BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Ta ...
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Bloodstream Podcasts
Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com. The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.
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A podcast about evil and complicated queers in history. Why do we remember our heroes better than our villains? Hosted by Huw Lemmey and Ben Miller. Learn more: www.badgayspod.com
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Welcome to Gut Matters: Discoveries and Innovations, a podcast dedicated to helping IBS patients take back control of their symptoms and lives. Hosted by Johannah Ruddy, M.Ed., IBS patient advocate and researcher, and Dr. Andrea Shin, a gastroenterologist and IBS expert, this show dives deep into digestive health. Join us as we share inspiring patient stories, chat with guest experts, and deliver the latest insights on managing IBS—all with a dash of humor. Whether you're a patient or a heal ...
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Cheat Codes is a podcast about sickle cell disease and is intended for patients, caregivers, providers, and the greater community of people who are impacted by it. Each episode of Cheat Codes: A Sickle Cell Podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the sickle cell community. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. Cheat Codes: A Sickle C ...
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A podcast about Thyroid Eye Disease (TED).
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The PV Pod: Stories from the Marrow is a podcast about Polycythemia Vera (PV) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PV. Each episode, The PV Pod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: The PV Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit Pharm ...
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Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. Join a ...
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Eosinophils are a type of white blood cell that play a role in immune responses and help fight off infections. When these cells build up and cause inflammation in the digestive system, tissues, organs, and/or bloodstream, without a known cause, it may be the result of an eosinophil-associated disease. Join the American Partnership for Eosinophilic Disorders (APFED) for a series of conversations with researchers, clinicians, patients, and other community members as we discuss practical strate ...
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What do you do when you've achieved your dreams only to realize- your work's just begun? In January of 2018, Chris Bombardier became the first person with severe hemophilia to complete The Seven Summits. It was the end of an adventure, and the start of a whole new chapter in Chris's life. From the team behind the documentary Bombardier Blood comes a podcast for adventurers, bleeders, and anyone who's ever chased a dream. Subscribe to BloodStream Media's The Final Summit wherever you get your ...
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Content independently created by BloodStream Media. Novartis is our exclusive advertising partner. Introducing "PNH: Facts, Fiction & FYI," a limited series that unveils the enigmatic realm of Paroxysmal Nocturnal Hemoglobinuria (PNH). Join us as we journey through real stories, medical insights, and groundbreaking advancements, offering a comprehensive view of PNH. Explore the lives touched by this rare blood disorder and discover the intersection of facts, fiction, and must-know informatio ...
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At Our Blood Institute, we believe learning about blood donation should be as engaging as it is important. That's why we've developed a new podcast and video series, or vodcast, dedicated to educating and inspiring current and future donors through a unique blend of entertainment and information. BloodStream isn’t just another show — it combines valuable information with fun, interactive elements to make giving blood exciting and memorable. Each new episode contains blood-themed trivia, game ...
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Acute pain. Chronic pain. Physical pain. Emotional pain. Psychological pain. Spiritual pain. Pain is a part of life, it's everywhere, and it can be devastating. There are many tools, techniques, and resources for managing it, but what do we actually understand about pain? The Pain Podcast explores this and other pain-related questions. Subscribe now, and tell a friend about us! Produced by BloodStream Media. Presenting Sponsor: Tremeau Pharmaceuticals.
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Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community. Learn more about thalassemia by visiting RethinkThalassemia.com. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagra ...
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I am a citizen of this world prepared for the luck that is about to present to me. I strive to create a dynamic ripple through my human bloodstream with focused intent to participate in the manifestation of a world which is kind.
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Editors at The Lancet Microbe, in conversation with the journal’s authors, explore their latest research and its impact on people’s health, healthcare, and health policy. A monthly audio companion to this open access journal, this podcast covers a broad range of topics, from using probiotics to reduce Staphylococcus aureus, to phage therapy and monitoring antimicrobial resistance using faecal metagenomes, and more.
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Multipure is here to help you learn about better water and better health. Join us as we discuss news, technology, current events, and more, with an eye toward better understanding of water issues, water treatment, health, and safety. Multipure is here to improve the water, health, and lives of you and your family. For Life. For You.
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What is Artificial Intelligence? It's a big part of our daily lives and you want to know. You need to know. But the explanations are so long and boring. Let me give you something short and sweet. Join me, Dr. Peper, for 5 minute, pleasing, and easy to understand flash talks about everything artificial intelligence. Short and Sweet AI.
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Welcome to Deep Breaths, a podcast covering topics related to the ANZCA part 2 anaesthetic exam. Now take a deep breath, relax, and enjoy easy to digest content which will supercharge your exam prep, or help you keep up to date.
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In this special year-end episode of the Bloodstream Podcast, Patrick and guest host Mark Pangilinan conclude their powerful three-part Blood Brother series featuring the voices and stories of men living with bleeding disorders across the country. Together, they explore themes of complicated grief, advocacy, identity, fatherhood, discrimination, and…
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Subscribe to Extra Bad Gays on Apple Podcasts or Patreon to support our work, get monthly bonus episodes, and join our community of listeners! Live from Sheffield DocFest, it's E. M. Forster: who in his 91 years of life was one of Britain’s most successful novelists. He was raised in a climate of Victorian propriety so extreme he went to university…
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Season One comes to a thrilling close on this finale of Ask the Expert! Join Amy B as she brings back all of our amazing guests—Dr. Tammy Singleton, Dr. Mark Reding, Dr. Amy Dunn, Dr. Ben Samelson Jones, Dr. Patrick Ellsworth, and Dr. Janice Stabler—for a fast-paced, unforgettable review of everything we've explored this year. We're diving into the…
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It's never too late to give the gift of Bad Gays this holiday season: invite a friend or loved one into our community at https://www.patreon.com/badgayspod/gift This month, we discuss Christmas spirit, the cancellation of the Netflix Marines drama Boots and the death of homonationalism, and then take a Gaggony Guncles question from a listener who n…
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Subscribe to Extra Bad Gays on Apple Podcasts or Patreon to support our work, get monthly bonus episodes, and join our community of listeners! Another episode down under: Andrew George Scott is best remembered to history as the enigmatic “Captain Moonlite”, and the story of his short but eventful life is a fascinating tale of personal conscience, c…
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Britt Koskella on bacteriophages as a signature of microbiome health
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26:50Elena Dalla Vecchia of The Lancet Microbe speaks to Dr Britt Koskella about bacteriophages and phageome, their role in modulating the bacteriome, their potential use as signatures of microbiome health and dysbiosis, and hence, indirectly, as markers of host health and disease status. From an ecological perspective, parasites (such as bacteriophages…
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The Stress of Shifting Roles with Cheri Clark
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50:15On this episode of BloodStream, Cheri Clark opens up about juggling life as a nurse, patient, caregiver, and board member, all while managing her own health. She shares the pressure of always saying "I'm fine," the moments she's pushed past her limits, and the lessons she's learning about setting boundaries that actually stick. We also hear from Ni…
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Rising Stars in Sickle Cell: Dr. Sharl Azar
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26:21
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26:21In this episode of Cheat Codes, Dr. Sharl Azar joins the hosts to discuss his journey from Oregon to leading the sickle cell program at Mass General in Boston. Dr. Azar shares the pivotal moments that inspired his passion for hematology and advocacy, including his work on groundbreaking legislation to improve care for sickle cell patients in Massac…
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Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED's Health Sciences Advisory Council, interview Fei Li Kuang, MD, PhD, an allergist and immunologist, at Northwestern Medicine, about …
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Patient Advocacy at the Heart: A Conversation with Dr. Laura Williams
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41:04On this episode of Gut Matters, we welcome Dr. Laura Williams, Chief Patient Officer at Ardelyx, to discuss the importance of patient advocacy in healthcare and drug development. Dr. Williams shares her journey from clinical practice to the pharmaceutical industry, highlighting how her experiences as a physician, advocate, and patient have shaped h…
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Subscribe to Extra Bad Gays on Apple Podcasts or Patreon to support our work, get monthly bonus episodes, and join our community of listeners! The place: Queensland, Australia; a state just recovering from decades of rule by "hillbilly dictator" Joh Bjelke-Petersen, a petty authoritarian with a reputation for brutal homophobia and the even more bru…
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This episode of the Bloodstream Podcast continues the Blood Brother Collaboration, featuring candid conversations among men living with bleeding disorders. Guests share personal stories of resilience, complicated grief, and the importance of community support. The discussion highlights the unique challenges faced across the lifespan, from childhood…
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On this episode of the PV Pod: Stories from the Marrow, Kay and Josh welcome Tracy Rode, CEO of the Patient Empowerment Network and a 15-year cancer survivor. Tracy shares her insights on self-advocacy, the importance of credible information, and how to navigate the challenges of living with a rare cancer like polycythemia vera. Listeners will lear…
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TRAILER: Extra Bad Gays November 2025: Tourism House Down Boots
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7:28
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7:28With apologies for the delay, it's your episode of Extra Bad Gays for November of this year. We start by breaking down Ben's fight with a gay underwear brand, Huw's writing residency in an abandoned Austrian castle, and the Netflix series Boots: come for the homonationalism, stay for the shower scenes. Then we premiere our new Gaggony Guncles theme…
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On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly available international guidelines for diagnosing and managing pyruvate kinase deficiency (PKD). The discussion highlights the impor…
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Subscribe to Extra Bad Gays on Apple Podcasts or Patreon to support our work, get monthly bonus episodes, and join our community of listeners! Today we’re discussing a strange and compelling figure, the photographer Angela Calomiris. We can start at the end of her life, as a denizen of Provincetown, the little resort at the tip of Cape Cod in Massa…
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On this special episode of the Bloodstream Podcast, hosts Patrick James Lynch and Marc Pangilinan kick off a three-part Blood Brother Collaboration, featuring heartfelt stories and insights from men across the bleeding disorders community. The discussion centers on lived experiences, including complicated grief, joining the community, wearing multi…
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Subscribe to Extra Bad Gays on Apple Podcasts or Patreon to support our work, get monthly bonus episodes, and join our community of listeners! Today's subject, Jacob Israël de Haan, wrote one of the first gay dutch novels. "What is it that I long for," he asked. "The sanctity of Israel or an Arab male prostitute?" Born in 1881 in the Netherlands, h…
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Future Flow – Research & What's Next in Hemostasis
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19:52In this episode of Ask the Expert, Amy B. dives into the future flow of hemostasis research, exploring the cutting-edge therapies shaping bleeding disorder care. Join Drs. Patrick Ellsworth, Janice Staber, and Ben Samelson-Jones as they break down rebalancing agents, RNA therapies, and patient-driven discoveries that are guiding smarter, more preci…
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I'm Fine is back! Featuring Benjamin Denman
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27:16In this episode of BloodStream, we look back at the history of gene therapy and highlight key voices from Portraits of Progress. We also share the story behind I'm Fine, featuring community advocate Benjamin Denman, recently honored at the Hope Gala. Plus, we introduce HFA's new Voice of the Community initiative and how you can get involved in shap…
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Driving Change: MiCaringHeart & the Fight for Sickle Cell Care
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13:36
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13:36On this episode, Dr. Z and Dr. C welcome Shayan Siddiqui, founder of MiCaringHeart, to discuss his impactful work supporting sickle cell patients in Detroit. Shayan shares how his family's experiences inspired initiatives like Cabs for Kids, providing transportation to medical appointments, and Outsmart, offering free tutoring for children with chr…
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Predictors of not using medication for EoE
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44:35Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED's Health Sciences Advisory Council, interview Evan S. Dellon, MD, and Elizabeth T. Jensen, PhD, about a paper they published on pred…
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Subscribe to Extra Bad Gays on Apple Podcasts or Patreon to support our work, get monthly bonus episodes, and join our community of listeners! Let us take ourselves back to a very exciting time: we’re talking London, at the turn of the 18th century. The city is the largest in Europe, and growing - it’s passed the half a million mark and by the end …
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The Red Ink Project & Global Action Network for Sickle Cell
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54:00This week on BloodStream, we're talking to changemakers. Elsa and Ann Kendall from The Red Ink Project share how they're shifting the story for women and girls in bleeding disorders. And advocate Lanre Tunji-Ajayi joins us to discuss building global networks for sickle cell and other inherited blood disorders. A conversation about voice, visibility…
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On this episode of Gut Matters, host Johanna Ruddy, DHSc. MEd, Senior Director of Patient Advocacy at Ardelyx and Dr. Andrea Shin, interview Rebecca Kaplan, an IBS-C patient who has lived with the condition for over 15 years. Rebecca shares her personal journey, the challenges she has faced, and how she manages her symptoms. The conversation highli…
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Subscribe to Extra Bad Gays on Apple Podcasts or Patreon to support our work, get monthly bonus episodes, and join our community of listeners! Many people in our audience will have seen Jennie Livingston’s 1990 documentary Paris Is Burning, an exploration of Black and Latinx ball culture in New York City. One of the film’s primary interview interlo…
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'So What Did I Miss?': A Recap of the 2023/2024 NASCC Meeting
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46:50In this special episode of Cheat Codes, Dr. Z and Dr. C hand the co-hosting mic to Dr. Julie Kanter for a lively walk through the history of the National Alliance of Sickle Cell Centers (NASCC) annual meetings. Alongside Dr. Sophie Lanzkron, Dr. Francis Coyne, and Dr. Alexis Leonard, they revisit key moments from 2022's belly-dancing dinner to 2025…
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Thalassemia Myth-Busting: Part 2 – Complications, Exercise, & Transfusions
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20:24
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20:24In part two of their myth-busting series, NinaMaria Badalamenti and Dr. Kevin Kuo continue to break down common misconceptions about thalassemia. They discuss the risks and complications for both alpha and beta thalassemia, the importance of individualized care, and why physical activity is encouraged for people living with the condition. The episo…
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Subscribe to Extra Bad Gays on Apple Podcasts or Patreon to support our work, get monthly bonus episodes, and join our community of listeners! Today's episode is about three very different men and how their lives overlapped. The first was a pioneering rock and roll musician who stunned audiences with his fast-paced hits in a quite macho rock world:…
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Christian Malaka and Livia Patrono on the surveillance of mpox in the Central African Republic
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32:45Rebecca Barksby of The Lancet Microbe speaks to Dr Christian Malaka and Dr Livia Patrono on mpox in the Central African Republic and how researchers are using genomic surveillance to provide insights into the epidemiology of the virus. Read the full article: https://www.thelancet.com/journals/lanmic/article/PIIS2666-5247(25)00101-6/fulltext Continu…
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Subscribe on Apple Podcasts or Patreon for the full episode. It's Extra Bad Gays LIVE! from Helsinki, where we discuss Donald Trump–our first straggot President–and his pardoning of George Santos. Then, Ben plugs an upcoming queer leftist novella you'll probably love, freshly translated into English. And two questions from gay guys in their forties…
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Replay: Iron Overload with Dr. Sujit Sheth
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31:39On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You'll learn about iron overload and why it occurs in pyruvate kinase deficiency, explain the potential complications as well as the importance of managing and monitoring iron overload. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast a…
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TSLP and EoE: Exploring the Science Behind a Potential Treatment Target
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33:10Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED's Health Sciences Advisory Council, interview Dr. Andrew Lee, Vice President, Clinical Research at Uniquity Bio, about Thymic Stroma…
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The Rare Factor – Deficiencies & Re-Balancing Strategies
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23:25Join host Amy Board as we continue to dive into the evolving world of bleeding disorder treatments. This episode of Ask the Expert explores how emerging therapies—like rebalancing and non-factor agents—are tested, monitored, and kept safe. With insights from Drs. Mark Redding, Janice Stabler, and Tammy Singleton, we break down the complexities of d…
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Art and science collide on this episode of BloodStream Podcast! Hosts Patrick James Lynch and Amy Board bring stories that inspire and inform the bleeding disorders community. Patty Weltin and the Beyond the Diagnosis exhibit show how artists bring portraits of children with life-altering diseases to life. These works travel to hospitals, medical s…
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Rising Stars in Sickle Cell: Dr. Alyssa Schlenz
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39:33In this Rising Star episode from the NASCC meeting in Stowe, Vermont, Dr. Z and Dr. C spotlight Dr. Alyssa Schlenz, a psychologist transforming sickle cell care through early developmental screening and neuropsychological support. Dr. Schlenz shares her journey into the field, the critical role of prevention and early intervention, and the unique c…
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Thalassemia Myth-Busting: Part 1 – Fatigue, Hemoglobin & Iron Levels
19:31
19:31
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19:31In this episode of Thal Pals: The Alpha Beta Revolution, hosts NinaMaria Badalamenti and Dr. Kevin Kuo tackle common myths and misconceptions about thalassemia. They discuss the importance of communicating symptoms like fatigue to healthcare providers, the complex relationship between hemoglobin levels and how patients feel, and the realities of ir…
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Julie Owens: Breaking Barriers, Building Bridges
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28:10
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28:10Julie Owens, a TED patient, didn't allow her diagnosis to define her. Instead, it became her mission to transform the rare disease landscape. As a passionate advocate for diversity in rare disease research, Julie is rewriting the narrative around who gets seen, heard, and represented in the TED community. Her story is both deeply personal and power…
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Joint Health and Gene Therapy - Live from BDC!
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1:04:13
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1:04:13We're live at BDC! Host Amy Board take you straight to the exhibit hall floor, chatting with doctors like Drs. Quon, Sidonio, and Radak, plus patient advocates Collin Johnson and Matt Capsel. From man-on-the-street interviews to a touching story from Greg, this episode reminds us all to run—not walk—towards science. Join us for real conversations, …
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Mind Your Gut: Breaking the Cycle of IBS and Emotional Wellbeing
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36:51
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36:51On this episode, Dr. Andrea Shin and Johanna Ruddy, DHSc. MEd welcome Dr. Megan Riehl, a leading health psychologist, to discuss the powerful connection between the gut and the brain in IBS with constipation. They explore the emotional impact of IBS, the importance of empathy and validation in patient care, and practical tools like gut-directed hyp…
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Channel swimmer (and blood brother!) Tim Stowers
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33:29On this episode of BloodStream, hosts Patrick James Lynch and Amy Board share stories of remarkable achievement and progress in bleeding disorders. Hear from Tim Stowers, a severe hemophilia A patient who has summited Everest and completed solo English Channel swims, as he shares his journey of resilience and determination. Plus, get the latest upd…
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In this live episode from the NASCC meeting in Stowe, Vermont, Dr. Z and Dr. C are joined by a powerhouse panel: Dr. Payal Desai, Dr. Seethal Jacob, Dr. Pat McGann, and Dr. Andy Ellner to unpack what truly defines great sickle cell care. The group explores the importance of comprehensive, continuous, and patient-centered models, from inpatient to o…
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Sam Lipworth and Nicole Stoesser on genotypic and phenotypic antimicrobial resistance in Escherichia coli
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24:43By The Lancet Group
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This month on our subscriber-only show, we discuss the supposed A-Gays of Trump's Washington. Will the people working for the Leopards Eating People's Faces Party get their faces eaten, or is their work paradoxically evidence that LGBT liberalism, now in its flop era, actually did deliver something on its own terrible terms? Then, we take on a Gagg…
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Women and Clotting - What You Need to Know
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18:12
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18:12In this episode of Ask the Expert, we focus on women with bleeding disorders — a group that has historically been overlooked in research and clinical care. Heavy menstrual bleeding, mild and moderate hemophilia, and von Willebrand disease have often gone underdiagnosed or mischaracterized, leaving many women without the care they need. Amy Board si…
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Success Reimagined: Living a Life That Matters
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21:52In July 2024, Chris Bombardier leads a team of climbers with bleeding disorders on an attempt to summit Mont Blanc, the tallest peak in the Alps. Chris is older and wiser than he was when he climbed the Seven Summits–but now he has new responsibilities, like fatherhood. This episode is brought to you by Genentech. Visit http://www.hemashort.com/ to…
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On this episode of BloodStream, we explore the World Health Organization's updates to the Essential Medicines List and what they mean for bleeding disorders care. Hemophilia B mom and creator Jesseca Lockie shares her perspective on advocacy and storytelling online, while Domenic and his mom open up about how gene therapy has transformed his daily …
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Community Perspective: Using School Science Fair Projects to Raise Awareness of EoE
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32:18
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32:18Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED's Health Sciences Advisory Council, interview three high school students who made less invasive EoE diagnostics the focus of a scien…
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