Best Brain Tumour Support Podcasts (2025)

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A young-adult perspective from a caregiver, on community, and living after a brain tumour diagnosis | Part 2 26:19

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9d ago26:19

26:19

Send us a message! In this episode, we chat with power couple Esther and Elman about what it means to navigate brain tumour care and recovery as young adults. Esther reflects on her experience as a young adult caregiver, the challenges and barriers she faced, and the support that helped her along the way. Together, they reflect on their shared comm…

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A young-adult perspective from a caregiver, on community, and living after a brain tumour diagnosis | Part 1 31:15

9d ago31:15

31:15

Send us a message! In this episode, we chat with power couple Esther and Elman about what it means to navigate brain tumour care and recovery as young adults. Esther reflects on her experience as a young adult caregiver, the challenges and barriers she faced, and the support that helped her along the way. Together, they reflect on their shared comm…

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Hope, family, and community: A SUPERKID’s journey of unshakeable strength and optimism | Part 2 14:17

2M ago14:17

14:17

Send us a message! This Childhood Cancer Awareness Month, meet 14-year-old brain tumour survivor Robbie Watson and his parents, Abby and Jeremy, as they share their incredible story. Robbie reflects on traveling for treatment and life after diagnosis with his signature positivity, while Abby brings the parent perspective and opens up about the unce…

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Hope, family, and community: A SUPERKID’s journey of unshakeable strength and optimism | Part 1 33:42

2M ago33:42

33:42

Send us a message! This Childhood Cancer Awareness Month, meet 14-year-old brain tumour survivor Robbie Watson and his parents, Abby and Jeremy, as they share their incredible story. Robbie reflects on travelling for treatment and life after diagnosis with his signature positivity, while Abby brings the parent perspective and opens up about the unc…

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Episode 64 - Michele's milestone: two years as CEO 48:19

4M ago48:19

48:19

Hosts Anna and Andy mark two years since Dr Michele Afif became Chief Executive at The Brain Tumour Charity by asking about her early life, her previous careers in medicine and law - and a few more questions that we crowdsourced from our listeners. In response, Michele explains how she's focused The Charity on turning its co-created strategy into a…

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Practicing hope: A conversation on courage, connection, and resilience | Part 1 32:11

4M ago32:11

32:11

Send us a message! In this episode, we explore hope as more than just optimism- as a mindset that can be built, practiced, and sometimes rediscovered when everything feels like it’s falling apart. Join us for a heartfelt conversation with Ann, who shares strategies and insights from her journey as a relentless advocate for her daughter. From buildi…

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Practicing hope: A conversation on courage, connection, and resilience | Part 2 28:05

4M ago28:05

28:05

Send us a message! In this episode, we explore hope as more than just optimism- as a mindset that can be built, practiced, and sometimes rediscovered when everything feels like it’s falling apart. Join us for a heartfelt conversation with Ann, who shares strategies and insights from her journey as a relentless advocate for her daughter. From buildi…

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Episode 63 - Getting involved 43:35

6M ago43:35

43:35

In this episode, we'll hear from four of our much-valued Involvement Champions : Rebecca, Oriana, Claire and Mark. We recorded their presentations to the whole organisation as they explained why they wanted to become key voices in the brain tumour community. (Trigger warning, they talk about diagnosis and mental health issues, and their stories are…

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Balancing care, recovery, and school: How support, compassion & advocacy pave the way | Part 2 30:13

6M ago30:13

30:13

Send us a message! Welcome back, everyone! In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of streng…

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Balancing care, recovery, and school: how support, compassion and advocacy pave the way | Part 1 40:24

6M ago40:24

40:24

Send us a message! Welcome back, everyone! In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of streng…

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Episode 62 - Fantastic Fundraising 30:07

7M ago30:07

30:07

After weeks of toil and training, The TCS London Marathon 2025 is just around the corner and The Brain Tumour Charity has 145 runners taking part this year - more than ever before! Our Involvement Champion Imelda Turnock speaks to two of them - Barbara Prodger and David Barrow - about their reasons for running. But first, Andy Tudor gets some insid…

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Episode 61 - The Power of Friendship 49:17

9M ago49:17

49:17

Our focus in this episode is on friendships and close bonds. How does a brain tumour diagnosis affect our loved ones and who can we turn to for support or advice when we don’t want to worry or upset those closest to us? To answer that question, Andy Tudor talks to five women who were all treated at the same hospital for the same meningioma diagnosi…

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Episode 60 - Less Survivable Cancers Awareness Week 31:03

10M ago31:03

31:03

A warm welcome to Let's Talk About Brain Tumours! After a break since the summer, we're back to bring you interesting and informative conversations with members of the brain tumour community and at The Brain Tumour Charity. A new production team is now at the helm, so bear with us while we learn the ropes of podcast production. But we're delighted …

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Episode 59 - Spotlight on Women in Neuroscience 24:04

1+ y ago24:04

24:04

Anna talks to Anna Solth and Victoria Wyes about their experiences of being neurosurgeons and women in the field of neuroscience. They share their passion for neuroscience, discuss the work they are doing now and their plans for the future. Better Safe Than Tumour If you or someone you know needs a listening ear, you can contact our Support Team by…

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Episode 58 - Hidden disabilities 43:28

1+ y ago43:28

43:28

We meet Gavin Burden and Louise Worthington who have both been diagnosed with brain tumours. Gavin has been living with his brain tumour since he was 21 - for 28 years. Gavin and Louise have been friends for a long time so when Louise was diagnosed with a brain tumour in 2018 Gavin contacted her to offer support. In the episode, they share the diff…

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Entrevue avec Maria, proche aidante (en français) 47:44

1+ y ago47:44

47:44

Send us a message! Maria a été la proche aidante de son mari, décédé il y a plus de 6 ans d'un glioblastome. Suivez-nous sur Facebook et sur Instagram. If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form. Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. …

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Episode 57 - Spolight on Mental Health Support 8:50

1+ y ago8:50

8:50

Today, Chandos talks to Support Manager Beth Ryall, about the support available at The Brain Tumour Charity for people who are experiencing difficulties with their mental health following a brain tumour diagnosis. You can find out more about this here Better Safe Than Tumour If you or someone you know needs a listening ear, you can contact our Supp…

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Episode 56 - Rehabilitation for those with brain tumours 45:09

1+ y ago45:09

45:09

Anya Jones and Kaz Melvin about their experiences of rehabilitation. Anya needed extensive rehabilitation after her diagnosis and treatment while Kaz has both personal and professional experience of brain tumours and rehab. She is a physiotherapist and she supported her sister Ria who sadly died from a glioblastoma in 2021. Anya and Kaz have worked…

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Episode 55 - Spotlight on Research into Glioblastomas 16:06

1+ y ago16:06

16:06

Chandos talks to one of our Future Leaders: Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on an innovative project to simultaneously target both cancer cells and their supporting immune microenvironment in the hope of finding more effective treatments for…

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From diagnosis to recovery: Embracing positivity through a brain tumour experience  1:02:44

1+ y ago1:02:44

1:02:44

Send us a message! In this episode, we speak with Peter, a 49-year-old brain tumour survivor whose experience began in January 2019 with the diagnosis of a grade 2 astrocytoma following a seizure. Peter shares his fascination with awake brain surgery and the challenges that followed with his recovery, radiotherapy and chemotherapy. Through it all, …

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Entrevue avec Kathy, survivante de tumeur cérébrale (en français) 59:41

1+ y ago59:41

59:41

Send us a message! Kathy est une survivante de tumeur cérébrale résidant à Québec et bénévole à la Fondation canadienne des tumeurs cérébrales pour le programme pédiatrique GOcervo. En 2011, elle a reçu un diagnostic de tumeur cérébrale. Suivez-nous sur Facebook et sur Instagram. If you’d like to share your story and take part in our Beyond Brain T…

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Finding hope, building resilience and setting goals: Defining a new normal    53:59

1+ y ago53:59

53:59

Send us a message! In this episode, Alex shares how he navigated life after a brain tumour diagnosis, surgery and a challenging recovery. Join us as we explore the process of defining a “new normal,” including fertility preservation, building resilience, the role of positive psychology and goal setting. Alex’s story offers insights on self-advocacy…

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Family, friends and honest conversations: How to build your cancer squad  39:14

2y ago39:14

39:14

Send us a message! In this episode, we speak with Sarah, a registered nurse at The Hospital for Sick Children and a brain tumour survivor who was diagnosed 13 years ago. Having faced four reoccurrences, Sarah reflects on the vital role her “cancer squad” of family and friends played in her life. We explore therapy, honest communication, and navigat…

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Episode 54 - Living with a rare brain tumour and Everest in the Alps 49:49

2y ago49:49

49:49

When Alex - also known as the performer Syren - was diagnosed with a rare paediatric brain tumour called DLGNT at the age of 20, his family found that there were limited treatment options. His mum, Katie, did her own research into how to best help Alex and found out about the Everest Centre. In February 2024, His dad Martin and three of his friends…

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Episode 53 - Spotlight on exercise as a form of therapy 55:39

2y ago55:39

55:39

We talk to Liam Young about how physical fitness contributed to his recovery from treatment for a brain tumour. Liam found that the traditional route of counselling wasn't for him. His perfect form of therapy was with a personal trainer. At 25 he had never prioritised his health, but after his diagnosis Liam realised how important it was and that l…

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An Indigenous perspective on caregiving and loss: Navigating a brain tumour diagnosis during the pandemic  1:06:13

2y ago1:06:13

1:06:13

Send us a message! Carolyn, who grew up in a First Nations community in southeastern New Brunswick, shares the story of her mother, Phyllis— a polio survivor and community advocate— who passed away from a brain tumour during the pandemic.  In this episode, Carolyn reflects on her mother’s incredible life, her advocacy for their community, and the u…

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Episode 52 - Ravi's Dream 53:59

2y ago53:59

53:59

In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old. Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to continue to follow his own dreams! After his diagnosis and surgery, Ravi decided that he want to do something tha…

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Episode 51 - Spotlight on the Ways Ahead Research Project 22:49

2y ago22:49

22:49

In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's. The Ways Ahead research project aims to understand more about the lived experience of people with low grade gliomas and how to improve their quality of life…

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Dr Peter Geoffrey Lucas | Understanding Brain Tumours. 16:30

2y ago16:30

16:30

Peter Lucas Neurosurgeon says the human brain, with its intricate network of billions of neurons, is one of the most complex and vital organs in the body. Unfortunately, like any other part of the body, the brain is susceptible to diseases, one of the most concerning being brain tumours.By Dr Lucas Peter Lucas Neurosurgeon

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Peter Lucas Neurosurgeon | New Spinal Surgery Techniques at Brisbane Private Hospital 2:55

2y ago2:55

2:55

Experience cutting-edge spinal surgery in Australia with Brisbane Private Hospital's new technique, led by renowned expert Dr Peter Geoffrey Lucas. Explore the innovative approach to spinal care and discover how Dr. Peter Lucas is transforming healthcare in the region.By Dr Lucas Peter Lucas Neurosurgeon

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Episode 50 - Life after losing a parent - Growing and Thriving 41:17

2y ago41:17

41:17

In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life. Will is now a Neuro Oncology Clinical Nurse Specialist, a career that was shaped by his experieces as a child where he now works with other families who are impacted by brain tumours. Will shares what it was like for him as an 11 year…

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Peter Lucas Neurosurgeon - Understanding Tattoos and MRIs 2:53

2y ago2:53

2:53

Dr Peter Lucas have been working as a surgeon, Dr Lucas’ve encountered various questions and concerns related to tattoos and MRIs. Today, Peter Lucas Neurosurgeon aim to shed light on this topic addressing common questions and providing considerations for individuals with tattoos who may require a MRI.…

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Dr Peter Geoffrey Lucas - New Technology Set to Further Advance Neurosurgery 0:35

2y ago0:35

0:35

Explore groundbreaking advancements in the field of neurosurgery with Dr Peter Lucas. This exciting new technology promises to revolutionize neurosurgical procedures, enhancing precision and patient outcomes. Join Dr Peter Geoffrey Lucas on a journey into the future of neurosurgery as he delves into the potential of this innovative technology.…

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Peter Lucas Neurosurgeon - Discusses the Importance of Family Support 3:03

2y ago3:03

3:03

As a neurosurgeon, Dr Peter Geoffrey Lucas wholeheartedly encourage patients and their families to recognize the profound impact they can have on each other’s lives during the process of major neurosurgery and invite patients to bring family members and loved ones with them to any or all of their consultations with me.…

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From subtle signs to diagnosis: The importance of listening to your body  43:55

2+ y ago43:55

43:55

Send us a message! Karen-Lisa is a brain tumour survivor whose experience began in 2015 with the diagnosis of a pituitary adenoma. As a young mother, she shares her experience with the challenges of navigating symptoms, overcoming assumptions, seeking second opinions and the importance of listening to your body. For additional information, you may …

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Episode 49 - Spotlight on the Children & Families Service 13:43

2+ y ago13:43

13:43

In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole about the support that is available to families who have children under 18. Some of the things mentioned in this episode include: Family Days Brainy Bags Online support group for parents Talking to children about brain tumours Tali…

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Episode 48 - (TW) Coming to terms with change 30:21

2+ y ago30:21

30:21

(Trigger Warning) In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family. He talks about the impact on mental health and the impact of trauma that parents and loved ones experiene as a result of a brain tumour diagnosis. This episode…

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Episode 47 - Spotlight on Young Adults Masquerade Ball 15:40

2+ y ago15:40

15:40

In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball. Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis. We also hear from other young adults about the impact these events have on people like th…

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Episode 46 - (TW) 'Your child has a brain tumour' 56:11

2+ y ago56:11

56:11

(Trigger Warning) In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later. This episode contains conversations that some people may find distressing such as the effects of the tumour…

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“I want to live like I’m living, not like I’m dying”: A father’s reflection on his son’s brain tumour experience  54:46

2+ y ago54:46

54:46

Send us a message! Denis was a world traveller turned passionate advocate for brain tumour awareness after his diagnosis in 2013. In this episode, we sit with his father and caregiver, Ken, as he reflects on his son’s life, courage, and the challenges they faced together. Join us as we explore Denis’ experience with brain surgery, clinical trials a…

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Episode 45 - Mummy has a lump 33:50

2+ y ago33:50

33:50

If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do. In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote after recieving her own brain tumour diagnosis and struggled to find any resources for parents to help her explain to her …

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Episode 44 - Spotlight on Ahead of the Game Foundation 18:25

2+ y ago18:25

18:25

In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients. Dave talks about what led him to creating Ahead of the Game and what services they provide. You can find out more about Ahead of the Game here You can read more about Dave Bolton here You c…

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Episode 7: Jean 43:45

2+ y ago43:45

43:45

Megan’s mother disappears, Jamie tries to track her down. Evidence published reveals a shocking conclusion. Finally, Jamie can give everyone involved some answers.By BBC Sounds

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Episode 6: One Direction 29:11

2+ y ago29:11

29:11

Why did Megan and her mother set up Believe in Magic? Jamie investigates their link to pop megastars One Direction. He discovers crucial evidence is about to be published.By BBC Sounds

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Episode 5: Sisters 27:10

2+ y ago27:10

27:10

Revelations about Megan’s childhood provide vital clues. An expert tells Jamie about a little - understood yet disturbing medical phenomenon.By BBC Sounds

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One step at a time: Navigating emotions, support, and self-advocacy after a brain tumour diagnosis  25:16

2+ y ago25:16

25:16

Send us a message! Welcome to our new podcast! Today we sit down with Paul, a young adult brain tumour survivor and volunteer with Brain Tumour Foundation of Canada. Join us as our guest discusses the emotions that come with a brain tumour diagnosis and shares how he tackled them, one step at a time. He also discusses the value of building a strong…

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Episode 4: Doctors 27:24

2+ y ago27:24

27:24

The news creates shock waves. Could the sleuths have got it wrong? Jamie gains rare access to doctors’ reports, which could reveal what happened to Megan.By BBC Sounds

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Episode 3: Proof 27:33

2+ y ago27:33

27:33

The sleuths reveal their findings. Believe in Magic’s supporters defend Megan. Some terrible news breaks, that forces the sleuths to reconsider everything they’ve discovered.By BBC Sounds

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Episode 2: Sleuths 23:48

2+ y ago23:48

23:48

Megan fundraises for treatment abroad. Her condition deteriorates while in hospital in America. When anonymous sleuths discover she’s not where she claims, who will believe them?By BBC Sounds

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Episode 43 - Headaches and Brain Tumours 46:42

2+ y ago46:42

46:42

Imelda and Rebecca both experienced headaches caused by their brain tumours. They share how these symptoms were often dismissed by GPs and not taken seriously - despite also having other indications that something wasn't right and needed investigating. They explain what the headaches were like and what made them think there was something more going…