to care. This week's guests include Danielle Sikora and Stephanie Wanner. Season 3…

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Trailer Ep 7: Social Workers 1:00

11M ago1:00

1:00

Take a look at the next episode, "Social workers and child life specialists; the importance of a holistic approach" Season 3 is supported by PharmingBy ImmUnity Canada

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Episode 6: Clinical Trials in Canada 44:31

11M ago44:31

44:31

This week, Andrea talks to two experts, Dr. Thierry Lacaze and Breanne Stewart from RareKids CAN, about the importance of clinical trials for rare disease patients and families in Canada and what they are doing to change things. Season 3 is supported by PharmingBy ImmUnity Canada

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Trailer: Episode 6, Clinical Trials 1:00

11M ago1:00

1:00

Take a listen to what is coming up in the next episode of Slice of PI, "Clinical Trials in Canada" Season 3 is supported by PharmingBy ImmUnity Canada

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Episode 5: DNA Music, Part 2 33:19

11M ago33:19

33:19

Can DNA be made into music? In this episode, Andrea talks to two researchers at the University of Alberta who are doing just that. Listen and find out how music composed by converting protein sequences or genes to musical notes can impact the PI community. Part 2 of 2 Season 3 is supported by Pharming…

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Trailer Ep5: DNA Music, Part 2 1:00

11M ago1:00

1:00

Trailer for episode 5 Season 3 is supported by PharmingBy ImmUnity Canada

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Episode 4: DNA Music Part 1 30:09

11M ago30:09

30:09

Can DNA be made into music? In this episode, Andrea talks to two researchers at the University of Alberta who are doing just that. Listen and find out how music composed by converting protein sequences or genes to musical notes can impact the PI community. Part 1 of 2 episodes Season 3 is supported by Pharming…

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Trailer Ep4: DNA Music, Part 1 36:27

11M ago36:27

36:27

Trailer for episode 4, part 1 Season 3 is supported by PharmingBy ImmUnity Canada

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Episode 3: Gene Therapy Abroad 35:23

12M ago35:23

35:23

Gene therapy seems to be everywhere right now. But what is gene therapy? What is happening in Canada with gene therapy? And more importantly, what is happening in other countries that can teach us to create a sustainable solution for children with ultra-rare diseases to access novel gene therapies? In this episode, Andrea talks to Dr. Claire Booth,…

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Trailer Ep3: Gene Therapy Abroad 1:00

12M ago1:00

1:00

Trailer episode 3 Season 3 is supported by PharmingBy ImmUnity Canada

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Ep 2: National Patient Registries 36:19

12M ago36:19

36:19

What are patient registries? Why are they important and why should patients and caregivers care about about them? How can they impact patient care? Is there a patient registry for primary immunodeficiency in Canada? This week, Andrea talks to Dr. Beata Derfalvi as they answer some of these questions and also look at what Canada can learn from other…

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Trailer Ep 2:National Patient Registries 1:00

12M ago1:00

1:00

Trailer for episode 2 Season 3 supported by PharmingBy ImmUnity Canada

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Intro to Season 3 - We're Back! 12:01

12M ago12:01

12:01

Andrea is back with another season of Slice of PI! In this episode, host Andrea Fernandez de Soto, looks at what is in store over for listeners this season in Slice of PI. Season 3 is supported by PharmingBy ImmUnity Canada

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Slice of PI Season 3 Trailer - We're Back! 0:59

12M ago0:59

0:59

Slice of PI is back for Season 3! Trailer for Episode 1, Intro to Season 3 Season 3 is supported by PharmingBy ImmUnity Canada

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Living with Type 1 Diabetes Mellitus | Cherrisse Naidoo 30:29

2+ y ago30:29

30:29

This episode is about Cherrisse Naidoo's journey with type 1 diabetes mellitus. Her story is impressive, tune in and get some more insight. Below are chapters for your convenience: 00:00 - Introduction 02:28 - Diagnosis 04:31 - Life before diagnosis 05:42 - Childhood challenges 06:10 - Difficult beginning 08:49 - Listen to your body 10:00 - Low gly…

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Living with Chronic Intestinal Pseudo Obstruction (CIPO) | Nonto Khanyile 39:35

3y ago39:35

39:35

This interview was about Nonto Khanyile , who lives with a chronic illness (CIPO). Her journey to diagnosis is unique and her resilience is amazing. Here is a story about science and hope. Please see time stamps below for your convenience. 00:00 Guest Introduction 3:10 - Life Before CIPO 4:48 - Misdiagnosis and diagnosis with CIPO story 12:10 - Med…

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Pain and Pleasure Balance with Khwezi (PhD candidate) and Nkazi (PhD) 30:16

3+ y ago30:16

30:16

In this Episode, Khwezi and Nkazi look at the pleasure and pain balance as inspired by the Book " Dopamine nation". Tune in and be inspired to pursue pain for pleasure. For your convenience please see the timestamps and references below. 0:00 - Introduction 02:04 - Wisdom in pursuing pain pursuing 04:32 - Physical exercise as a stressor 06:50 - Phy…

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Ep 13: Final Thoughts 18:23

3+ y ago18:23

18:23

In the season finale for season 2, Andrea shares her final thoughts as well as reflects on the past episodes.By CIPO

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Trailer S2: Episode 13 1:00

3+ y ago1:00

1:00

Take a listen to what is coming up in the final episode of "Slice of PI" season 2.By CIPO

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Self-Binding with Khwezi (PhD candidate) and Nkazi (PhD) 21:59

3+ y ago21:59

21:59

Nkazi and Khwezi explore the importance of self-binding which is an interesting way to control addictions. Below are the timestamps for your convenience, please enjoy. -------------------------------------------------------------------------- 00:00 Introduction and welcome 1:23 Feedback from the previous episode 1:38 Insight following 30 days witho…

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Episode 12: Self Care, Parenting and Fun 50:05

3+ y ago50:05

50:05

In the penultimute episode, Andrea looks at the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.By CIPO

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Trailer S2: E12 1:00

3+ y ago1:00

1:00

Take a listen to Friday's episode where Andrea will discuss the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.By CIPO

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Episode 11: The Impact of Foundations 40:57

3+ y ago40:57

40:57

This week, Andrea looks at the impact of foundations, the role organizations play when it comes to support for patients and families with PI. Guests this week: Heather Smith from SCID Angels for Life and patient and parent, Martine Allard.By CIPO

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Trailer: Episode 11 1:00

3+ y ago1:00

1:00

Take a listen to next week's episode where Andrea discusses the important role that foundations play for families and patients with PI.By CIPO

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Ep 10: Resilience, Fight and Bravery 35:10

3+ y ago35:10

35:10

This week Andrea explores how we can transform our journey through creativity and other ways to give back. Special guests this week: Expert: Luz Adriana Manozca and paren, Funda Eyupoglu.By CIPO

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Trailer: Episode 10 1:00

3+ y ago1:00

1:00

Take a quick glimpse at Friday's episode where Andrea explores ways to give back throughout your journey and how you can transform your journey through creativity.By CIPO

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Episode 9: Making the Transition 36:38

3+ y ago36:38

36:38

This week, Andrea looks at the complexities and challenges surrounding the important topic that is "transition". Every child will eventually transition out of pediatric care into adult care. However, parents will also have to transition. What does that look like for both the youth and the parent? Guests this week Dr. Catherine Biggs from BC Childre…

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Trailer: Episode 9 1:00

3+ y ago1:00

1:00

Take a listen at what is coming up next week when Andrea looks at the challenge and complexities of transition from pediatric to adult care.By CIPO

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Episode 8: Enzyme Replacement Therapy 44:11

3+ y ago44:11

44:11

This week Andrea talks to experts about the interesting and often unknown option of enzyme replacement therapy for ADA SCID. Guests this week are Dr. Eyal Grunebaum of SickKids Hospital in Toronto and mother Monica Nava.By CIPO

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Trailer: Episode 8 1:00

3+ y ago1:00

1:00

Take a quick listen to what Andrea has in store for next week's episode!By CIPO

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Episode 7: Gene Therapy 42:07

3+ y ago42:07

42:07

This week Andrea looks at the important topic of gene therapy, the amazing advances made over the past two decades, the legacy of PI patients and what is on the horizon. Special expert guests this week include Dr. Donald Kohn and Alyssa Vaccaro.By CIPO

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Trailer: Episode 7 1:00

3+ y ago1:00

1:00

Take a listen to episode 7 where Andrea looks at gene therapy.By CIPO

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Episode 6: Stem Cell Donation 38:48

3+ y ago38:48

38:48

This week Andrea discusses the importance of stem cell donation with special guests, expert Mai Duong from Swab the World and parent advocate Dawn Shirley.By CIPO

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Trailer: Episode 6 1:00

3+ y ago1:00

1:00

Take a sneaky listen to what is coming up in next week's episode where Andrea looks at stem cell donation.By CIPO

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Episode 5: Plasma 32:31

3+ y ago32:31

32:31

You won't want to miss this episode where Andrea talks to Canadian Blood Services and parent Megan Waghorn around the importance of that "liquid gold" in our blood that is used turned into treatment for immune deficiencies.By CIPO

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Dopamine fasting with Khwezi (PhD candidate) and Dr Nkazi Mkhwanazi 33:32

3+ y ago33:32

33:32

This episode is about "Dopamine fasting". At the same time, this concept may not be widely accepted in the scientific community; we think about how useful it is to abstain from our "drugs of choice". We trust this motivates you to control your life and think about prioritising your goals. "Drug of choice" refers to anything that we can potentially …

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Trailer: Episode 5 0:59

3+ y ago0:59

0:59

Take a listen at what is coming up the next episode where Andrea looks at plasma - the raw ingredient that makes up immunoglobulin (IG).By CIPO

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Episode 4: Medical Trauma 38:17

3+ y ago38:17

38:17

This week Andrea discusses medical trauma with guests, parent Linda Skeries and child life specialist at Stollery Hospital in Edmonton, Alberta, Stephanie Wanner.By CIPO

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Trailer: Episode 4 0:59

3+ y ago0:59

0:59

Take a sneaky listen to what's coming up in the next episode of "Slice of PI" where Andrea looks at medical trauma.By CIPO